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Newby

Postby Easylifer » Sat Apr 26, 2014 8:21 pm

Hello all, thought i would join up and talk to you all and see if i can get some advise.

Last year i missed the last few steps of my stairs, box in one hand, washing basket in the other, dog, you know the story. I managed to hurt my ankle pretty badly. Went to A&E to check it out, it wasn't broken, they sent me home on crutches and told me to go to the drs in a weeks time to get it checked which i did.

While recovering from the injury, i noticed my other ankle was swelling up and hurting, thinking it was just referred pain i treated it for swelling, thought it was a bit odd, but just waited for my body to heal itself, i reduced my work load and tried to rest ( which i don't do easily).

I then had a one off episode where i couldn't lift my arms up above my head, this really freaked me out, didn't know what was going on, i had pains appearing out of no where, i have had pins and needles/ cold fingers on and off,(thinking back, i was on a bus that got hit by a car and i suffered with whiplash approx 10 years ago, stemming from that i couldn't ride motorbikes any more the helmet and position my body was in made me feel nauseous so i stopped riding i remember have cold/ pins and needles in my hands then but i just put it down to being cold, interesting), also thought it could be bad circulation.

I have been sitting in a cinema watching a film and all of a sudden i got pains in my wrists, hips, ankles. I lost the ability to walk fast or far, My partner made me a walking staff to help me, i couldn't swim i just didn't have the strength.

So i went to the dr, firstly he said possibly FM or ME, took bloods they came back clear, so i went back said its no better and i was referred to a specialist and given amitriptyline 2 tabs per day.

I was waking up like i hadnt slept at all so tired and achy, went to see the specialist he asked some questions and did a physical, bending joints, twisting, touching toes that sort of thing, i am/was fairly and have suffered with back ache on and off so i stretch to keep things moving, he concluded that when i hurt my ankle i lost me adrenalin input, because i am a carer, a massage therapist was swimming and zumba, walking the dog etc all the things that released this hormone i stopped doing and he thought that if i start to build up these activities again i should be able to pull myself out of the slump i was in.

He suggested reducing the amitriptyline to 1 1/2 and to take them at night which i did that helped with the tiredness, and i have been managing with the help of painkillers when i have an active day on. Over the last two weeks it has got worse again, i have started walking abit more, my strength has come back a bit and i started zumba two weeks ago, hmm link? not sure so went back to drs had another blood test clear again so i think im going to look into seeing the specialist again and push for the pressure points test.

Does the above sound familiar?

I keep saying maybe its subconscious, i look after some really poorly people, is that affecting me, then i think im lucky to have the health i have why would i do that to myself,and round and round i go .

Nice to meet you all, look forward to learning more xx
Easylifer
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Re: Newby

Postby FluppyPuffy » Sat Apr 26, 2014 9:49 pm

:cow-wave: :cow-wave: :cow-wave: and :welcome: to our little sanctuary.

Reading thru what you have experienced, an awful lot of it does sound very familiar. However, I hope you'll appreciate that, whilst a lot of your various symptoms and problems could be attributed to both FM and CFS/ME, that we can't say if it is either or both of the conditions that are affecting you. To get a definite dx, you need to see a suitably qualified doc/specialist. Altho you have mentioned that you have seen a specialist, you haven't said what area/field they specialised in. Usually, when FM and/or CFS/ME is suspected/considered, a referral to a Rheumatologist is the next step, altho in some areas it can be a Neurologist or clinician in another field that has the specialism/interest in such conditions.

If the specialist you saw didn't deal with such conditions, then you may want to consider going back to see your GP regarding a referral to someone who can give you an answer as to what is behind what you experience.

With there being a worsening of things over the past couple of weeks, and with you increasing your activity levels, it could be that some sort of flare~up has been triggered off. With your activities, have you gone back to them at the level you were previously working at??? Just wondering as, if FM and/or CFS/ME are involved, when returning to activities, increases need to made very, very gradually over a suitable period of time to try and minimise the chances of another flare~up occurring.

Whilst you decide what your next step will be, have a bit of a looky and a read across the boards. They are full of all sorts of info, advice suggestions and there's even a bit of silliness and :lol: :lol: :lol: :lol: :lol: in amongst it all :bear-dancing: :bear-dancing: :bear-dancing: There may be some ideas to try out that could help make things a little more manageable for you.

