Hi I am from Somerset and looking for friends

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Hi I am from Somerset and looking for friends

Postby Suzyb » Fri Feb 03, 2006 3:06 pm

HI I am Suzy, 47 years old and married to Roy, no children at home as they are all grown up now and I have had FMS diagnosed since March 2004. I also have osteoarthritis in hip and knee as well which does not help matters either. I live In Yeovil which is a Market town. I would love to find someone that lives near me that I can meet up with from time to time or at least swap emails with. Is that you? If so, please email me and let me know or leave me a message here. Thanks. Suzy :lol:
Still got my sense of humour despite the FMS
Suzyb
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Postby saffy » Mon Feb 06, 2006 9:54 pm

Hi Suzy,
I'm 38 and live nr Burnham-on-Sea.I have been suffering from symptons for last 10 yrs but was not diagnosed til Oct. last yr . Thought I was goin completely insane :? . My GP diagnosed it (after thinking I was a hypochondriac) but has been no help since. It has taken me until now to find this forum but am glad I did, it has been very helpful. :) If you want to chat let me know and i'll send you my msn addy.
Tina :D
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Hi Tina

Postby Suzyb » Tue Feb 07, 2006 1:47 am

Hi Tina. Thanks for the reply. I would love to chat with you on msn anytime. I am normally here at my pc most of the daytime but not too often during the evening as my other half likes to get his mits on it then lol. Feel free to email me as well. You can get my address from clicking on my profile information. Sorry to hear that it took a long time for you to get diagnosed. I know a lot of people have said that but I was just lucky I think. Although I have had a lot of back pain for years I did not go into full blown FMS till March 2004 and at that time my gp did some blood tests which at first showed a rheumatoid factor and he was pretty convinced I had RA well luckily for me it was not that and after seeing the rheumatologist a few times they announced that it was fibromyalgia. I see one of the specialists at Bath for mine. Do you go there as well? Take care. Chat soon.........Suzy
Still got my sense of humour despite the FMS
Suzyb
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Posts: 57
Joined: Wed Oct 26, 2005 1:30 pm
Location: Yeovil, Somerset

Postby crazydazy » Sat Apr 01, 2006 8:14 am

Hi Suzy
I am also from Yeovil and have just been diagnosed through a specialist after a car accident. I have been telling my doctor for a couple of years now how I have been feeling but I suppose along with everything else that has happened over the last few years he has been a bit confused. :? Now I will be able to take the letter from the specialist and finally ask for help :D I do get tired and irritable, especially as I have a stressful job but I just try to keep my sense of humour and it really helps.
I have a brilliant chiro and next time I visit her it will actually be with something she can focus on.
My family laugh at me when I tell them that their play fighting hurts now I can explain why!!! No more flicking tea towels at me for taking the mick out of them HOORAY!!!
I have a fantastic partner, who as yet doesn't know what Fybro is all about, but I know he will be supportive.
Hope to hear from you soon.
CRAZYDAZY
SMILE AND THE WORLD SMILES WITH YOU
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Hi

Postby Suzyb » Sat Apr 01, 2006 8:24 am

:D Hi Crazydazy I am really glad that you have found this forum. You are the first person from Yeovil that I have had contact with that has the same diagnosis as me. I am sorry to hear that you have had it as a diagnosis as its not something anyone would choose to get is it. I now when I found out what was wrong with me it was a relief to have a name to put to the pain and exhaustion that I had been suffering from. Well done on still managing to work with it as that cannot have been easy. I stopped working 2 years ago as it got impossible for me to carry on. At that stage I still did not know what was wrong. What sort of work do you do. I was a community carer and support worker and my back was killing me in the end. I had a job to get out and in my car without the other stuff I had to do in a course of a day.

Maybe we could get to know each other and meet up for a coffee at some stage. It would be great to actually talk to someone else locally that understands. Please feel free to email me or call me on MSN or aol IM. Take care now. Suzy
Still got my sense of humour despite the FMS
Suzyb
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Posts: 57
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Location: Yeovil, Somerset

Postby Nigel » Wed Apr 05, 2006 7:00 pm

Hi Suzy, :)

I am just over the border in Wiltshire, and have recently been diagnosed after a long process of investigation. This web site have really given me hope and knowledge that there are others out there suffering and I am not alone, as the constant pain has roused depression and anxiety in me, leading to self-harm last week.
Nigel
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Hi

