Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Postby alibp » Sun Jul 20, 2014 11:46 pm

Have done a couple of posts but realized I haven't said hello yet or introduced myself.

I am 35. I have 6 children (2 are biologically mine and 4 are my partners). I have 5 cats (2 mine and 3 my partners). We moved in together a year ago and already had cats we had to rehome 2 as they couldn't cope with the change. Wouldn't choose to have so many if we didn't already have them. Currently also caring for 3 abandoned hoglets (baby hedgehogs) as the RSPCA wouldn't come for them.

I have fibro, epilepsy and some hypermobility. Was only diagnosed with fibro recently. I had bad pains in my hands and thought it was due to the hypermobility. GP referred me to rheumatologist who told me I have fibromyalgia. Things have got worse recently and sometimes I find it hard especially when my partner can't cope.

Now on a crazy amount of tablets. Gabapentin for fibro which has helped with the crazy pins and needles pains and one good side effect is that it has helped with the seizures that weren't under control by the AEs.

Having read various medical research by specialists I am currently also trying D-Ribose, magnesium, calcium, glucosamine, chondroitin, multivitamins that have lots of the b bits also drinking flaxseed, protein powder mixed with almond milk and coconut water. I have a vegetarian, lactofree and gluten free diet because of stomach problems caused by my AEs. Trying my best to get better without too many more pills ( I have 8 in the morning, 14 in afternoon and 8-12 before bed) won't try things unless they have proper trials as don't want to be falling for the money grabbing cons out there.

I have probably put far too much information here but I'm not used to this kind of thing and having a mentally and emotionally bad day. Sorry.
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Re: hi

Postby Theresa34 » Mon Jul 21, 2014 10:23 am

Hi hun x alive just replied to your other post. I am married with 3 kids, we also have two dogs, a hamster and a bearded dragon lol I am a stay at home mum and hubby works full time to keep us going. I have fibro, psoriatic arthritis, an underactive thyroid, and ibs although I query that one. Anyway, I try not to take too many pills. I've drastically cut down on the pain pills as I was getting too used to them that they stopped working. When I do take them, they're ibuprofen and tramadol. Main pills are vitamin D, levotyroxine (for thyroid) and Amitriptyline for my sleep. My fibro varies day to day. I get bursts of energy and then crash. I try and push through the worse days but still doing better than I was since going on the vitamin D and ami. I started exercising five days a week but since my flare up of the arthritis and fibro I've stopped for a bit. Looking forward to restarting them :-D

Take care & welcome xxx
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: hi

Postby denys » Mon Jul 21, 2014 6:49 pm

Hi and :welcome: to the forum :cow-wave: :cow-wave:

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: hi

Postby FluppyPuffy » Tue Jul 22, 2014 10:53 am

:cow-wave: :cow-wave: and :welcome: to our little FibroFamily.

There's no need to apologise for what you put in a post, be it a long one, or a short one. Sometimes you start off thinking you'll just say a little bit, and before you know it, there's a whole screen full of posting in front of you :-D :-D :-D

It's not unusual to find you're on a cocktail of meds with FM, and other conditions in the mix. Nor is it unusual to feel like you rattle your way thru the days either :lol: :lol: :lol: :lol: Wrt to supplements etc, it is a rather fuzzy area as whether they may help or not, just like it is with meds, with some finding that certain things make more differences than others, whereas others find that a completely different combo of things helps them.

Some vitamins and minerals do need to be taken alongside others for the body to make the best use of them. Some can interact with prescribed and/or otc treatments, whereas others, if taken in high dosages, can cause additional problems, so try to bear this in mind. Sometimes, the addition or change of something diet~wise can help boost levels, which could prove to be more economical as supplements can be expensive to buy.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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