Just to say Hello

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Just to say Hello

Postby AliBear » Fri Nov 14, 2014 4:24 pm

Hi
I believe I have had Fibro for quite a few years without knowing what it was. Every time I have been to the doctor's they have given me loads of bloodtests which all come back normal and then tell me it's either all in my head or it's my lifestyle making me tired (though they cannot say what about my lifestyle is the cause).

Finally after being sent to an arthritis specialist because of pain in my hip he told me I don't have arthritis but it could be fibromyaligia which I had heard of but knew nothing about. I looked on the NHS website and ticked off almost every listed symptom. Luckily there is now a new doctor at my practise who has finally taken me seriously. She has done more blood tests to rule out other problems and is referring me to a rheumatologist as well. I am now on Amitriptalyne which has helped with the background pain although I cannot tolerate a higher dose as it sends me to sleep.

I am not as bad as many people who have posted on here. I work part time and even walk the mile home each day. I am also trying to keep up with my hobbies of horse riding and archery though I often find this difficult. The riding school are great and even in group lessons I just work at my own pace with rest breaks when I need to. Archery has helped to build up muscle tone in my arms though i sometimes struggle even with my own lightweight bow.

My doctor has told me to push through the pain and do as much as I can as 'if I don't use it I will lose it'. Do others agree with this or should I take heed when the pain gets bad and stop? I found archery very difficult last night and today I am aching all over - should I have stopped rather than carrying on? I know that compared to many I am lucky but get very scared that I will continue to deteriorate until I can no longer do anything. Is there any hope for the future? :-?
Last edited by denys on Sat Nov 15, 2014 2:41 pm, edited 1 time in total.
Reason: Broken up paragraphs to help reading
AliBear
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Re: Just to say Hello

Postby denys » Sat Nov 15, 2014 2:50 pm

Hi and :welcome: to the forum, firstly there is lots of information on here that may help your understanding of the condition a little, use the search facility at the top of the page, but if you have a specific query then just start a new thread and hopefully someone will be able to help.

Dont ever say you arent suffering as much as others on here, pain is subjective and therefore you may be experiencing pain as severe as the next persons but be better able to tolerate things :-D :-D

Your doctor is right in some ways as if you dont try at ll then it is a case of 'use it or lose it' that said you should always listen to your body and try not to push on regardless or you will inevitably cause a flare of your symptoms which you want to avoid if at all possible.

Some of us have found things deteriorating over time, but this condition does not kill you and so there is every hope for the future, if you are 'sensible' about things there is no reason why you cant continue to enjoy your hobbies for a long time yet, learn to 'pace' as this helps most of us, there are a number of topics on the subject of pacing which should help you get an understanding :-D :-D :-D
Denys

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Re: Just to say Hello

Postby AliBear » Sat Nov 15, 2014 4:23 pm

Thanks for the advice Denys. My doctor is great but she is not an expert. Mainly it's just a relief to have someone take me seriously and put a name to my condition. I have found people much more understanding now I can say 'I have fibromyaligia and this is what it does to me' rather than 'sorry I can't do that i'm too tired/it hurts too much'. I have been having a look around the site and have found some interesting connections especially to symptoms I wasn't sure were related such as the recent thread about being too hot most of the time. I think I have to learn to let the frustration go and just do what I can. :-)
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Re: Just to say Hello

Postby denys » Sun Nov 16, 2014 5:02 pm

Its a good outlook to have :hugs: :hugs: :hugs:
Denys

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