Postby Suzyb » Wed Apr 05, 2006 10:52 pm

Hiya Nigel. So sorry that the diagnosis has got you so low. I know myself that I too was really low this winter but a good dose of prozac has helped to lighten my mood a bit most of the time now. I think that we all go up and down with how we feel about our illness from "I got this all under control and I am positive" to "How can I live like this" and the swings can come from one hour to another. I have found that I have to look at the positive things I still have in life to get myself through. I look at my husband and my stepfamily and grandsons and think that it would be awful not to have them in my life. Have you been to speak to your gp about how you are feeling as I am sure that he or she will be able to help you in some way even if it is a short course of anti-depressants which by the way often help to relax you down and lessen the amount of pain that is felt. You can always come here and record your feelings as lets face it we will all understand what you are going through which is more than can be said for the general public who for most part really don't have a clue. Its daunting at first and you seem to have so many symptoms that dont add up and then when you find these sites you realise you are not alone and that many of us are experiencing the same strange things too. Do you have a family living with you that are giving you support or are you having to manage alone? I am lucky to have a good husband who does so much for me these days but I think it would be so hard to manage on my own as my walking is not good at all nowadays. I manage around the house in short bursts but soon lose all my movement ability and get stiff and so slow that it feels like I am not going to make it to sit down before I fall. Just been to Lidl supermarket tonight with hubby when he came home from work as its the only one that I can cope with walking around but was in a right state and could not even open the car door when we got out and was stuck sat on the seat with my legs out of the door for ten minutes before I could bend enough to get them in the car with help. Ah well lifes a bitch eh!! lol. You take care and do come back and let us all know you are ok. (((Hugs))) from one fibro friend to another. Suzy
Still got my sense of humour despite the FMS
Suzyb
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Posts: 57
Joined: Wed Oct 26, 2005 1:30 pm
Location: Yeovil, Somerset

Thanks for the reply

Postby Nigel » Thu Apr 06, 2006 6:35 pm

Hi Suzy,

Thanks for your reply. :)

Yes, I have seen my GP many times over the last year and she has tried me on several anti-depressants, and all had bad side effects except Amitriptyline which even at a higher dose only helps a little with my sleep and not lift the mood. I am now told by the Psychiatrist at the Community Mental Health Team, that I should get involved in more "activities" to do this, as I seemingly cannot "tolerate" the pills. I now regret the day I asked for a referral to the MHT.
I had hoped to go to a specialist pain clinic in Bath which is residential and "multi-disciplinary" but the good old PCT has no money! :cry:

Finding this web-site and being able to have contact with fellow suffers, has given me some hope.

Best wishes,
Nigel
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Postby Joo » Thu Apr 06, 2006 7:13 pm

:D Hi folks, I'm in Bristol and very envious of the fibro knowledge in Nth Somerset, Weston and Bath hospitals in particular. I belong to Portishead Support group and the groups are really helpful with up to date knowledge and contact with other fibro peeps. Have all of you got the Fibromyalgia Association web addy and helpline number? Joo x :wink:
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Hiya

Postby Suzyb » Fri Apr 07, 2006 12:03 pm

:( Sorry to hear that you have not tolerated the anti-depressants well. It must make life even more difficult for you than it is already. I must admit I did not think at first that I would be able to keep going on the prozac as I was so nauseous to start with all the time. That disappeared after about a month and now I am fine on them. It is a shame that you can't go on the pain management course as it may have been good for you. I know that they do a lot of Cognitive Brain Therapy as part of one of the courses and that may have been helpful to you. I am currently under a doc at Taunton pain clinic and visited there for the first time a few weeks ago now. I did not find it particularly helpful as at the end of the day we all know there is not a lot of meds that can help our condition so more painkillers is not the answer really. I think I have been able to come to terms more or less now with the inconsistencies in my life now and for most of the part I am reasonably happy. Having been a support worker and care worker in the community and a great advocate of empowering people to help themselves I did find it easier than a lot of people do to look for the good in situations and adapt my approach and surroundings as best as I could and have tried to learn to accept the things that I cannot do and put it behind me (just like all the extra pounds of fat have done that I have gained since being like this.lol) When I was an inpatient at Bath Rheumatology Hospital (the Min) I had some really good help with physio and hydrotherapy and that was so good for me. The hydro was the most beneficial as it made it easier for me to exercise whilst being supported by the water and being lovely and warm was so soothing and I so wish that I could still do that on a regular basis but our local hospital in Yeovil has no facility to do that on a regular basis and I have had my five sessions there. If I had the money I would set up a hydro pool so that anyone with mobility problems and pain disorders could come along for some soothing relief. Roll on a lottery win I say lol. Hope that things improve for you Nigel and that you can find a way to help yourself.

