New to this, also menopausal :(

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New to this, also menopausal :(

Postby denise63 » Fri Apr 04, 2014 8:04 am

Hi everyone, I'm Denise, 51, married, with two daughters 21 & 17.
I hardly know where to start with this, so it could be a very long intro...
I hardly know what to think any more my mind is in a turmoil.

Ok first of all, I had a severe amount of stress going on, my daughter was having anxiety attacks due to bullying and consequently got counselling and now going for Autism assessments soon, my other daughter split with her boyfriend of 4 yrs which was a major upset, my mum had a heart attack and needed/needs a lot of emotional help, & a few other issues... I felt like a boiling pot as if one more thing and I was blow my lid off...

So anyway, I started to feel unwell myself about 3-4 weeks ago, just couldn't shake off severe tiredness, didn't want to get up, my joints flared up on my hands, but I thought I was getting a flu.

One night I felt particularly bad and got really bad pains in my back and simultaneously in my chest I thought omg what on earth - I felt so ill, then started getting firing pains shooting off like electric shocks in every part of my body, from toes to fingers, up into head, severe throbbing pain in back of head, finger nails & tips of fingers & toes felt so much pressure in them, such a vast amount of things all at once, it was unbearable and extremely frightening!

Luckily it started to ease within the next few hours but has never left me totally! I am still having most of the above but little milder not as intense.
I get this was when it really hit my nervous system ....

First question I want to ask is did this happen to anyone else, the felt an initial hitting the nervous system like this??

I now have severe fatigue, joint pain, flushing, I have IBS, pelvic pain, general awful aches & pains all over, still get pressure pains or throbbing under nails(??)!! ... the list goes on!

I haven't seen a neurologist nor a rheumatologist - but saw my own GP who was extremely good and said it sounds like fibromyalgia - she gave me gabapentin & naproxen which help to a degree, but think I need something stronger.

Second question, what medications seem to relieve the symptoms better?

My GP also ran every blood test going, I don't have rheumatoid arthritis, thyroid, diabetes, all blood work came back satisfactory - apart from hormones which showed up mid menopause..

Ok more questions and I'm so sorry to do this but I'm so devastated and looking everywhere for answers to this...
How on earth do I decipher whether its menopause or fibro?
Menopause surely wouldn't cause pain to this extent?

Also if I have a good GP trying to sort me out medication wise, is it necessary to have it looked into further with neurologist? Or should I just stay with GP & sort pain out?

The initial onset that night was the most frightening thing I've ever experienced... Would be very interested if it happened as suddenly to others! I thought I had meningitis! My mind was everywhere.. Very scary indeed.

Sorry for the long post, really hope you don't mind. I look forward to your replies, thank you so much in advance xxx



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Last edited by FluppyPuffy on Fri Apr 04, 2014 4:43 pm, edited 1 time in total.
Reason: Made paragraphs clearer for easier reading.
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Re: New to this, also menopausal :(

Postby denise63 » Fri Apr 04, 2014 8:15 am

Sorry for silly mistakes not sure if its phone altering words or me! ;)
Also to add to this I get a feeling some days as if I'm not "with it" like everything is hazy and I feel like I may look a bit spaced out to people, then next day I'm fine! ?? Its awful x


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Re: New to this, also menopausal :(

Postby FluppyPuffy » Fri Apr 04, 2014 5:47 pm

:welcome: to our little sanctuary Denise :cow-wave: :cow-wave: :cow-wave:

I've made some of the paragraphs in your post a bit clearer for easier reading as quite a few of us on here struggle when it comes to reading what appears to be a larger block of text. And there's no need to worry about too many mistakes when posting, it's something else that affects a good number of us, yet we still understand what we are trying to say :cow-wave: :cow-wave: :cow-wave:

I'm sorry to hear all the things that have been happening to you and those important to you, it's no wonder that your mind is in turmoil at the moment :grouphug: :grouphug: :grouphug:

As I was reading thru, this part really stood out to me
denise63 wrote:So anyway, I started to feel unwell myself about 3-4 weeks ago, just couldn't shake off severe tiredness, didn't want to get up, my joints flared up on my hands, but I thought I was getting a flu.

It was the time period you have said things started affecting you and that your GP has mentioned FM in. Usually for FM to be considered a possible dx, pain has had to be present in all quadrants of the body for a period of 3~6 months. If I've misread things, please say so. If, however, it is a case of 3~4 weeks, this might explain why you are only feeling partial benefit from the Gabapentin. Meds like this need time to build up in the system and fully take effect. To reach this, the med dosage is gradually increased over a suitable period of time until the prescribed/max level is reached. For some, decent benefits may be felt after a month or so, but for others it may take up to 3 months to reach this point.

As to which meds seem to relieve symptoms more effectively, that's not an easy one to answer unfortunately. Altho we share a range of symptoms, FM affects us all so very differently. And because there is such a wide difference in how we are affected, finding the right ingredients for a helpful cocktail is tricky, as what may help one of us may do absolutely nothing for another. So to find what helps involves a lot of patience, and an awful lot more trial and error with trying different meds/treatments in various combinations, dosages etc. Also, with not all meds suiting/helping everyone, this might also be part of why you feel you need something stronger/different to what you're currently taking.

If you have a look thru some of the many topics and posts on here, you'll probably find that quite a few others have experienced similar sensations to what you have described. I can relate to most of them, altho for me they have occurred at very different times.

It can be difficult to tell what may be responsible for the varied types of symptoms we experience. For a lot of us, keeping a diary for a period of time can help distinguish between potential causes as it can help show up patterns, relationships between actions/activities and pain etc. Trying this approach for a while, then going to see your GP with your diary might help get some answers.

If you have confidence in your GP, then a referral to someone else may not be necessary. More and more GPs are dx~ing FM and treating the patient at surgery level rather than referring them to a consultant, altho some do prefer to refer patients on to confirm what they think may be the problem. It tends to be a Rheumatologist that deals with conditions like FM, altho in some areas it can be a different doc who has the specialism, such as a Neurologist. If you feel a referral to an appropriate consultant/specialist would be beneficial, then you will need to speak to your GP about it.

For a lot of us, altho there may have been a very significant event/period of time when symptoms became very obvious, generally the route to FM has happened over a period of time involving various events/happenings that at the time seemed completely unrelated. It's only when FM has been mentioned/dx'd, and more is learnt about the condition that things start to connect together. That said tho, it is more than feasible that FM may also appear out of the blue for some. There is still so very much that is unknown about the condition.

I think I've managed to cover most of your questions, if I've missed any, I'll try and come back later to see. Anything else that you're wanting to know about, just ask away. Rather than posting them all on one topic tho, it helps if you ask about things in different topics on the relevant boards. That way you will get relevant answers that can easily be seen and read instead of everything being jumbled into one topic and some parts being missed and getting lost in amongst all the others.
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Re: New to this, also menopausal :(

Postby whoami » Fri Apr 04, 2014 6:20 pm

Denise, welcome to our family.

Fluppy has given you quite a good response. Fibro is so very hard to live with and equally hard at times to diagnose. You question your symptoms and where they fit in. I do know that menopause can give women a huge variety of symptoms. Restless leg, pain, depression an many more. The only way to get answers is to have a good sit down with your Dr. Ask him that if he feels he can not help could he refer you to the appropriate Dr.

I hope you find some answers and relief soon.
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Re: New to this, also menopausal :(

Postby denys » Fri Apr 04, 2014 9:20 pm

Cant add anything to what has already been said except :welcome: to the forum :cow-wave: :cow-wave:
Denys

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