Anything else that you're wondering about, don;t be afraid to ask. Just post it on what seems to be the most suitable board, it doesn't usually take too long for someone to :penguin: :penguin: :penguin: :penguin: :penguin: :penguin: along with a reply, or even some [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate]
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Re: Newby

Postby Easylifer » Sat Apr 26, 2014 10:03 pm

Hello, thanks for your reply, i can't remember if it was a Neurologist or Rheumatologist, think it was the later, i will have to check, ME was mentioned by the Dr on my first visit nobody has mentioned CFS yet.

I have been gradually building up my walking, work i just had to get back to for financial reasons, zumba, i used to do zumba then circuits, so just zumba for now the first time i went i got a pain in my arms so left arms out for the rest of the session, that evening i felt like my skin was crawling, very strange feeling, the second time i went it was better, i tried not to put my all into but i love jumping about.

Will check who ive seen and go back to drs and take it from there

:lol:
Easylifer
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Re: Newby

Postby FluppyPuffy » Sat Apr 26, 2014 10:49 pm

OOooopsie :oops: :oops: :oops: :oops: I was into my groove (for once :shock: :shock: ) saying CFS/ME even tho you only mentioned ME :facepalm: :facepalm: :facepalm: :facepalm: :facepalm: Altho some do treat them as one, there are also a good number that regard them a 2 separate conditions, so it is possible to have all or some of them.

Altho you've been building things up gradually, it is still possible that it is being done at too fast a rate, as I know from my own experiences :facepalm: :facepalm: :facepalm: :facepalm: I could be well wide of the mark with this train of thought, as everyone is affected in their own way, as I was reading thru tho, it was one of the first things that did manage to find its way to my brain. Maybe just bear it in mind as you see how things progress. I do know how difficult it can be when you're having to try and take something that you really enjoy doing at a slower rate when all you really want to be doing is :chicken-dance: :chicken-dance: :chicken-dance: :bear-dancing: :bear-dancing: :bear-dancing: :dogchasecat1:
Easylifer wrote:...the first time i went i got a pain in my arms so left arms out for the rest of the session, that evening i felt like my skin was crawling, very strange feeling

The crawling skin sensation is something that a lot of us experience at various times along the way. Now matter how many times I experience it, that strangeness is always there.
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Re: Newby

Postby Easylifer » Sat Apr 26, 2014 11:18 pm

yeh, i know they all share symptoms makes it tricky hey, i have investigated, well i say i my partner has looked into it more, he is very good at taking things in, im still in a no, i can't have anything wrong with me state, i care for people, i can't get poorly, then i wake up in the morning so stiff and achy for absolutely no reason, i just bounce back and forth :crazy:
Easylifer
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Re: Newby

Postby denys » Sun Apr 27, 2014 11:15 pm

Hi Easylifer and :welcome: to the forum :cow-wave: :cow-wave: when you had your fall did you get an x-ray on your back and neck???? or an MRI scan, just asking as from some of your symptoms you could have sustained some damage to the discs, maybe squashing a nerve etc. Unfortunately FM symptoms can mimic other conditions and so it is normally only when everything else has been ruled out that it is ruled in.

It sounds as though you are really trying to get back on top of things and as Flup has said sometimes baby steps are needed to get some of our abilities back. I really hope you get the answers you need from your doc sooner rather than later and manage to take back some of the control :-D :-D :-D
Denys

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Re: Newby

Postby Easylifer » Mon Apr 28, 2014 4:17 pm

HI Denys, they x rayed my foot thats all, but i will mention it when i see drs, hopefully tomorrow

x
Easylifer
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Re: Newby

Postby denys » Mon Apr 28, 2014 10:25 pm

Good luck with the docs I hope you get some answers :-D :-D :-D
Denys

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Re: Newby

Postby FluppyPuffy » Tue Apr 29, 2014 8:31 pm

With you posting about today's GP appt on the Doctors and Health Services board, I've removed the one you had posted here to save on the confusion that comes with duplicated posts, topics etc. The board you have posted about your appt on is the most suitable one, and hopefully you'll get some helpfully replies :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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