Do I have FM?

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Do I have FM?

Postby CarlH82 » Tue Nov 25, 2014 3:56 pm

Hi all.

For a year or so now I have been puzzled by some different things that I have been experiencing. I noticed that I had lost a lot of strength and become significantly weaker than I ever was. Just to make you all aware, I always had a very active lifestyle, playing sports and my job consists of a lot of walking.

I started to notice my legs and arms would shake if I were carrying anything more than just a few kg's in weight. I wouldn't struggle, just shake. Also feeling a slight weakness in my lower back. As time went on I started to feel pain in random places for no obvious reason.anxious mes it would feel as though I had hit myself on something quite hard, but I never did. These pains would crop up in totally different places each time. Tops of my legs, calfs, knee and elbow joints, forearms, biceps, chest muscles, neck and some hefty head aches.

As time went on my mental state changed. I became anxious and my patience level dropped. I have also started to become quite dizzy at times and getting clumsy and very forgetful too. I get pain mostly in my chast. My GP and chest nurse have told me that these pains are musculoskeletal and most likely costochondritis.
I have had blood work done to rule out cardiac and motor neurone disease. Although I would like an MRI on my chest to confirm these pains

I have most likely missed something out here but this is a rough guide to how I am feeling at the moment.
Please ask anything you feel relevant as any other info I can give may help with your opinions

Thanks in advance
Carl
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Re: Do I have FM?

Postby Ali170 » Tue Nov 25, 2014 5:11 pm

Hi love,
Yes it all sounds very familiar, I had to go through a lot of tests to rule things out as there's no diagnosis for FM, took 12 years !!!! A lot of that was me just living with it and not bothering the DR, so although it's a pain (literally!) you need to go through all these tests to find out for sure. Are you taking any meds for your pain ?

Take care x
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Re: Do I have FM?

Postby CarlH82 » Tue Nov 25, 2014 5:20 pm

Hello

I often take cocodomol for the pain. I have ongoing stomach problems at the moment so ibuprofen is not really an option.
I would like more tests done and a firm diagnosis rather than the GP telling me the it's "probably" this or "probably" that or blaming my anxiety for everything I feel.

Thanks for your reply
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Re: Do I have FM?

Postby Ali170 » Tue Nov 25, 2014 6:08 pm

Hi again

well your Dr doesn't sound very helpful, but he/she can't deny you having more test, or referring you to a specialist. Mine included seeing a rheumatologist, x-rays to rule out osteo disease, blood tests etc. I ended up being diagnosed at a general medical clinic at my local hospital which my Dr had referred me to as all the others had come back clear. Just keep going love and maybe take someone with you who can verify all you're going through.

Take care and good luck x
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Re: Do I have FM?

Postby FluppyPuffy » Tue Nov 25, 2014 9:02 pm

:cow-wave: :cow-wave: and :welcome: to our FibroFamily.

I've moved you into here with this being your intro post as it's a more suitable board, and you won't drop down into where the DustBunnies dwell quite as quickly as you would have done where you had originally made your post :cow-wave: :cow-wave: :cow-wave:

I hope you'll appreciate that we can't say whether you have FM or not, only a suitable doc/specialist/consultant can give you a definite yay or nay regarding a dx. Whilst a lot of what you experience could be attributed to FM, the wide range of symptoms which can be related to the condition can also be indicators for other illnesses such as Lupus and Rheumatoid Arthritis. And as there is currently no test available that shows markers for FM, a dx for it tends to be arrived at by a process of eliminating all other possibilities. Because of this, it can, and for some does, take a while to to get those answers you're looking for.

Have you asked your current GP about additional tests or being referred to an appropriate consultant/specialist??? If not, then it is something you need to do. If not, then maybe you need to consider seeing a different GP. If you've tried this and still haven't got any further along, then changing surgeries may be what you need to do next. You could try contacting ones in your area to see if they have any patients registered with FM, CFS/ME or other similar conditions. If they do, then ask if there is a particular GP that they tend to see/if there is a GP with an interest in such conditions. If there is, then see what would be involved in transferring there from your current one.

Whilst you're deciding what to do next, you could have a looky and a read of some of the stuff on here. The boards are crammed with all sorts of info and advice that other members have found helpful in some way, so there might be a suggestion or few you could try out that could help make things a little more manageable for you.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Do I have FM?

Postby CarlH82 » Tue Nov 25, 2014 11:56 pm

Thanks for replaying.

I have not suggested FM to my GP. Nor have I suggested anything else as I am puzzled by the symptoms I am having and I have no idea what they may be related to.

I typed "constantly in pain" into google (I know I shouldn't) and FM was a very common result, even without searching for the condition. After reading the symptoms, it lead me to this board to see what other people are experiencing. I will read a bit more when I have a little more time just to see how people are getting on.

I am not here for a diagnosis, just opinions and suggestions that may help. After all, a community who are experiencing the same things are the best people to ask.

Carl
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Re: Do I have FM?

Postby FluppyPuffy » Wed Nov 26, 2014 12:41 am

CarlH82 wrote:I am not here for a diagnosis, just opinions and suggestions that may help. After all, a community who are experiencing the same things are the best people to ask.

I appreciate that you're not here for a dx. We have had previous members literally asking if we can say what they are describing is definitely FM, which is why we now explain why we are unable to say whether what they are describing is FM, or any other illness/condition. Also, people find there way to us in many different ways, from asking Dr Googley about symptoms as you did, all the way thru to actually asking "Do I have FM?" With this, and other similarly worded phrases being used as titles for some topics on here, as well as in posts, they can and do appear in searches, so when someone clickys on the linky to read what has been said, whilst we can't help answer this particular question for them, we can try and explain the possible steps/choices that might be needed and followed for them to get those answers they are wanting and looking for.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Do I have FM?

Postby Fluff » Wed Nov 26, 2014 2:14 pm

I've been treated for the last 3 years for rhumatoid. When I said the tablets didn't seem to be doing much the consultant said it think you started out with rhumatoid but now you have fm. When I asked what that was he said it's pain that you don't really have. It's all in your head and with that stopped all my medication !!! You got to laugh. Now i just go through each day as it arrives still in full time work. Boy it's a struggle
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Re: Do I have FM?

Postby Charlie28 » Wed Nov 26, 2014 8:13 pm

Carl

How long have you been experiencing symptoms? Can you date them roughly to any specific event such as an accident, a bad case of flu (which lasted a few weeks on and off possibly) a bereavement or a major stressor (new job, house move etc).

Constant pain with no signs of inflammation or positive blood results does sound like fibro, but obviously your GP needs to refer you to a "specialist" probably at a local hospital or rheumatoid centre.


Charlie

P.S. The less pain killers I take the better I feel, but I understand this is not an option if you're in severe pain.
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Re: Do I have FM?

Postby Polaris » Thu Nov 27, 2014 10:38 am

Fibromyalgia is not easy to diagnose as it is very complex and I would advise against self diagnosis. The diagnostic criteria has been evolving but it is still a diagnosis of exclusion. This means you have to rule a lot of other things out first and still meet the diagnostic criteria for Fibromyalgia. While there are fMRI scans and a blood test that detects anti-polymer antibodies unique to people with Fibromyalgia, these tests are not widely used as they are not 100% reliable. The blood test (FM/a) for example will only detect the anti-bodies in about half of those tested. You will almost certainly need to see a Rheumatologist who are the main body of professionals dealing with Fibromyalgia mostly because, traditionally in the past. it was thought to be caused by inflammation. Try and find one that specialises in the condition. :face-slap: :fingerscrossed: :snowing1: :hohoho1:
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