One year old twins and Fibro HELP

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One year old twins and Fibro HELP

Postby FineyFinFin » Fri Sep 16, 2016 11:05 am

Hi everyone :-D ....

I developed Fibro when I was pregnant with my twins.....looking at other people's experiences my diagnosis came quite easily...however I am in a whole world of pain and confusion...i have lost my body and my mind.... :crazy: nothing has been left untouched of what I used to be.. :cry: I don't know what is worse ..the pain or the exhaustion...not that I get to choose which one I get to keep..my real problem is that I am at the point of thinking that I just can't carry on anymore...I am not depressed, it is just the fact that I am in so much pain and exhausted I am getting to the point where I am going to not cope anymore.....I have two one year old boys to look after...I love them so much and want desperately to be a good mother but it is killing me...I just don't get any rest...it is constant...my mind started to go a few months ago ....I just can't remember anything...I have a shower and forget to wash, can't remember talking to people, can't find words, will forget what I doing as I am doing it, can't remember taking my painkillers. The exhaustion is all consuming that I haven't left the house since having the boys.

I need some help with my meds...currently only on Tramadol and cocodamol, which I am now tolerant to so don't really do anything. I seem to not tolerate any anti depressant as it gives me suicidal thoughts and makes me depressed. Can anyone suggest something that will help with the exhaustion ....my head just can't cope with researching ...I have heard of Ritalin ..is this approved for Fibro or is it just plane nasty....I am desperate to have enough energy to look after my boys that I am willing to have a bit of suffering coming of a drug in a few years time when they are older to look after themselves a bit.
Any other advise on pain relief would be great aswell.

Help help help xxxx
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Re: One year old twins and Fibro HELP

Postby LindyM66 » Fri Sep 16, 2016 8:47 pm

Hi Finey,

Sorry to read your having such a difficult time. Being in pain is absolutely hellish, nevermind being in pain with 2 little ones.
Have you asked your GP to refer you to a pain management clinic?
Heat helps me greatly - hot water bottle, heat patches, heated seat, blanket. I also find epsom salts baths really helpful for easing my aches.
I take Gabapentin 300mgs, with 100mgs of Tramadol 3 times a day ( tramadol 4 times) and this has really made a difference to me. It doesnt make me completely pain free, but manageable.

Keep on, Keeping on Finey.

Much Love
Lindy x
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Re: One year old twins and Fibro HELP

Postby FineyFinFin » Sat Sep 17, 2016 9:20 am

Hi Lindy...

Thank you for your reply....there is a one stop stop Fibro clinic in st Thomas's which dr has ref me to...waiting Time about 3-4 months so I may get to be seen this year, maybe in Jan. Yes I have heard of gabapetine ...I had a choice of that or amatryptalin ....chose ama and it went a bit wrong...speaking with the doc on Monday so I will ask about this drug...have been told about nortyptalin but concerned as it is anti depressant and I don't seem to get on with those. I refuse to let this be me for ever....so bloody unfair....only plus side is that they say my body is actually ok..my sister has a terrible form of lupus that clots her blood and I see what she goes through....with the worry that they will start chopping of bits of her body that it kind of think I got of lightly. My first cousin has MS so I think there is some major crappy gene in my family...I blame my mother lol :lol:

Xx
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Re: One year old twins and Fibro HELP

Postby Claire'scomfycorner » Sat Sep 17, 2016 5:42 pm

Hi Finey :-)

Welcome to the forums :welcome:

I saw the specialist at St Thomas's and then I had a second appointment where I saw a rheumatologist, psychologist and physiotherapist, spending half an hour with each. It was useful and they made recommendations for my treatment by my GP - physio and CBT.

My GP is playing around with my pain meds and doses to find what works for me - I take Pregabalin, tramadol, naproxen, mirtazapine and paracetamol for the pain, some days they don't even touch the pain. Work with you GP and rheumatologist to find what helps you to get through the day.

CBT is useful and teaches you how to approach different situations in different ways, perhaps this would help you. I've only just started physio but I hope it will help. It might be worth asking your GP to refer you for CBT and physio - there's a long waiting list.

Sending you a gentle hug

Claire
xx
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Re: One year old twins and Fibro HELP

Postby FineyFinFin » Sun Sep 18, 2016 9:02 am

Hi Clair,

Yes I forgot...have been put on the list for physio...I think my doctor is pretty understanding...she let me rant for 25 mins when I last saw her...hopefully she said I could get acupuncture aswell if the physio recommends it. I am going to speak with her on Monday on the phone and discus what further meds I can take...I can't take any anti inflammatory pain killers as I have history of internal bleeding...I just want to enjoy life....thank you for your reply..I will look those up

Xx
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Re: One year old twins and Fibro HELP

Postby Claire'scomfycorner » Sun Sep 18, 2016 1:48 pm

That's great to hear that your GP is understanding, hopefully you will find the right mix of meds for you :-)

Good luck with the acupuncture.

Hugs
Claire
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