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The UKFibromyalgia Forums • View topic - Hello



Hello

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Hello

Postby carrieokay » Wed Mar 09, 2011 11:17 pm

Not sure where to start!! Just been diagnosed but told I have had this for 36 years which explains a lot. In my 20's I had every test and was written off as a nutcase. There have been bad bouts since then but basically I guess I learned to manage it. Now nearly 60 for the last couple of years I've been virtually crippled with at least 5 days out of 7 fit for nothing.

I live alone so if I can't go out I don't go out (or even up!). The specialist said we don't bounce back as we get older and I can expect just good days and bad days. So I feel like I'm just taking up space on the planet. My dogs are my lifeline but the poor things aren't getting their walks which is not fair on them.

I'm on venlaxafine, dosulepine (because amitryptiline knocked me out), half inderal, B12 injections quarterly and co codamol.
Can anyone suggest something that works?? :needhug: Thanks for listening.
Carrie

My doctor told me to stop having intimate dinners for four.
Unless there are three other people.
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Re: Hello

Postby nutty1 » Wed Mar 09, 2011 11:42 pm

:wave: your like me i had approx 35 years and was treated badly at first .but i also have dystonia so no point in telling my meds .on the hompage of this forum there is med link .i think flups put link up too on one link in the forum .check out treatments and meds :fingerscrossed: things ease for you soon :flowers:
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Re: Hello

Postby loubie » Wed Mar 09, 2011 11:45 pm

hi :wave:
:welcome: to our mad word of fibro
its good to have you with us :hugs:
a lot of us live for the good days, well i should say the good (ish) days :roll:
as for meds, we are all so different, what works for one, mite not work for another.
have you got a good GP that understands fibro ?

glad you have found us, there is always someone on here to talk to :hugs: :hugs:
loubie xx

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Re: Hello

Postby FluppyPuffy » Thu Mar 10, 2011 12:40 am

:wave: :welcome: to our fibro world :hugs: :hugs:

I think this might be the linky nutty told you about, it's to the NHS page about treatments for FM

This is the linky to the meds page from the forum


There are various things to try in different combos, with a bit of time and patience you can find a mix of meds that makes a difference :fingerscrossed: :fingerscrossed: I can't say what will work as, like loubie has said, we all react so different to this illness, and what works for one of us may not work for another.


If your dog doesn't like someone, then you probably shouldn't either
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Re: Hello

Postby carrieokay » Thu Mar 10, 2011 1:41 am

Thanks guys! I'll have to do some more reading - several times for each long word :oops:

It's not like me to go into sense of humour failure, but then not much is like me now. Hmmm, too late at night to get this philosphical.

I'm lucky all my children are grown and there's only me to worry about, so I suppose I can re-invent myself now - starting from scratch, hee hee. Just need to think of some mischief within easy reach.... :twisted:

Nice to meet you all :D
Carrie

My doctor told me to stop having intimate dinners for four.
Unless there are three other people.
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Re: Hello

Postby viota » Thu Mar 10, 2011 9:28 am

:welcome: carrie gentle :hugs: :hugs: :blowkiss:
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Re: Hello

Postby shazq » Thu Mar 10, 2011 10:21 am

:welcome: to the forum. :wave:
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Re: Hello

Postby denys » Thu Mar 10, 2011 5:00 pm

Hi and :welcome: to the forum glad you have decided to join us :( that you have FM unfortuantley what works for one doesnt always work for another and between us we havent really found anything either but we'll keep looking and keep each other company while we search :hugs: :hugs: :hugs: :hugs:
Denys

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Re: Hello

Postby carrieokay » Thu Mar 10, 2011 7:38 pm

Ah, thank you all for the warm welcome. I slept most of today and feeling a bit brighter tho' stiff as a board!!
Revived by several cups of my favourite vice = :coffee2:

The most interesting new (to me) information is on You Tube -
'An Update on Fibromyalgia',

Has anyone else seen it? It is long, about and hour and a quarter, so I think I'll watch it again slowly when my concentration is good and take notes. A lot of things fell into place for me after watching it.

As for what to do next.. I am reminded of the old joke:

How do you make God laugh?

Tell Him your plans.... :lol:

:grouphug: to you all, bless you x
Carrie

My doctor told me to stop having intimate dinners for four.
Unless there are three other people.
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Re: Hello

Postby FluppyPuffy » Thu Mar 10, 2011 8:34 pm

:clap: :clap: :clap: :clap: :clap: Nice one carrie :lol: :lol: :lol: :lol: :lol:


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