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new here...

Postby strife » Tue Mar 15, 2011 4:22 pm

Hi all,

Not sure if I should be here or not, as I'm undiagnosed.. For years Ive had pains especially in my lower back, Ive had migraines, Irritable bowel etc.. more recently (last 2 years) the pain has radiated pretty much everywhere, with definite flare ups.
I changed doctors about 8 months ago after just being diagnosed with depression and being given prozac and basically told to go away.

At last this doctor has done extensive blood tests, in the beginning I wondered if i had rheumatism or something, as the pain in my muscles and hands, ankles etc was getting so much worse, the blood tests pretty much coming back clear, Ive recently had spine x rays which showed some arthritis of the lower lumbar spine. I recently have had such bad pain in my breasts that I have been sent for mammograms just to rule anything else out. In the mornings my ankles seem to be stuck at a right angle unable to bend and my hips seem locked in place, my walking is like a weeble kind of walk. I cant peel potatoes any more which is an oddly annoying thing.

I have just started a course of physio therapy, Ive been told I have 'hypersensitivity' by the physiotherapist.

I've been put on a course of counselling for depression but told I should see a phsychotherapist as well??.

I have terrible memory loss, which I find soooo frustrating, and it upsets me that I am losing memories of my children when they were younger, I forget the most mundane daily words in conversation, which is very embarrassing and my most common thing to say to ppl is... 'you know' as if they can find the word for me!

On good days I still drive, but quite often find myself driving somewhere random that I'm not meant to be, and have a total mental block of where I should actually be going.

My sleep pattern has been erratic at best for years, I constantly wake feeling more like I've run a marathon than spent 12 hours in bed. I spend a lot of time in bed when flare ups are bad. And when I have felt very depressed by it all, it just has seemed easier to stay in bed.

I am so tired of all this, but when researching on the net it was brilliant to read of other ppl who appear to have the same symptoms! I always feel like my doctor is fed up with me, but i just want an answer to it all so i can deal with it properly and try to get on with my life, obviously I dont know if it is Fibro but its the closest thing to how i have felt for these years.

I am 44, havent worked since being made redundant 3 years ago. I have just had my ESA stopped, I have two sons aged 24, who's left home and 21, the 21 year old having Aspergers syndrome. I'm very tired! :snore1: Sorry if I've waffled. Alison.
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Re: new here...

Postby FluppyPuffy » Tue Mar 15, 2011 5:02 pm

:welcome: to the forum Alison, sorry to hear what you've been going thru :hugs: :hugs:

A lot of what you've described could be down to FM, but as you'll appreciate, you do need to see a medical bod to get a definite dx of what is the cause of all your problems. Typically FM isn't a straight forward condition to dx. It has symptoms that are also common in some other illnesses, once these other conditions have been tested for and ruled out, then a dx of FM is usually made, either by a rheumatologist/specialist or, if they feel confident enough to do so, by tour GP.

If you feel your GP isn't understanding or supportive, is there another one at your surgery you could see that could be more helpful. To find out what is going on, it sounds like you need to push your GP for a referral to someone who can help. Maybe you could explain you've found similarities with your symptoms and several illnesses, incl FM and are wondering if one of them could be their cause?? From that, you may find it easier to get things moving in the right direction to find out what is causing you the pain and things :dunno: :dunno:
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Re: new here...

Postby nutty1 » Tue Mar 15, 2011 11:47 pm

:wave: alison ,welcome cant add anything to what flups has mentioned :fingerscrossed: you get answers soon .in meantime we are all supportive of each other :blowkiss: :hugs:
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Re: new here...

Postby loubie » Wed Mar 16, 2011 12:23 am

hi alison
:welcome: to our little world of madness :yikes:
i have to agree with flup, you do sound as if you need a new GP

you are more than welcome to stay with us, as talking about
your pain and other things on your mind is better out than in
:fingerscrossed: that you get something sorted out :hugs:
loubie xx

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Re: new here...

Postby denys » Wed Mar 16, 2011 11:01 am

Hi Alison :welcome: to the forum :hugs: :wave:
Denys

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Re: new here...

Postby budda » Wed Mar 16, 2011 5:32 pm

:wave: Hi Alison and :welcome: to the forum, we are all here if you need to speak. :hugs: :flowers:
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Re: new here...

Postby shazq » Wed Mar 16, 2011 6:51 pm

:welcome: to the forum. :wave:
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Re: new here...

Postby strife » Wed Oct 05, 2011 12:17 am

hi again! after all this time, finally got a new doctor. Finally seems interested has said she thinks I have FM and has sent me to see a Rheumatologist, appointment has at last come through for the 13th October, I am pinning a lot on this person as I'm so desperate for an answer to why I have felt like i have for so long, only another year has passed whilst I await some sense from someone so whats another 10 days :)
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Re: new here...

Postby denys » Wed Oct 05, 2011 12:07 pm

Hi Alison :fingerscrossed: :fingerscrossed: :fingerscrossed: and :goodluck1: with your appointment :wave: :wave: :wave:
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Re: new here...

Postby shazq » Wed Oct 05, 2011 1:26 pm

Dont forget to write all your symptoms down and try to take someone with you as an extra pair of ears help when you have fibro fog :facepalm: :lol: :lol: :goodluck1: and hope you get some answers.
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Re: new here...

Postby mand » Wed Oct 05, 2011 10:02 pm

Hi strife, i hope you get answers when you go, once you get a diagnosis it will be....right now what do i do and get order and control, i thought i was going la la :crazy: with symptoms and new symptoms that cropped up....by the way my eldest has aspergers and learning difficulties.... somedays just the natter alone wears me out :facepalm: , on days when i feel fatigue i try and have a rest after work, before she comes home from day placement, usally we go out, she expects me to be same old mum and not the tired or in pain mum, she keeps me on me toes, and we have a ball :clap: :clap: :crazy: ...but :hit1: ill is not an option in her book....even if she's not well :sick:........kid's eh :D.............. :fingerscrossed: and take care mandy
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Re: new here...

Postby strife » Fri Oct 14, 2011 9:43 am

well, yesterday was the day... and i finally have my diagnosis. Sent me for more blood tests, gave me a prescription for nortriptyline(?) and sent me on my way.... so I'm now thinking hurray, I'm not mad after all, happy its not anything more serious that they may have missed with 2 years of tests, I'm not being a hypercondriac... just need to sort out what's best for me I suppose! I think he was slightly bemused that I was actually happy with the diagnosis, its just a relief after all this time. :crazy:
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Re: new here...

Postby shazq » Fri Oct 14, 2011 12:49 pm

Hi
Glad you got the answers but sorry its fibro. :hugs:
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Re: new here...

Postby FluppyPuffy » Fri Oct 14, 2011 1:06 pm

Glad you've finally got the answers you were after :clap: :clap: :clap:
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