Getting on top of my fibromyalgia with yoga

Any tips on what helps you including alternative medicine.

Moderators: perseus, *Lisa*, FluppyPuffy

Getting on top of my fibromyalgia with yoga

Postby jimbo » Wed Aug 10, 2005 5:55 am

Hi, just joined and thought I'd share with you what i recently discovered - yoga. I'm 36 by the way and have been off work for 13 years. Recently for the first time, I got support from a doctor. thus my life became stable enough to concentrate on a physical assult to try and blow this fibromyalgia off. Here's the highlights.

YOGA - It really loosens up and strengthens my neck (I am highly suspicious that my fibromyalgia is caused by the missalignment of my neck and cranium by the way).
These are the positions:
ardha_matsyendrasan
pavanmuktasan
matsyasan(CAREFULL - only if you're SURE about it!)
bhujangasan

I spent £2000 on chiropractors in the past 2 years and as soon as I discovered yoga, I never went back (although I haven't written off chiropractic just yet). Chiropractic has been excellent in freeing up parts of my spine which were just 'stuck'.

I'm doing an hours exercise a day in conjuntion with yoga by the way swimming one day and jogging the next. When swimming, I do crawl and breast stroke in alternate lengths for an hour and I'm sure this combination is healing me, re-aligning my neck/cranium.

Running was my first experiment to see if that would help. It just cleanses my body and I feel great for it. I run on the moors over tors (On Dartmoor) Extreme I know but I'm addicted now.

Edit...
I'd just like to add, in case any doctors are looking at this, that I was only able to start exercising under extra-ordinarilly exceptional circumstances in the way that my life has panned out. Only with doctor support was I able to afford to start eating properly to even realize that I could do any exercise. I was left to rot by the British medical profession for 10 years unable to work or claim any sickness benefits . I ended up homeless twice and was diagnosed with post traumatic stress disorder because of the misstreatment from doctors, not because of my illness. Only by chance did my circumstances fall into place for me to be able to make the efforts I have made. I just don't want one of you doctors who don't care about human suffering (there's so many of you it's scarey) to use this positive post against any person with this life devistating illness.
jimbo
UKFM Member
 
Posts: 12
Joined: Wed Aug 10, 2005 5:08 am
Location: Dartmoor UK

Trying Yoga

Postby jano » Sat Aug 27, 2005 10:46 pm

Hi Jimbo... I printed out the positions you recommended the other night and I have been doing 3 of em.can't do the matsyasasn one..lol... I can't manage to get my knees to the floor on the cross leg one, but I am sure with practise they will come down. Infact I am pretty hopeless at keeping the correct positions on a few of em, but I am trying and the website link is very interesting as it tells you what to do and why you are doing it.. I am defo going to keep doing the ones you recommended.. thank you

I have started to wake up each day stretching fully all parts of my body whilst still lay in bed and I can feel the difference all ready...

Thanks for the tips
Jano
jano
UKFM Member
 
Posts: 63
Joined: Fri Jul 29, 2005 6:13 pm
Location: Manchester

Postby jimbo » Tue Aug 30, 2005 4:01 pm

Hi Jano,

I'm happy you're getting something from it. It takes a while to be able to get in those positions, it's so unnatural tieing yourself in knots. I'm getting better at it though having done it for a while. Had to take a couple of days break from it here and there too but it's going good. I'll be going to yoga classes soon, I find it really enjoyable and invigorating.
jimbo
UKFM Member
 
Posts: 12
Joined: Wed Aug 10, 2005 5:08 am
Location: Dartmoor UK

Newly diagnosed!

