Doctor has said fibromyalgia is a possibility........

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Doctor has said fibromyalgia is a possibility........

Postby LucyLu29 » Mon Mar 31, 2014 1:41 pm

Hello all,

My name is Lucy and I am a 29 year old mother of two young girls.

When I was 17 I was diagnosed with dermatomyositis. Four months ago I started with pains and aches in my back, a short course of steroids stopped it dead in its tracks but as soon as I came off them it came back with a vengeance. I have terrible fatigue where I feel like I need to sleep there and then. The pain in my back is ridiculous and is worse in the morning. I have now a painful jaw in the joints near my ears and can hear like a grinding noise when I'm chewing. I have also noticed that my thumb joints are becoming a little painful.

I saw a rheumatologist in January (private that I paid for) and he said that I most likely had post viral myalgia. Here we are at the end of March and it's worse. I've been referred again but on the NHS as I cannot afford to go private again.

Really at the end of my tether with it all. I just want a diagnosis :(

UKFM Newbie
Posts: 1
Joined: Sat Mar 29, 2014 6:54 pm

Re: Doctor has said fibromyalgia is a possibility........

Postby Lindilou » Fri May 16, 2014 5:36 pm

Hi Lucy,
I've been viewing' unanswered posts'. How are you feeling now, anything from the hospital?

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