New to Fibro

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New to Fibro

Postby bluecath » Wed Jun 09, 2010 9:04 pm

Hi, I am new to this, well kind of, have had symptoms for many years and have been back and forth to my GP with various complaints, ranging from tiredness, aching joints and muscles, sore mouth etc etc and have had lots of blood tests, which have all been nrmal in the past, until they said i was anaemic and gave me iron tablets, which brought my iron store levels up from 4, but did not improve the tiredness. My GP asked me how i was when i wake up, and when i said that was when i felt at my worst he said he thought I have Fibro, and has reffered me to a Rheumatology/Fibromyalgia specialist. I have an appointment on Monday, and hope to get some answers. Am relly scared. :needhug:
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Re: New to Fibro

Postby denys » Wed Jun 09, 2010 10:01 pm

Hi Bluecath, :welcome: to the forum, dont be scared whatever the outcome you will have answers to something thats given you problems over the years. If it is FM then it's not the end of the world although it might feel like it at the moment :yikes: Have a look round the site and you'll see we deal with the serious side of things but we also manage to have a laugh and we all try to support each other, so join in and let us know how you get on on Monday :hugs: :hugs:
Denys

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Re: New to Fibro

Postby jud » Wed Jun 09, 2010 10:10 pm

Hi Bluecath,

It is scary when you get referred but it will at least make you realise you are not going mad and it will give you a reason for all your pain. Good luck on Monday.
:hugs:
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Re: New to Fibro

Postby patches » Wed Jun 09, 2010 10:16 pm

Hi Bluecath,

Hello and welcome :welcome:

You sound like me; had every test going and found nothing.

OK you are scared of what they might say. Let's assume you have fibomyalgia right now. You already feel very bad and if it's confirmed it won't change how you feel. I was diagnosed with fibro by a specialist and had it confirmed by a second. It didn't worry me at all seeing the second. What could he tell me any different? Nothing to change how I felt....like I had been run over by a 20 ton truck, no sleep all week, energy levels below zero, head like a sieve, and lots of pain all over.

apart from all that...I felt fine :lol: :clap:
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Re: New to Fibro

Postby budda » Fri Jun 11, 2010 12:17 am

Hi Bluecath, dont be scared, we are all here to listen and support you, let us know how you get on, on monday :hugs: :hugs:
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Re: New to Fibro

Postby loubie » Fri Jun 11, 2010 6:05 am

hi bluecath :wave:
:welcome: :welcome: :welcome: to the nut house :tongueout:

sorry just me being......well me really :lol:
tryin to cheer you up :hugs:
loubie x
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Re: New to Fibro

Postby shazq » Sat Jun 12, 2010 9:07 am

:welcome: to the forum. :wave:
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Fibromyalgia Awareness Day May 12TH.
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Re: New to Fibro

Postby lozncarl » Sun Jun 13, 2010 4:18 pm

Hi Hun,
Please don't be scared, Like you for a very long time my family and friend treated me like I was some sort of looney who made it all up, All except my hubby who said he knew something was definately wrong, He is one in a million who has given me so much support and love thro all this
Then we had a new young doctor at our practice so I went to see him and he had been monitoring me for 6mths then said right now to see a specialist as think you have fibro as well as your arthritis,
So friday gone I went to see a rheumy specialist who was brilliant, He made me feel so at ease and told me not to worry ( all my bloods were normal ) As he would take his time to get to know me and talk with me and then examine me, which he did and confirmed fibro, and is getting me in at the pain centre and hydrotherapy, as well as explaining everything to both myself and my hubby.
I now feel so much happier knowing whats wrong and that i am not a nutter or freak...
He also gave me leaflets to give to my kids and parents, Who once they read them all said they were sorry for doubting me,
So keep your chin up, You have everyone on this site who understands, and will be here for you,
If you ever want to chat pm me and I will be happy to chat with you
loraine xx :hugs:
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Re: New to Fibro

Postby bluecath » Mon Jun 14, 2010 8:10 pm

Thanks everyone for all your messages of support. I went to see the RHeumatologist at Stepping Hill Hospital , today,(DR Ismail), very good Doctor, only asked me a few questions and looked at my joints, and he was able to say it was Fibromyalgia. Phew-I now have a reason for my tiredness and aching, along with all the rest of my symptoms. He has asked the Fibromyalgia Nurse to see me and has started me on Amitryptiline at night- bring on a good nights sleep!!!!! Feel so relieved. :D
Let me tell you all something funny- Spent a lovely weekend in Liverpool with my Sisterand her husband, and her Son and My Wonderful Daughter-went to see Mamma Mia on stage. We booked in to a Premier Inn, which they say "a good night garenteed, or your money back- they didnt take into account people with Fibro !!!!! lol.
Thanks again for your support xxxx
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Re: New to Fibro

Postby budda » Mon Jun 14, 2010 8:48 pm

Glad to hear you had a good time at the weekend bluecath :D , you will be relieved, now you know what is wrong with you.
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Re: New to Fibro

Postby Stephers » Tue Jul 06, 2010 9:30 pm

Hey bluecath, I'm in the same situation. Had aching joints for years and seem to have felt exhausted since before time began (!) and after several hundred blood tests the doc said it's FM. Instant relief at finally having a diagnosis was quickly erased when the 'specialist' told me there's no cure, and he's not sure if his advice will make it better or worse cos everyone's different and no-one fully understands what FM is! V. helpful Mr Specialist, thanks!

Have had a few good weeks recently, and almomst forgot i had it, but now it's back with a vengeance! Feeling tired, foggy and achey and all in time for my holidays :(

I hope your getting on well with your drugs and your specialist is more helpful than mine!!

Steph x
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Re: New to Fibro

Postby bluecath » Thu Jul 08, 2010 11:04 pm

THank you all for your support,
The Amitryptilline is helping me to sleep most nights, in fact I have actually been dreaming( which I have not done for years.) have just been away on holiday for 2 weeks and really chilled out, came home and returned to work and family life, which is so full of stress at the moment that I too feelworse now than before. I have an appointment with the fibromyalgia nurse specialist at the end of July, so hopefully she will be able to advise me on how to cope.
Sometimes I dont know how i actually keep going!!!!
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Re: New to Fibro

Postby denys » Thu Jul 08, 2010 11:37 pm

Glad to here you are getting some sleep but sorry you have a lot of stress to deal with it really does make everything worse doesn't it Good luck with your appointment :hugs: :hugs:
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