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The UKFibromyalgia Forums • View topic - Hello



Hello

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Hello

Postby Braveface » Wed Feb 24, 2010 6:01 pm

Hello My name is Sue. Im not sure where to post yet so please bare with me :). I am looking for lots of advice an support. Heres my story..

I am desperate for some answers and im struggling to get them from the usual sources.
Four years ago my sister died from breast cancer , my father was diagnosed with prostate cancer and my mother with lung cancer, i was sent to a genetic consultant who advised me to have my breast and overies removed. This was done a few months later and i had implants put in a few months later. I have worked all my life and i am a mother to five children. I worked on a busy oncology unit as a staff nurse for 11 years. About 6-8 months after the implants was put in i started to feel unwell , i went back to the surgeon who performed the operation an was told it was quite normal. Months later my breast became very sore and very odd shaped , the implants was removed and a new set put in. Weeks after having that set put in i started to feel unwell again and visited the surgeon again , he said i had been through a lot and had to be brave and put up with some of the symptoms, he did ,however , refer me to a pain clinic. I was seen at the pain clinic by the consultant who told me that 42% of patients who had impants inserted ended up at the pain clinic. I went back to see the surgeon and asked him to remove them. I told him that i had pain in my muscles and my eye sight seemed to have deteriorated a lot , i told him that i couldnt concentrate at work and was worried about giving out medication to the patients , i developed chronic irritable bowel , and was passing urine every few minutes. The surgeon asked me to go and see someone and to talk to her. I got the appointmet to see the consultant psychologyst the next week. She listened to me and told me she thought i was depressed and it was all in my mind. I refused to see her again and went back to see the surgeon, he said if i didnt see her for at least three sessions he wouldnt see me again. I went back to see her and she again suggested i had some kind of attention seeking disorder , i was devastated ...i have never had surgery in the past and i hardly ever saw my GP.I went to see my GP and she told my the psych had been in touch with her and asked my GP if she thought i had some kind of attention seeking disorder , my GP said NO. I refused to see the psych again or the surgeon,but i made a appointment to see the consultant genetics ( cant think at the moment please excuse my ramblings ) he saw me and said i didnt have to see anyone again , he would change my surgeon .
The week later i had a letter from the psych apologising. I saw a new surgeon who said my symptoms would calm down and to ' buck up ' .
Since all of this happened i have lost my job and no longer work, i can walk and move around but im in great pain , i take oxycodone and oxycontin for the pain from my implants , i take Esomeprazole has i have chronic heartburn from anything i eat. I take 9 paracetomol a day to help with headaches and eye pain. I take 400mg brufen to help with the pain in my muscles. I am fine if im sat down but i have to get up regular or i struggle to get out of the chair and bed , i dont sleep very well , i maybe have between 4/5 hours of sleep and i wake up feeling like i have never been to sleep. My hips and back , shoulders , feet and hands and jaw hurt all of the time , i have had bone scans ansd xrays but nothing was found. I used to read 2 books a week , i love reading , since all of this started i cant read anymore, i cant conmcentrate. If i try to read a newspaper i forget what i have read and have to re-read it. This email has taken me hours to do . I heard a advertisment on the radio about FM and asked my daughter to google it for me and she found your site.
I havent seen my doctor for a while because i am scared she will think the psych was right...im not mad i know im not...something isnt right with me..
Please please can you give me your opinion and any advice you have , do you know of any consultants in my area that i will pay to go and see? A doctor who will listen to me .
Braveface
UKFM Newbie
 
Posts: 6
Joined: Tue Feb 23, 2010 5:19 pm

Re: Hello

Postby RowanWolf » Wed Feb 24, 2010 6:09 pm

Hello, welcome :)
I have had to fight with many Dr's as have many people on here. Keep going, if you are not happy with a Dr see another one.. if you are upset or offended by any Dr or nurse make a complaint. There are Dr's out there that will listen.
My Dr is good, he listens and I have smothered him in Fibro info and I have him quite well trained lol
Sadly I've not found a decent specialist yet.

You will find lots of information here and we are all here to help..and it sounds like you have a supportive family which is great.
:grouphug:
I don't suffer from insanity...I enjoy every minute of it.

That which doesn't kill me...had better run pretty damn fast.
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RowanWolf
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Location: Norfolk, East Anglia

Re: Hello

Postby shazq » Wed Feb 24, 2010 6:27 pm

Hi Sue.
:welcome:
Sorry you have had a rough time. :hugs:
I am sure we would all feel the same if we had been through what you have.

Go back and have a chat to your GP and ask them if they would refer you to be seen by a Rheumy, they are the ones who normally DX fibro.
It is possible that you have fibro as it can be triggered by truma. (i am not a doctor) A lot of your symptoms link.

Stay with us we can help support you and have a look around the sight and print of some info.

Hope you get it sorted soon.
Keep us updated. :hugs:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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shazq
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Location: wrapped up under my duvet at home.

Re: Hello

Postby Braveface » Wed Feb 24, 2010 9:04 pm

Thankyou both for replying :). Im going to have a good look around the forum and see what information you have for me on here . Thankyou for listening to me .
Braveface
UKFM Newbie
 
Posts: 6
Joined: Tue Feb 23, 2010 5:19 pm

Re: Hello

Postby gillshutt » Fri Feb 26, 2010 1:04 pm

Hi and welcome to the forum... hope you get some answers soon :hugs:
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gillshutt
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Location: south wales

Re: Hello

Postby fender1985 » Mon Mar 15, 2010 10:40 pm

i cant give advice because our situations are so differant. I know never ending pain though. I hope you can stay strong and come out the other side. I have also been given the attention seeker/hypochondriac treatment but i was in my late teens, early 20's so its forgivable. To many lazy tw*ts out there. So ur american then? The meds u listed were american i think. Anyway i really do wish you all the best. Dan.
fender1985
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Joined: Wed Mar 10, 2010 1:08 pm


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