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The UKFibromyalgia Forums • View topic - Another Newbie



Another Newbie

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Another Newbie

Postby amps » Mon Aug 17, 2009 11:14 am

Hi All,

My name is Abby and I am 29 just be diagnosed the Fibro, I have arthritis for the last 5 years and the past 18 months had a major constant headache, i had other probs too and was diagnosed with a Pituitary tumour but this wasn't causing the headache as its too small , then in the last 6 months my arms and legs got more painful, even though i kept walking the dog i found i was having to cut down my walks, so even though i was doing exercise i was getting worse.
My consultant to me people with this disease goes 1 of 2 ways either fight it or become disabled. She told me I need to do exercise everyday and yes it will hurt and to only have max 9 hours sleep a night, even though I wake up constantly and dream so i don't really sleep lol
I didn't tell her I just got a powerchair so i can actually leave my house and take my dog for a long walk.
I have been trying to do some exercise each day, however every morning i've woken up feeling worse and in more pain, so i guess just doing a few things and i have over done it. I have kept too the 9 hours sleep since Friday and I just want to sleep all the time more so than i did before and I can't stop yawning.
I am going to a pain psychologist and having a home visit from a physiotherapist too

Any tips would be great, and any ideas on how long it could take or if it is possible to have a 'normal' life would be great i know everyone is different, but people who i tell often say 'oh i know many people with that and they just get on with it' one person told be her friend runs her own business from home , is a single mother and does extra activities too, that kind of thing does not make you feel any better doest it lol

thanks for this great site

Abby
amps
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Re: Another Newbie

Postby *Lisa* » Mon Aug 17, 2009 12:45 pm

Hi & :welcome:

Im sorry but i hate it when doctors/people tell you you'll end up in a wheelchair if you dont do this that and the other. I have been told myself this many a time... :nono:

What they mean is...

Have a positive mental attitude which is always very good for you but very hard to substain when your feeling so rough 24/7! Thats why any sort of therapy like CBT is good.

Chating with us or a support group as FM suffers support & help one another as we all know how we feel as alot of the times we feel mis understood & lonely

Yes exercise daily is very good for you but find an exercise that suits you. I have a walk daily to help me.
I would also suggest gentle stretchin exercise to this helps the stiffness.

Dont worry about having a power chair, if it gives you a better quality of life then use it! We dont put ourselves in wheelchairs, in alot of cases the flare/pain is so bad exercise is hard to do so using an aid to asist us is fine...

If you have any questions just ask :hugs:
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Another Newbie

Postby chris2009 » Mon Aug 17, 2009 2:42 pm

hiya :wave:

i agree with lisa i think its about finding exercise that suits you and doing it when you can.

:grouphug:

i look forward to your posts :clap:

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Re: Another Newbie

Postby shazq » Mon Aug 17, 2009 3:04 pm

Hi Abby :wave: :welcome: to the forum.
Any questions just ask, one of us will always try to help where we can.
Looking forward to seeing you around the forum.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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