My problems with Fibro!

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My problems with Fibro!

Postby superhoops » Tue Apr 01, 2014 11:37 am

Hi everyone,
I'm new to this forum, my name is Eddie I'm 58...for the last 20 years I've suffered with chronic gerd and been taking PPI's. for the last two years my health has taken a massive nose dive! I had blood tests done in January 2012 after feeling very unwell for a few months, painful joints and muscles, neck, shoulder and chest pain etc. anyway the bloods came back abnormal, my antibodies were through the roof bordering my journey started at St Thomas's hospital, lupus clinic.

after various visits I was diagnosed with fibromyalgia and costochondritis along with Reynard's. Then early last year was told I had Hughes Syndrome and was put on baby aspirin for life after suffering two episodes of stroke like symptoms. brain CT scan and MRI was normal so they did a load more tests and another MRI of my spine where they found Cervical Spondylitis and arthritis of the spine :crazy: then august last year I had an endoscopy which revealed a 3cm sliding hiatus hernia :yikes: all the specialist seem to think all my problems are caused by long term use of PPI's so they have taken me off them!

for the last five months my hernia has been giving me massive grief, HOWEVER I do feel a lot better apart for the fibro. at the moment I don't take any meds apart from aspirin, now my chest wall inflammation has gone, aspirin? my doctor said my fibro will get worse as time goes on, is that true? does fibro and arthritis go hand in hand?

sorry for being a bit long winded.
Last edited by FluppyPuffy on Tue Apr 01, 2014 2:14 pm, edited 1 time in total.
Reason: Split into smaller paragraphs for easier reading.
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Re: My problems with Fibro!

Postby humphreys » Tue Apr 01, 2014 12:39 pm

Hi Eddie, Well done to you for getting off meds, and only having aspirin. I'm scared to death of coming off my meds, I'v had Fibro now for 6yrs, Rhumatoid Arthritis as well, I think we'll always have the Fibro, what with flares as well every so often. I do think the Arthritis will get worse, I'v had 6 Auntys with Rhumatoid Arthritis, and god have they suffered, but they didn't have the meds we have now a days. So I think the asnwer to your question, We'll have this for the rest of our lifes. Unless a miricle happens. Anyway good luck to you.
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Re: My problems with Fibro!

Postby FluppyPuffy » Tue Apr 01, 2014 2:38 pm

:welcome: to our FibroFamily Eddie :cow-wave: :cow-wave: :cow-wave:

I've moved you into here with this being your intro post as it's a more suitable part of the board. I've also split your post into smaller paragraphs to make it easier to read. A few of us on here struggle with reading larger blocks of text, and usually end up getting lost and reading the same bit over and over again :oops: :facepalm: :facepalm:

As to whether your FM will get worse over time, that's one of the most difficult questions to answer :facepalm: :facepalm: :facepalm: For a good number of us, things have definitely changed during the times we have been part of the FM club, which would suggest that yes, you could get worse over time if you follow a similar path. However, there are some who, with finding the right mix of meds/treatments/therapies for them, are able to lead a relatively "normal" life. There are even a few who have had their symptoms and problems go into a dormant~like state for varying periods of time, so there is always a glimmer of hope for anyone who joins us that things will settle and/or even disappear, at least for a while.

There are a number on here with arthritis, as well as FM. Whilst there isn't any current info to show that FM and Arthritis are definitely linked/co~morbid, there is always a possibility that they could be. More research is needed to determine if they are linked. It is always possible to have more than one pain~related issue running alongside another/others.

When you get a mo, have a bit of a looky and a read thru some of the stuff on here. There is lots of info and advice across the boards, as well as support and understanding, and even a bit of :bear-dancing: :bear-dancing: :bear-dancing: to help with getting thru the FibroDays.

Just ask if there's anything you're wondering about, it doesn't usually take too long for someone to :penguin: :penguin: :penguin: :penguin: with a reply :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: My problems with Fibro!

Postby denys » Tue Apr 01, 2014 5:35 pm

Hi Eddie and :welcome: to the forum :cow-wave: :cow-wave:

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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