Postby trish » Tue Aug 30, 2005 7:10 pm

Hi, I have just been diagnosed with fybromyalgia after almost a year of acute pain so finding you is a real buzz! I have checked out the yoga exercises and will give them a go, but a few questions for those of you already on the road... I was given a few exercises by the GP because my pain is across shoulders and chest and down left arm - I was damitted to hospital with suspected heart attack when I first got the really bad pain! Each time I do the exercises for the shoulders and arms, I get even more pain and am in a worse state for hours afterwards, which puts me off doing more exercises! I use an ice cold gel which relieves the symptoms for an hour or so but I've now been told I can't drive and I already can't walk further than few metres without the pain being excrutiating and reducing me to tears! Is there anything I can do re exercise to get me started on the right path? I tried swimming but the cold water/air made me worse again!
trish
 

Postby Guest » Tue Aug 30, 2005 9:05 pm

Hi Jimbo and Trish... thank you for answering my posts, i feel billy no mates when I post and get no replies...lol....

Jimbo I am sure as time goes on and my mucles become more flexiable I will find the positions more easily.. obviously pick my times when I do them and I am not holding them for too long but at least I am trying...lol... I will have to look if there is any yoga classes near by and give them a ring and explain about fms see what they say.

Trish.. your areas are my worst areas too, I work using a pc all day and so I can totally sympathies with you. I am not sure which exercised you have been told to do?.. the only one I can recommend helps relieve the tension and pain some.

Get a towel and hold one end with your right hand at the front of your body ( visa versa if you are left handed) the other end hold over your left shoulder so the towel is at your back .. slowly move the towel up and down like a pully.. imagine you are drying your back area near your shoulders..only do it for as long as you can stand.... it does hurt and it will hurt in the inner part of your elbows but it does strengthen that area of the muscles, but take it slowly and easy... only do it if it feels right and if it helps...

I find I cant do swimming either, breast stroke kills me, but I am told that is the best one to do..I just jump up and down now in the water...lol..but I must admit I have not been swimming for months.

This fms thing is hard cos we hurt when we exercise and if we dont exercise then our muscles become weaker and it is a circle of pain... I have not mastered it I am afraid.

I have got worse with my walking, and i know that is why I have put on as much weight as I have.. I get a taxi to and from work and so when I think about it I hardley walk at all, no wonder it hurts me so much, but when I do try to walk i end up in more pain..

Driving my limit is approx 20mins top, then I have to stop driving it hurts too much after that and my muscles go in to hard spasms which is dangerous isn'it it.. I find I dont drive unless I know I am going to be okay to do so.

You will slowly get to know what you can and can't do Trish, I am afraid it is trial and error and finding out what your limits are... take it slowly

Hope I have been some help :roll:
Guest
 

Postby jano » Tue Aug 30, 2005 9:06 pm

doh I keep forgetting to sign in !!!

Jano x
jano
UKFM Member
 
Posts: 63
Joined: Fri Jul 29, 2005 6:13 pm
Location: Manchester

Exercise and Pain

Postby Trish » Tue Aug 30, 2005 10:40 pm

Many thanks, Anne, for that info. I'll give the towel a try. My GP has me putting my arm up my back as far as I can, hold for 10 then release - standing straight against a wall and stretching the arm up the wall, stretching out finger tips then holding for 10 and bending over as though I'm going to touch the toes then swinging arms back and forth. Anybody else been asked to do any of this? It doesn't seem to help but I perservere cos I just need to convince myself that something is going to work eventually. I gave up my job in March cos I was too exhausted to cope and since then life has actually got worse! I also find that arguments/stressful situations really make it worse - especially across the chest and if I didn't know better, I'd think I was actually having that heart attack they thought I was way back when! Thanks for the support - I have never felt so isolated or 'alone in a crowd' as I feel right now!
Trish
 

Postby jano » Wed Aug 31, 2005 11:57 am

Hi Trish, I hope the tip helps, but like i say only do it if it feels right and it helps.. no good doing something if it doesnt help or doesnt feel right.

I can see the "help" your gp is trying to give with the exercise as putting our arms above our heads are really hard.. that is why so many of us complain we struggle to wash our hair.. the most annoying I find is shaving under my arms...lol.. when you can only get your arms so ups high makes shaving under them hard...lol... some days are worse than others.

Has he recommended you for physio at the hospital, if he hasnt ask him if he can. They do come up with some good exercises and you can then continue to do them at home... one i learnt was to stand with my back as straight to the wall as I can and it aliens the spine straighter, i do that when my neck is very bad... eases it some..

