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The UKFibromyalgia Forums • View topic - Hi - another newbie (long!!!)



Hi - another newbie (long!!!)

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Hi - another newbie (long!!!)

Postby babrees » Tue Jan 25, 2011 1:55 pm

Hi all

I have NOT been diagnosed with FM. However, a friend who knows some of my symptoms, told me to look into it. I have to say that a lot of symptoms do seem to tally with how I feel.

I have been attending a pain clinic at the hospital for over a year (and seen numerous other specialists before that) who basically can't find anything wrong - all blood tests for everything they have looked for come back negative. Nobody has thought to test me for FM.

I'm not on painkillers - so far none have worked. They have started trying acupuncture on me to see if that will help. After the first session I felt great and had hardly any pain and could walk! I had another session and the needles hurt like hell going in (stinging) and she therefore didn't twizzle them. That was just before Christmas and last time I went. Unfortunately, I had pain after and since the session so think perhaps the time after the first was just me having a few "good" days. I was supposed to receive another appointment in January, but so far haven't heard from them. I haven't chased it because I just feel it's a waste of time and am fed up, feel like I've given up.

I do now have an appointment in the orthopaedic department about my feet - which is where I had the most pain.

In reading this forum and site there are "symptoms" which I haven't bothered to mention to anybody coz I thought it was just my age!!! Anyway, here are some of the things that I feel, albeit not every day and not all the time or at once!...

Terrible pain in feet - When I put weight on the ball of my foot I get pain, many times unbearable, either going down into my toes or upwards on the top of my foot. If I try to exercise my feet go numb after just a couple of minutes or less.

I sometimes get pain in my knees, just a sharp stab

My right leg from knee downwards can't feel properly. Whilst not numb if you touch it the sensation is very dull and slightly tingly. They did do an mri scan and found I had a swelling on a disc in my lower back, which they say accounts for this. Been like that for two years now.

I also get pain on and off in my lower back going round to my right side and sometimes my hip - which again the tribute to the swelling.

I have pain in my hands, fingers and wrists. Sharp, stabbing and most of the time agonising.

I have been having terrible neck-ache for prob a year or more - base of my neck between shoulders. This sometimes gives me headaches (well I guess they are caused by that!)

Since last November (or maybe earlier) I have been having pain in my shoulders. Started off just in my left now in both. It feels like I have been exercising and over done it. That's getting worse.

I'm forgetful! But then so are many other people my age

I can't concentrate on things. I may be talking to somebody and suddenly realise I don't know what they have said. Instead I start looking around me and not listening and then feel extremely guilt and try to start listening.

I don't sleep well. Go off with no problem, just keep waking up.

I'm weary. It's different to feeling tired. My bones feel weary

I'm often cold! A deep bone cold. But then my arms will suddenly become hot. I had thought them to be hot flushes, due to some meds they tried me on last year, but whilst it seems to be that deep heat it's really just my arms.

I'm nearly always feeling light-headed. When I'm not light-headed I'm feeling dizzy!

I have problems with my sinuses and also have tinnitus.

Depressed? hmm, I wouldn't really call it that. I do have down days and days where I have a very short fuse, but don't think it's actual depression.

hmm, :yikes: rambled on much longer than I thought, or should have!!! But it has felt good to get it off my chest!! Thanks so much for listening! :flowers:

Jill
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Re: Hi - another newbie (long!!!)

Postby denys » Tue Jan 25, 2011 5:07 pm

Hi Jill, :welcome: to the forum, you need to make a list of your symptoms as you have on here and show it to your doc, ask for a referral to a rhuematologist and explain you think you may have FM :goodluck1: with getting a diagnosis sending gentle :hugs: :hugs: :hugs: :hugs:
Denys

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Re: Hi - another newbie (long!!!)

Postby babrees » Tue Jan 25, 2011 6:54 pm

Thanks Denys - Will contact the docs for an appointment!
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Re: Hi - another newbie (long!!!)

Postby shazq » Tue Jan 25, 2011 7:57 pm

:welcome:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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