Joo. is that the same address as the UKFibromyalgia support? Do you have a rheumatology dept in Bristol that you go to? I know that there were people from many areas when I was in the Min including Wales and Surrey. I was offered the choice by my gp when I needed to be referred to a rheumatologist of going to my local hospital or going to Bath Rheumatology where they specialise in it and needless to say I chose Bath. My own Gp has RA and I think it is probably psoriatic so I was fortunate to have him as he is really understanding of my problems and now treats me so differently than he did before he realised I had a problem. Take care. Suzy
Still got my sense of humour despite the FMS
Suzyb
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Posts: 57
Joined: Wed Oct 26, 2005 1:30 pm
Location: Yeovil, Somerset

Postby Joo » Tue Apr 11, 2006 7:04 pm

Hi Suzy, sorry it took me so long to get back to replying to your question. Have just re-read this thread and realise I sounded a bit too bright and breezy perhaps :) Sorry.

The addy for FMA UK is www.fibromyalgia-association.org and their helpline number is 0870 220 1232 this is who the support groups run from. There is a very good group based in Bath and there are others all over the country set up by Fibro sufferers themselves so it's a brilliant way to meet peeps or to just speak to others who can help or simply understand your dilema's or humour!!! Just contact them to say 'Hi' if nothing else!!

All I can say about the set up of Fibro help NHS-wise in Bristol is........move counties!!!! Southmead hospital in particular has been of no help at all to me. But that is just my own findings. I hope to be referred to Bath or Weston when it is okay to do so via my doc. Saw her today and she sez it isn't available yet (to go to other area's) but I think it is according to previous posts, so if anyone has info, can I have it please?!!

Joo x
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Postby Suzyb » Tue Apr 11, 2006 11:45 pm

Hi Joo, you have no need to apologise to me for sounding bright and breezy as it was not anything that I had noticed. I would say its great for any of us to be bright and breezy as Lord knows we have enough to cope with lol.

Thanks for the addy but I can't get into it I have tried using the link and typing in the addy but both times it comes up with website not found.

Sorry to hear that your gp has been unable as yet to refer you to another hospital. I for one think I was lucky to have been referred to Bath by my gp and to be given the choice of our local hospital or a specialist hospital at the time. I think, but am not sure, so don't quote me on this, that the decision may have something to do with the fundholding of the practice. I expect someone else will be able to throw more light on the subject though. Good luck with your quest though. Mind you know that I am diagnosed I do not see the specialist anymore. There is not a lot they can do for us really so I think they feel at a loss to help. I have decided not to continue visiting the pain clinic as well as I can't really see what benefit I am going to gain from the visits and I end up in agony for days after doing the journey to Taunton and sitting around waiting to be seen as well. Right I am off now. Take care. Got to go take the amitryptilline or I wont settle down any sense at all tonight. lol. Suzy
Still got my sense of humour despite the FMS
Suzyb
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Posts: 57
Joined: Wed Oct 26, 2005 1:30 pm
Location: Yeovil, Somerset

Postby Joo » Wed Apr 12, 2006 12:02 am

:D Hi Suzy, thanks for the comments. I wanted to add that the FMA UK has had a few problems with hackers recently so try the phone number mon-frid if you can, they may have changed addy again. Also, did you know theres a support group in Bridgewater, can't think how far that is from you as the map is in the car and it's cold and wet out there and possibly frogs n toads on the path too!!! :shock: Hope you sleep well, Joo x :wink:
Smile - you might as well and it makes better looking wrinkles!!!
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Location: The beautiful South West of England

Postby Suzyb » Wed Apr 12, 2006 7:55 am

Thanks for the info Joo. I know that there are Fibro meetings in Wincanton on the second Tuesday in each month but even they are impossible for me to attend as I cannot drive my car anymore. I have been hoping that when there are a few more people in Yeovil that we could get together and start our own group here. Bridgwater is a fair old drive for me from Yeovil. There is never an easy answer is there lol. Yes I did sleep well last night and even got off earlier than I normally do as well which was a great relief for me. You take care. Suzy :D
Still got my sense of humour despite the FMS
Suzyb
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Posts: 57
Joined: Wed Oct 26, 2005 1:30 pm
Location: Yeovil, Somerset

Postby Joo » Wed Apr 12, 2006 12:03 pm

:D Mornin' Suzy, seems to me that a call or email to FMA UK is the way forward and the regional co ordinator for the south west might be able to help you in contacting other fibro peeps in your area. She's a lovely helpful lady and has fibro herself.

We have a few members in our group who aren't able to get to meetings but we send a newsletter of our activities each month to keep them up to date with local info and a general 'Hi!' We're looking at the possibility of visiting some of them at some future point in time. Lots more peeps are being diagnosed these days so your wish of some local contact may come sooner than you think!! And I often collect another member (as do others) and give them a lift to the meetings followed by a pub lunch....all very civilised!!!!

Glad you rested well last night, me too, and the sun is shining gloriously here, how is it further south?

Joo x :wink:
Smile - you might as well and it makes better looking wrinkles!!!
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