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The UKFibromyalgia Forums • View topic - Fibro,Cfs,m.e,colitis



Fibro,Cfs,m.e,colitis

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Fibro,Cfs,m.e,colitis

Postby Lg1978 » Tue Nov 25, 2014 10:59 pm

Constantly... Always feel totally shattered n foggy but can't sleep n when I do "eventually" manage to get some sleep can't remember the last time I woke bright eyed n fresh them days are long gone.... Wish I could get a decent sleep n for once n wake feeling refreshed.. N not feelin crappy n sore :-( xx #fibro #colitis #cfs vitamin D,calcium n B12 deficiency, #fallinapart

I still try n go out with my friends at least once a fortnight but I know after the night out I'll be in bed for at least 2 days after
But I feel I still need time out with them or would really go mad, trying not to let it beat me and live as normal as poss but have to make sure if I'm gonna be doing something not to have anythin the next day "recovery day"

I have to tried not doing too much on my "good days" but half the time it's the only time I could get anything done around the house, but then end up achy sore n tired from doing jobs it's like I have 1 "good" day then 3 bad so try to make the most of it but even on good days I'm not well enough to do half the things I should be able to do at 36yrs old..... I've had this on n off flare ups now for 13yrs all kicked off after being really ill with glandular fever, have never really been the same since xx
Last edited by FluppyPuffy on Tue Nov 25, 2014 11:36 pm, edited 1 time in total.
Reason: Split paragraph into smaller ones for easier reading.
Lg1978
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Re: Fibro,Cfs,m.e,colitis

Postby FluppyPuffy » Tue Nov 25, 2014 11:50 pm

:cow-wave: :cow-wave: and :welcome: to the forum.

I've moved you into here with this being your intro topic as it's a more suitable board. I've also removed the other post you made as it was exactly the same as this one. We do ask members not to make duplicate posts on multiple boards due to the chaos and confusion that ensues when replies are made to each post.

Sorry to hear how things are for you. If you have a read around the boards, you'll find that you're in good company as we share a good number of the things you experience.

Anything you want to know about, then just ask and we'll try and help you with it :cow-wave: :cow-wave: :cow-wave:


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Re: Fibro,Cfs,m.e,colitis

Postby Lg1978 » Wed Nov 26, 2014 12:20 am

Ok thank you, have just joined this so wasn't sure how it worked, it's been very helpful readin the posts on Facebook and sharing at least we know we're not alone xxx
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Re: Fibro,Cfs,m.e,colitis

Postby Ricardo » Wed Nov 26, 2014 1:48 am

I need help along the same lines
Though I did improve in the Summer and
with diet changes and other supplements
Going downhill again now
I was taking iodine.. sodium bicarbonate..
vitamin c (ascorbic acid).. potassium chloride as my salt..
Organic cocao for magnesium.. B12 5000 mcg.. calcium which
was eggshell.. plus various other things
Installed a RO system for taking crap out of water
Stopped all processed foods..bread..rice..etc
And juicing..with lots of lemons..limes..celery..cucumber..carrots
beets..
I know i need to do this again and stick to it..but just about
had enough
Ive lost weight but also diabetic.. and all in all reckon ive
got approx 10 illnesses
Docs blame everything on diabetes..they have been useless
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Re: Fibro,Cfs,m.e,colitis

Postby Jeany » Wed Nov 26, 2014 9:11 am

I'm more or less the same as you, as in I had glandular fever approx 10 yrs ago and I have been on a decline ever since.

Stomach problems started about the same time and I have ulcers, acid reflux and IBS BUT I am having further investigation for tummy probs on Friday as the meds are not working, so I may have something else.

I also have ME/CFS & fibro, so like you I have the foggy brain, low low energy and the pain. My life is very simple now, and instead of going out at nights socialising I do coffee or lunch when I feel able. I also lost a good job, because I had a complete breakdown, as a result of pushing myself too far.

Listen to your body, and try do a little excersise if & when you are able. I have a really healthy diet now & gave up the booze & fags. Just do what you can to help yourself & do little things that bring you joy.

Good luck xx
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