Hi Everyone

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Hi Everyone

Postby LynC » Fri Jul 09, 2010 7:09 pm

My name is Lynne and like so many of you have have been suffering from FM symptoms as long as I can remember. My Dr preferred to treat me as a manic depressive before running out of patients with me and sending me to a specialist, which like so many of you did all the blood tests and they came back normal! because I had pins and needles in my hands he sent me a few weeks later for a test that send electrical impulses through your nerves to see what damage there was if any. It's very sad to say I was relived when the specialist I saw confirmed I had carpel Tunnel Syndrome in BOTH wrists and in his oppion suffered from FM :banghead: This Doctor was a specialist in this area and it also turned out that he was a DR at my pratice. I went back to see him a few days later and he, unlike the others was quite happy to confirm FM for my records. I have been on a low dose of Yentreve, but it dosent seem to help with the fatigue or sleep! my eyes have now become very sore and weep like mad along with the joys of not knowing what pains I will wake up with tomorrow. I am very worried about having this condition as it is now affecting my work and I am expecting my first grandchild in October. I am really quite depressed at the moment and dont know how to get the help I need to get through a day. :cry:
LynC
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Re: Hi Everyone

Postby denys » Fri Jul 09, 2010 7:24 pm

Hi Lynne and :welcome: to the forum :wave: you can get help and support from us daily thats what this site is all about, there is also information you can print off to show to relatives and friends if they are having trouble getting to grips with what your condition means.

Go back to your GP and explain that your medication isn't giving any relief and ask for advise, they may change your medication or dosage but it is really hard to treat FM and all the associated problems and therefore its a little bit of trial and error plus what works for one person doesnt necessarily work for the next unfortuantly.

Congratulations for your grandchild, I have 2 and the hardest part is not being able to cuddle them as they have got too big now Ben is 5 and Lewis is 2 but they understand and climb on the settee next to me and I get to read with them and do all the nice quiet things so its not all doom and gloom. When they were tiny I was able to hold them and feed them etc.

Here are some :hugs: :hugs: :hugs: for you look anround the site and I hope you feel brighter soon :wave:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Thanks Denys

Postby LynC » Fri Jul 09, 2010 7:41 pm

Thanks Denys,
I am feed up of feeling usless and a fruit loop! I am going to be the official childminder for my grandchild when my daughter goes back to work in Jan 2011. Do you think this is a realistic proposition knowing this hidious condition better than me? :crazy:

I am having a moan sorry...it has been my worse week so far, hopeing things can only get better.
LynC
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Location: Lancashire

Re: Hi Everyone

Postby denys » Fri Jul 09, 2010 8:30 pm

Hy Lynne, while the baby is small I think its a very realistic proposition, but not knowing how bad your condition affects your every day life its difficult to say how well you would cope. Is your daughter going back to work full time and has she got a contingency plan in case you arent able to cope :(

The problems really begin when the little one starts moving around and you have to chase after them, cos bending, carrying and then tidying is something that I personaly cant do, but thats not to say that you cant or wont, sorry not to be a little more positive but as I say it's all down to how much you are affected and in what areas, plus how well your medication or other therapies work. Fingers crossed you will be able to mind the little one perfectly well here's hoping :hugs: :wave:
Denys

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Re: Hi Everyone

Postby budda » Fri Jul 09, 2010 8:51 pm

Hi Lynne :welcome: to the forum, do you have any sisters that can help you with the baby when it comes, today i was out with my young sister and her grandson, he is eight months, i loved it, but its hard work, my OH and i are going to be grandparents :woot: in four weeks, cant wait, this is our first, I dont want to think to far ahead what i might not be able to do, my way is dealing with that IF it happens, so try and just look forward to the baby coming into your life, you and i are going to be grans for the first time :woot: , here are some :hugs: :hugs: from me to you.
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Re: Hi Everyone

Postby denys » Fri Jul 09, 2010 10:13 pm

Hi Lynne I've just re-read my post and feel that it came across as too negative, what I was trying to say is that there is no reason you cant look after the baby as January is quite a while away and you can see how you go before your daughter goes back to work, you aren't a fruit loop at least not over your illness, if you look around the site you'll find most of us are of debateable sanity :crazy: :crazy: :crazy:

You go girl think positive and as budda says IF hasnt happened yet :woot: :woot:
Denys

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Re: Hi Everyone

Postby LynC » Sat Jul 10, 2010 9:40 pm

Thank you all for your words. I feel more sain, now that i have found all you fruit loops! :lol: Only joking! its really great to be able to talk to people that understand what you are going through. Thank you all heres a group hug:grouphug: and deny please dont think you were being to harsh with me....i have been a control freak all my life and really apprciate a reality check! I thought this "thing" would be cured and gone in a matter of month when i first started with the symtoms i was not accepting that this is it and i will have to learn to adapt and live with this curse. But my spirit wont let it beat me and hopefully I will be able to help people along the way like you guys have already helped me. xx
LynC
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Location: Lancashire

Re: Hi Everyone

Postby LynC » Sat Jul 10, 2010 9:45 pm

[quote="budda"]Hi Lynne :welcome: to the forum, do you have any sisters that can help you with the baby when it comes, today i was out with my young sister and her grandson, he is eight months, i loved it, but its hard work, my OH and i are going to be grandparents :woot: in four weeks, cant wait, this is our first, I dont want to think to far ahead what i might not be able to do, my way is dealing with that IF it happens, so try and just look forward to the baby coming into your life, you and i are going to be grans for the first time :woot: , here are some :hugs: :hugs: from me to you. Congratulations on your first grandchild! its all very exciting isent it? pls stay in touch and let me know how you go on. Do you know what they are having yet....My daughter is having a Boy - Alfie
LynC
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Location: Lancashire

Re: Hi Everyone

Postby budda » Sat Jul 10, 2010 10:55 pm

Hi lync, your there already, ( good thoughts) good for you,our son and his five year partner are having a baby boy (Jack) he is supposed to come on the 6th of august, but you and i both know when baby wants to come, they will, cant wait, please keep in touch and let me know how things are going, love from one gran to another hee :blowkiss:
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