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The UKFibromyalgia Forums • View topic - arggghhhhh!!!!!!



arggghhhhh!!!!!!

Any tips on what helps you including alternative medicine.

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arggghhhhh!!!!!!

Postby angela michelle » Thu Aug 16, 2012 10:22 pm

the 6 weeks hols are killing me one day at a time. i have woke on tuesday not able to walk at all i have found walking difficult for a while and now i cant lift my right foot it is extremly painful. and i have been suffering from vertigo.

my doc stopped all tablets some time ago and said there aint alot of treatment for fibromyalgia and i need to learn to cope and referred me to physio therapy. it is stressing me so much i just shout all the time because i feel aggitated with the pain i dont know what i can do any more. even friends and family dont seem to understand as there is nothing to see.

my husband knee had swallon because of fluid and i was annoyed because everyone telling me how bad it looks and how much pain he must be in. i feel selfish because i am think well i am in alot of pain. i am dizzy to the point i cant movebecause my head is spinning so much , forgetful, confused, in pain, i have pins and needles all the time, i am tired but find it hard to sleep, stiffness. i dropped a kettle of boiling water on my hand iam really burnt and it aint thefirst time i have done this i drop things all the time. i have made another appointment for my gp i dont think she will help but i have to try. any suggestions from people on how to cope are welcome x
Last edited by denys on Fri Aug 17, 2012 8:46 am, edited 1 time in total.
Reason: spaced paragraphs to make reading easier
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Re: arggghhhhh!!!!!!

Postby denys » Fri Aug 17, 2012 8:53 am

Hi Angela I think you should see another GP, some meds do help regulate the pain a little and make things a bit easier to cope with so taking you off all your meds isnt right.

Print off some of the info on here and let your friends and family read it, it tends to make it easier then trying to explain all the time. When people tell you how bad your husbands knee is and how painful it must be, agree with them a 'yes it must be awful' is better than a strop of how much you are hurting.

Did you get the scald treated??? if you are dropping things like that, you should report it to your GP as they can refer you to the OT department (you can self refer if your doc wont) and you may be able to get some help. They have things like a kettle cradle which allows you to pour the water from the cradle so you dont actually pick it up.

The kids will be back at school soon, so sending a few gentle :hugs: :hugs: to get you through :fingerscrossed: you'll get some proper help and feel a little better soon :-D :-D

I edited your post just to make it a little easier to read, most of us find trying to get through large blocks of text really difficult :hugs:
Denys

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Re: arggghhhhh!!!!!!

Postby masonsbarms » Fri Aug 17, 2012 4:14 pm

hi angela, i have to agree with denys, the meds i take make it possible for me to keep working full time, they help me cope.

i know without them this would not be possible i woud see someone different, if pills dont help why dose the nhs recomend certain ones.

realy hope you get sorted soon, and that your family learn to understand,

dont feel guilty thinking the way you do my hubby is great but at the moment his has a realy bad back, and although i know how much pain hes in the fact that my family are saying the same as yours, and he keeps telling me how much it hurts,

it didnt stop me wanting to shout when i came home shatterd with feet and legs in agony after working 11hhrs,
when he said he was fed up with being in pain, after 4 days.

i think my face said it all.

take care not long left now xx
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Re: arggghhhhh!!!!!!

Postby angela michelle » Mon Aug 20, 2012 6:24 pm

thankyou for your replys. i did get the scald seen to thanks.i am so fed up with the whole thing i dont think i have any one that under stands the pain and not just pain the whole package of it. i am so exhausted.

we go on hols in a couple of days, i am worried how i am going to do it, my family say its a mentle illness and i will do my self no harm to push threw it and that i am just lacking in motivation

i am seeing my gp on wednesday so i will see what she says then xx
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Re: arggghhhhh!!!!!!

Postby masonsbarms » Mon Aug 20, 2012 6:48 pm

hi, i was worried about going on my hols and how i would cope, but it was ok.

is you dr understanding if so could you take your hubby with you and ask her to explain things to him.

your family are wrong its not all in your head or lack of motivation at all, and dont let them make you dout yourself.

sometimes with the best will in the world you cant get some people to understand (like my mum).

when you see your dr make sure you tell them everything you are feeling (all of it),
if you are having trouble remembering thing write them down.

it is a very hard thing to understand and get to grips with but you can get things a bit better.
i hope you get the help from your gp and your family learn to understan.

try and have a nice holls.

take care xx
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Re: arggghhhhh!!!!!!

Postby FluppyPuffy » Mon Aug 20, 2012 9:25 pm

I'm just back from hollibobs and for most of the time coped with things 8-) 8-) During the times where things were difficult, I needed to rest/sleep etc, we changed our plans around and fitted things in as we needed to do.

I hope you get some support and sense from your GP about treatments and meds etc. Altho they don't take away the problems, they do at least take the edge of things to make things somewhat more tolerable than what they would be without them :shock: :shock:

Have you tried showing your family any info about FM, this one viewtopic.php?f=2&t=4732 may be helpful as it does a great job of explaining to someone who doesn't have FM what things are like for us.

Hope you can have some relaxing time while you're away :fingerscrossed: :fingerscrossed:


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Re: arggghhhhh!!!!!!

Postby angie68 » Mon Aug 27, 2012 6:46 pm

hello i think all these posts are great and ive finally found something to help me as well as all of you thank you all, i hope you got sorted miss aarrgghhh!!!!, i understand where you coming from, and has for your doc should he really take you off them meds..??? nope me thinks, my specialist was great, he said to me " you look really well but people dont see this that you are in much pain, just realx when you can and when you excercise stop n start when needed cos believe me next day you will be in lot of pain, " i explained how active i was he sed nomore can you do that thats frustrating also, amptripyline works well for me on a night but i cant find a good painkiller to get me through the day ...i hope you got sorted :( :hugs: from me to you all x by the way all these smileys are wonderful x
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