hi everyone

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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hi everyone

Postby nutty1 » Mon Jun 14, 2010 12:13 pm

finally plucked up courage and want to join you :D so where do i start :? back in the 80s in my mid 20s,i was diagnosed with m.e.after bad year got back on my feet moved back to devon had all sorts of health probs ,collapsing at work etc finally was sent to a neurologist95?who was extremly rude told me go home get a life :roll: tryed carry on but was real bad doctors were baffled i was too was sent to another neuro 2002,who did loads of tests etc then sat my hubby and me down and said the good news is your not mad :crazy: then explained i had dystonia so every 12 weeks i go for botox injections in my neck and shoulders and have been given endless drugs,then i started with lots of other probs so kept asking is this dystonia as couldnt find it on any leaflets told my doc felt like it was m.e. again only something was attacking my body and i no control so i was sent off again ct scan mri scan more blood tests thing where they stick lots of pins in you and monitor it different drugs ,rheumotolist sorry brain going :oops: then was told its fibromyalgia and i got 2 chronic debilatating illnesses would like to add my doc is great apologises that he struggles to sort me out and my neurologist is brill even though he sticks needles in me ,i also have blephospasms so get needles stuck in there too apologise for the long speech but its good to know im not alone as i thought thanks
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Re: hi everyone

Postby denys » Mon Jun 14, 2010 4:02 pm

Hi Nutty1 and :welcome: to the forum you definitley not alone we are all here to support each other so any questions just ask :wave:
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Re: hi everyone

Postby budda » Mon Jun 14, 2010 4:55 pm

:welcome: to the forum Nutty1, ask anything you like, someone on the forum will be able to answer you. :wave:
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Re: hi everyone

Postby nutty1 » Mon Jun 14, 2010 6:30 pm

thankyou denys and budda glad i didnt put you off with long post i love this site and cant wait to try cream cakes in cafe think i will feel at home there and i have docs permission to eat them :tongueout:
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Re: hi everyone

Postby budda » Mon Jun 14, 2010 8:55 pm

Have a cream cake for me, cant eat dairy :( . :blowkiss:
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Re: hi everyone

Postby denys » Tue Jun 15, 2010 12:37 am

Hey Budda everyone can eat anything they want in the cafe it's great anything bad belongs to someone else so none of your allergies bother you in there, :clap: :clap: feel free to join us nutty1 the more the merrier it all adds to the madness :crazy: :wave:
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Re: hi everyone

Postby loubie » Tue Jun 15, 2010 6:50 am

hi :wave:

and :welcome: :welcome:
love the name :clap:
loubie x
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Re: hi everyone

Postby nutty1 » Tue Jun 15, 2010 11:12 am

hi loubie ,the name appropriate for me :oops:
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Re: hi everyone

Postby Coppercaz » Tue Jun 15, 2010 1:37 pm

Hi everyone! My name is caz. I am 29 with 3yr old twins. I have had fms for 9 months now. Am so fed up :-(. My specialist has put me on lyrica with co-codamol and tramadol for bak up. My gp added cymbalta and evening primrose. I am so tired and in so much pain that it makes me feel like a bad mum for not doin much. The pils don't help. Cymbalta is meant 2 be the new drug for fms but it has'nt helped. I find one of the worst bits is the hot itchy legs at night. Also lights and tv givin me migraines..wil it eva be betta!
:sick:
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Re: hi everyone

Postby denys » Wed Jun 16, 2010 12:07 am

Hi Coppercaz and :welcome: to the forum :wave:

sorry you aren't feeling well at the moment, it must be hard going with twins :yikes: look around the forum and hopefully you might gwt some tips. Any questions just ask :wave:
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Re: hi everyone

Postby loubie » Wed Jun 16, 2010 5:48 am

hi caz :wave:
hope you feel little better today :hugs:
:welcome: :welcome:
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Re: hi everyone

Postby budda » Wed Jun 16, 2010 8:05 pm

:welcome: to the forum Coppercaz :wave: , hope you feel better today.
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