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The UKFibromyalgia Forums • View topic - Newbie ,1st posting :-) LONG sorry x



Newbie ,1st posting :-) LONG sorry x

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Newbie ,1st posting :-) LONG sorry x

Postby fibromum_to_6 » Sat Mar 05, 2011 8:45 pm

Hi there my name is Amanda, I am 39 years old,married and have 6 children aged 18,15,14,10,9 & 6 ,I got my diagnosis of fybromyalgia in 2009 after having a mini stroke coupled with years of what my doctor called musculoskeletal pain and facial myalgia ,sjorns syndrome ( dry eyes dry mouth) and disc narrowing in spine .

They tested me for just about everything from the early age of 15 when I developed migraines and terrible 'growing pains'. I first came into contact with psychiatrists at the age of 15 and yet it took until I was 38 to get a diagnosis of dysthymia (mild chronic depression) .
Of course I have tried everything in the book over the years looking for pain relief and never really understanding how all this pain could be 'in my head'.

I have seen CBT specialists,psychologists who sent me off to neurologists and back to psychiatrists , all in all a good all ping pong game to rule out everything else.
Of course it doesnt help that I also developed an unusual coping mechanism for my so called invisible illness, this has now been diagnosed as AvPd ( Avoidant Personality Disorder AKA Anxious personality disorder).
In effect I learned from an early age not to answer the question 'how are you?' or not to respond to the inevitable 'wow you look great today you must be getting better,you'll soon be back out there!' type statement/questions.

Instead I learned to be even more invisible than my actual illness . To hide behind a mask on the good days and hide away completely on the bad ones .
I survive under a similar stratedgy these days and my hybernation tendencies have seen me through the darkest days.
I have been married 4 times. My current husband is my soulmate he is bipolar which makes a refreshing change from the norm. I look forward to getting to know you all better. fibro_mum_to_6
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Re: Newbie ,1st posting :-) LONG sorry x

Postby loubie » Sat Mar 05, 2011 8:57 pm

hi amanda :wave:
:welcome: to our little mad world :lol:
i have broke your post up a little so it is easy for us to read through.
just join in with the posts, good to have you with us :hugs:
loubie xx

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Re: Newbie ,1st posting :-) LONG sorry x

Postby FluppyPuffy » Sat Mar 05, 2011 9:05 pm

:wave: Amanda :welcome: to our fibro club, have a look round, hopefully you'll find some useful and helpful things on here :clap: :clap:

Anything you want to know, just ask and we'll try and help you with it :hugs: :hugs: :hugs:


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Re: Newbie ,1st posting :-) LONG sorry x

Postby nutty1 » Sun Mar 06, 2011 12:00 am

:wave: :welcome: amanda :flowers:
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Re: Newbie ,1st posting :-) LONG sorry x

Postby denys » Sun Mar 06, 2011 12:04 am

Hi Amanda and :welcome: glad to have you with us, sorry you have FM and other problems dont worry we're all invisible to everyone but us :hugs: :hugs: :hugs:
Denys

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Re: Newbie ,1st posting :-) LONG sorry x

Postby shazq » Tue Mar 08, 2011 2:15 pm

:welcome: to the forum Amanda. :wave:
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Re: Newbie ,1st posting :-) LONG sorry x

Postby carolnotts » Tue Mar 08, 2011 7:46 pm

Hi Amanda :welcome: to the forum xx
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Re: Newbie ,1st posting :-) LONG sorry x

Postby juejue » Thu Mar 10, 2011 12:50 pm

Hello :wave: x
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Re: Newbie ,1st posting :-) LONG sorry x

Postby budda » Fri Mar 11, 2011 2:44 am

:welcome: to the forum Amanda. :wave:
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