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The UKFibromyalgia Forums • View topic - hello from another newbie



hello from another newbie

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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hello from another newbie

Postby Ems » Fri Jan 15, 2010 12:12 pm

HI

my name is emma, i live in kempston bedford, and i'll be 40 in 2 weeks :shock: i have 3 children 14,12 and 4 and i have just started working for myself as ahirdresser have been working in salons for 23 yrs until 4 mths ago. (thats another story another time lol) and i'm amrried to jim we have 2 dogs ages 2 and 4 mths and 2 gold fish (might aswell include them to lol)

i shall start at the beggining because as i have read through some posts a few thing seem to gel together................................

I started to get hormonal migraines when i was 16 which with different pills ect have never been cured except by 1 pregnancy i was migraine free for about 10 mths, i then went on to have IBS also many different pills that never really seemed to do the job. so then at 35 i had another baby (thats 3 in total) when he was about 6 weeks old i couldnt carry him or the kettle or barely get up the stairs i went to docs to be told it was a calcium deficiency so i was put on adcal that my tummy didnt like so had to come off that. so after a couple of years i changed my doc surgery as i couldnt get to see mine and i had a migriane from hell and needed something asap. i have samitrupan now that is great most of the time. i then went and told her about my aches and pains and was sent to rheumatoid, back and forth ect long story short diagnosed with fibromyalgia it took 3 yrs to be diagnosed.

so i still cant get my head round whats going on all these things are happening and i dont know if they are "normal" for fibro, i ache 99% of the time in various parts of my body my hands being worse but have also been told i have carpel tunnel in those, my memory has always been bad but has gotten worse and i get very frustrated with that as i loose things example 2 expensive mobile phones :evil: i cant type (this has taken me ages as i keep spelling like i have thingy which name escapes me at the moment) i also get these 'episode' as i dont know what else to call it i black out and then im paralysed for up to 2 hrs !after mri and neuro docs ive been told its a rare aura migraine but i think it could be linked to the fibro, does anybody else get this ? i have started to recognise when its going to happen my body gets really heavy and i lay down go to sleep wake up and cant move cant talk just blink once for no two for yes. i am usually aware of what is going on around me whilst i'm asleep also. now i think thats it :crazy:

i am also in the process of being tested for gallstones totally unrelated but thoought i might aswell add the whole lot lol

so still dont know what to expect i'm not the type of person to actually beleive im ill i still get on with stuff and run the house. i have my mum thinking im on deaths door and blames everything and anything on "but your ill" and a husband who trys do understand but doesnt really.

gosh i didnt know what to put but wow i have gone on :oops:


ems
:hugs:
Emma
:hugs:

Yes please i'll have diet coke with mine ;)
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Ems
UKFM Member
 
Posts: 35
Joined: Sun Jan 10, 2010 11:41 pm
Location: bedford

Re: hello from another newbie

Postby Brie » Fri Jan 15, 2010 7:40 pm

Hi im Brie i have had fibro for a few years now i also get really bad migraines, i have seen many doctors and been on alot of meds, but after about two years was send to see a consultant. He told me of two things to try the first of thease being speed, but he could not perscripe this. Did not try this, the second was to take three asprin when i though i was going to have a migraine. This works really well as long as i take it in time. I also ache head to toe nearly all of the time, i also have depression because of this. I have no memory anymore and i find that i can not spell the most easy words anymore, this is so frustrating. It took me over three years to get diagnosed after seeing so many doctors who specialise in different things, having blood test and 14 x rays and other tests which all came back normal. My mother just thinks that i am lazy, but i have a great husband who is very understanding and can not do enough for me. i have only just joined the forum yesterday and it is nice to chat to other people who understand.
Brie
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Posts: 3
Joined: Thu Jan 14, 2010 8:18 pm

Re: hello from another newbie

Postby Ems » Fri Jan 15, 2010 7:53 pm

Hi Brie

I'm still trying to come to terms with my condition. I bury my head in the sand a little bit as I, like most of us didn't want to have it but as time is going I have to except it and I'm hoping it doesn't disrupt my life to much :(.
Emma
:hugs:

Yes please i'll have diet coke with mine ;)
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Ems
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Posts: 35
Joined: Sun Jan 10, 2010 11:41 pm
Location: bedford

Re: hello from another newbie

Postby shazq » Fri Jan 15, 2010 8:57 pm

:welcome: to the forum. :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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shazq
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Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.


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