Newly Diagnosed

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Newly Diagnosed

Postby Jennybrown2014 » Fri Mar 07, 2014 8:54 pm

Feeling numb.

I have been told for nearly 2 years that i have arthritis and last week I am told it wasn't and that it is fm!!
I have always had a bad memory, pain, disturbed and sleep patterns but it has got worse over the last few weeks where i am even forgetting my own families names!!!. Im getting words mixed up and if i lie down on my left side im sick. I have really bad tummy cramps when i eat and have lost 10lb in weight in a week

I have had MRI and CT scans to rule out other things so i know its nothing sinister but its getting upsetting now.

I have even had to stop at the end of the street and stand to try and remember what im going to the shop for :-?

The specialist has put me on Amatripiline (prob not spelt right). which have made me feel sick and i keep getting the runs.

Can anyone recommend anything please
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Re: Newly Diagnosed

Postby libbiek30 » Fri Mar 07, 2014 9:14 pm

Hi give the amiltriptiline time to work. It really helps the pain, sleep and ibs. You do find your own way to cope. Gud luck :-D
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Re: Newly Diagnosed

Postby FluppyPuffy » Fri Mar 07, 2014 9:44 pm

:welcome: to our little FibroFamily Jenny :cow-wave: :cow-wave: :cow-wave:

I have a bit of an understanding of how you're feeling at the moment. For 4 years I was treated for something different with no improvements at all. It was only after other symptoms and problems began showing their ugly faces did a GP I saw at the time think that there could be something else at work, and I was referred to a Rheumatologist who, after poking and prodding me, and telling me that I needed to lose weight, told me I had FM, put a leaflet in my hands, then ushered out of the door as quickly as possible.

The problems you've described are often associated with FM, which made me wonder if you're experiencing a flare~up at the moment :-? :-? :-? :-? With the build up to your appt, being given the news that the condition you thought you were dealing with is actually something else, along with all the stresses and strains that get thrown at us each day, it could be a possibility to consider.

Wrt to the Amitriptyline, what you're experiencing could be a side effect from starting the med. If it is a side effect, it should hopefully start to ease up soon, but if not, or if things become unmanageable, speaking to a pharmacist might be helpful as they may be able to suggest something that helps get you thru this. Alternatively, you could contact your out of hours GP service for help/advice.

Whilst Amitriptyline can be helpful, it doesn't always suit everyone. If you find yourself struggling to get along with it, Nortriptyline is a sister med of Amitriptyline that works in pretty much the same way as Amitriptyline, altho it is said to have fewer side effects and be better tolerated than Amitriptyline. There are other meds that can be used to try and help manage FM, if you clicky on this Linky it will explain about them in a far better way than I can do at the moment :shock: :shock: :shock:
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Re: Newly Diagnosed

Postby Theresa34 » Fri Mar 07, 2014 11:07 pm

Hi, I was diagnosed with psoriatic arthritis last year and recently with fibro. I think I dealt with the arthritis worse than I am the fibro. I guess its because ive been through the five stages of grief with the arthritis, I am just taking the fibro as just something extra to deal with. I have been on amitriptyline for a few weeks now. Its great for sleep but no good for my pain and stiffness. I have also discovered I am very low in vitamin D which most fibro people are. Make sure you get yours checked x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Newly Diagnosed

Postby Jennybrown2014 » Sat Mar 08, 2014 12:24 am

Thanks guys x your posts are helpful
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Re: Newly Diagnosed

Postby Itsnotinmyhead » Sat Mar 08, 2014 10:55 pm

Hi Jennybrown 2014

You are in the right place here with people who can support you. I've inly been here a couple of weeks and people have been amazing offering advice and being willing to share their feelings which has helped me realise there are people who understand how I feel.

I so understand how frustrating it is not remembering things.

I woke up on Thursday morning and couldn't remember how many children I had :yikes: I was devastated all day. They are 40, 39, 38 and 36 so it's not like they haven't been around a long time! :oops:
“I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”
― Maya Angelou
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