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The UKFibromyalgia Forums • View topic - Keep Calm & Carry on



Keep Calm & Carry on

Any tips on what helps you including alternative medicine.

Moderators: perseus, *Lisa*, FluppyPuffy

Keep Calm & Carry on

Postby ciderpig122 » Tue Sep 13, 2011 9:10 pm

OK, so you know we have up and down days.

After 9 years of down days it tends to be more down than up lol

IO wrote to my GP in a fit of temper after a rheumatologist diagnosed fibro and hypermobility and said take paracetamol and excercise ' excercise you c**k i cant even walk

anyhoooooooo i researched here, the hmsa forum and did alot of homework on the illnesses, i went back to doc and demanded an appointment with the uk specialist and said no worries if its not on nhs, i will sell my car, my house or myself cause i am p**sed off with living like this i may as well be dead.

3 months later- today- i got to see Prof Grahame in londons UCL hospital, cost a bomb in train fares and hotels but ive been diagnosed with EDS type 3- or EDS hypermobility and am being sent on a 3 week residential course at the uk specialist therapy centre in middlesex,

all i can say is fight for yourselves guys, no bagger else will and its sink or swim, its only a small victory but i feel alot better for it :twodrinking2:
Fibromyalgia, Elher Danlos Type Hypermobile, OCD, Asthma, PTSD.
Im not ill, I am just special :D
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Re: Keep Calm & Carry on

Postby ciderpig122 » Tue Sep 13, 2011 9:11 pm

just to add, my disability benefits have been declined, i am taking my former employer to court, i wont be paid for the 3 weeks i am away and cant claim benefits so i know how hard it is i swear i do, chins up eh :)
Fibromyalgia, Elher Danlos Type Hypermobile, OCD, Asthma, PTSD.
Im not ill, I am just special :D
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Re: Keep Calm & Carry on

Postby loubie » Tue Sep 13, 2011 9:18 pm

well done :clap:
hope all goes well for you :wine:
loubie xx

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Re: Keep Calm & Carry on

Postby denys » Tue Sep 13, 2011 11:35 pm

:fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: for you
Denys

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Re: Keep Calm & Carry on

Postby animalhouse » Tue Sep 13, 2011 11:51 pm

hope it goes ok.

take adeep breath and relax now you have won another battle and deserve it. :flowers: :wine:
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Re: Keep Calm & Carry on

Postby shazq » Wed Sep 14, 2011 2:49 pm

:goodluck1:
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