I have registered for some advice,

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I have registered for some advice,

Postby Lizee » Tue Apr 22, 2014 3:08 pm

Hi there,

I'm currently trying to get a diagnosis for fibromyalgia from the gp, I know I'm not a dr but I am convinced I have this. Since having my first child in 2008 I have felt constantly tired and poorly, for no reason. I have a history of depression and lost 1.5 litres of blood during labour. Afterwards I suffered extreme hip and pelvic pains which were put down to inflammation. When my son was 8 months old I suddenly started to get acute migraines 15-18 a month I was prescribed migraleve and various triptans to help. I didn't pick up on it at he time but my hip pain became manageable at this point..

When I was pregnant with my second son I found it exhausting, in pain and couldn't move most o the time. After his birth I developed post natal depression and again the hip pain returned. My migraines eased during pregnancy but returned with a vengeance when he was 8 months old, again my hip pain was more manageable. I feel the meds I was taking may have masked my symptoms somewhat.

In 2012 I developed severe carpal tunnel syndrome and it was operated on In July last year. Around this time I finally had an appointment to see a neurologist. One if the things he has requested I do to help treat my migraines is stop all analgesia. Since I have done this my pain is back. Only now I get more pain.

I'm sorry to list all this and I hope I don't sound like a hypochondriac. The pain is now in my feet, legs, hips, pelvis, elbow shoulder and neck. I'm constantly so tired I can sleep in the day and not affect my night sleep. I don't feel rested after a sleep at all. I int drive yet dread public transport as this leaves me in absolute agony afterwards. I find myself stiff and sore at the end of even the most restful of days. It seems sitting still is a problem for me aswell as this triggers hip pain for hours after, my work is call centre based o this is a problem but I try to move as often as I can.

I asked the dr about fibromyalgia and a series if blood tests have been undertaken, all show no other underlying cause. I have been told all of this is merely due to withdrawal from pain meds and will fade in time, really? Since last July? I'm no junkie and am really upset that they feel I needed 8 months or more to come off pain meds. Does anyone know what I can say to get them to listen to me? I'm at my wits end with it all.
Last edited by FluppyPuffy on Tue Apr 22, 2014 4:41 pm, edited 1 time in total.
Reason: Split large paragraph into smaller ones for easier reading.
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Re: I have registered for some advice,

Postby FluppyPuffy » Tue Apr 22, 2014 5:09 pm

:welcome: to our little sanctuary Lizee :cow-wave: :cow-wave:

I've split your post into smaller paragraphs to make it easier to read. Quite a few of us on here struggle with reading larger blocks of text, and usually end up getting lost and reading the same bit over and over again :facepalm: :facepalm: :facepalm: Just one of the little delights that FM randomly throws at us :oops: :oops: :oops:

Arriving at an FM dx can take a good while as it doesn't show up in any tests. Instead it is done by a process of elimination with other conditions that share very similar symptoms with FM being investigated and ruled out. Once all possibilities have been discounted, then an FM dx tends to be given.

The first stage tends to be blood tests like the ones you have had. Depending on results, how you are etc will then determine the next step to be taken, which could be being sent for additional tests, scans, x~rays etc that your GP feels necessary/applicable, or being referred to a suitable consultant/specialist such as a Rheumatologist, or you may be given a dx by your GP.

To help explain why you feel FM could be the reason for the different things you have and are experiencing, we usually suggest that you print up info on the condition from a reliable source, such as NHS Choices or the main UKFM site. Then go thru it, highlighting and making notes about the symptoms and problems you experience that ate mentioned, as well as any others you have that you feel may be related.

When you go to see your GP, if you take your info and notes with you, you can then raise the subject of FM and go thru what you have prepared and see what your GP has to say/thinks. If they are open to the idea of FM as a potential dx, you should be able to tell, just as, if they are dismissive about FM, you should also be able to tell. If they are dismissive of the idea, then you may have to consider seeing a different GP to see what they think and keep going like this until you find a more supportive one.

If your GP is open to the idea of FM, then you could be referred to a specialist, or your GP may want to carry on with the dx~ing process as more and more are seeming to feel confident in their awareness of the condition to go thru the entire process from start to dx.

In the meantime, whilst you wait to see what might happen next, make yourself at home and maybe have a looky around the place. The boards are full of all sorts of info and advice, and in amongst it all you may find some useful suggestions to try out :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: I have registered for some advice,

Postby denys » Wed Apr 23, 2014 1:44 am

Hi Lizee and :welcome: to the forum I would do as Fluppy has suggested and hopefully you will get some answers, but as FP has said it can take years for FM to be diagnosed so maybe you wont get to the bottom of everything for a little while yet :fingerscrossed: :fingerscrossed: :fingerscrossed:

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: I have registered for some advice,

Postby Lizee » Wed Apr 23, 2014 9:05 am

Thank you for you advice,

I shall do as suggested and hopefully my gp will take me a
Little more seriously.

Thank you for being so welcoming. I feel better knowing i can get some support from others who have fm. Even if it turns out I don't. Thank you. Again. Xx
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