Trish you are no longer alone, there are lots of us out here in net land, this site has been only going for a few weeks and so not as many are posting as they used to on the old site.. but I am sure as time goes by you will make many friends that can help and support you.

From this site i have found a lovely network of fibromates to whom we have got very close and help and support each other.. many folks will come in and out of your life but you will get the help and support you need from each other at that time.

Take care
Jano
jano
UKFM Member
 
Posts: 63
Joined: Fri Jul 29, 2005 6:13 pm
Location: Manchester

Just learning!

Postby Trish » Thu Sep 01, 2005 9:15 pm

Thanks, Jano, for that lovely bit of encouragement - and you're right - even in the last couple of days, I've felt a lot less isolated just being able to come on and see that others are suffering similarly. And coping with life despite the pain! I just keep crawling under a blanket and sleeping at the moment, which is a bit of defense mechanism and a bit of depression! I am actually seeing a physio at my GP surgery next Wednesday so hopefully she will help. tried the towel trick 3 times today - not for long periods, but it has helped slightly, and I'm trying the standing against the wall too! I'm also ordering an ergonomic chair for my computer because I spend loads of time on the PC usually and now I'm really limited to a few minutes a day. Does anybody know if ergonomic keyboards work? I find my hands and wrist get really sore just typing, which I do quite a lot of usually....
:? Trying really hard to come to grips with this thing...
Trish
 

Postby jano » Fri Sep 02, 2005 11:16 am

Hi Trish, glad I could of been some help - it quite difficult using these forums because you dont know the person who is writing or replying and I always worry how my posts come across - I try to pass on what works for me but know and understand what works for one doesnt work for another.

I have an erogmic keyboard at work - as I spend 6 hours a day on it at work, wow, what a diffrence it has made for me - it is rare now I have to use my wrist splints for typing at work. The position it puts your hands in for typing takes the pressure of the angles and also the wrists.. mine is a microsoft one I think it cost about 35.00, also a gel wrist rest and a ball mouse.. you move the ball not the mouse - that has made a huge difference too...

Good luck with the physio, I hope you get some ideas and some exercises that work for you.

I can relate to you hiding under the duvet, when I first got diagonsed I did that all the time, my husband would come home at dinner to check on me and find me in bed crying.. i was greiving for the person I used to be, upset that I had pain and the meds used to make me feel like a zombie... however that didnt take too long, I got used to the meds and when to take them - I also decided that I was not going to spend my days in bed feeling sorry for myself and decided to fight Mr Fibro.. didnt happen over night and I still have times when I am depressed with the pain/fatigue etc. but it has got easier as I have learnt to accept fms and learn my limits, you will get there too, I am sure.

Take care
Janox
jano
UKFM Member
 
Posts: 63
Joined: Fri Jul 29, 2005 6:13 pm
Location: Manchester

Well Done

Postby fish816 » Sat Oct 08, 2005 3:05 pm

Hi Jimbo... I printed out the positions you recommended the other night and I have been doing 3 of em.can't do the matsyasasn one..lol... I can't manage to get my knees to the floor on the cross leg one, but I am sure with practise they will come down. Infact I am pretty hopeless at keeping the correct positions on a few of em, but I am trying and the website link is very interesting as it tells you what to do and why you are doing it.. I am defo going to keep doing the ones you recommended.. thank you


:(! nice :))
fish816
 

dru yoga

Postby HazelB » Sun Oct 09, 2005 12:33 pm

I started a dru yoga class last Monday night ... where the focus is placed as much on the correct breathing as managing to reach the positions. Apart from some increased lower back pain for a couple of days (due to overstretching into a couple of positions - so will know better next time) I felt really good afterwards.

I've tried to remember some of the moves to practice at home, without much success - so my next step will be to buy the video which includes sequences from 5 mins upwards, and hope to do even a simple 5-10 mins each day if I can.

I'm now looking forward to tomorrow so I can go again .... as I think it is just as important that i am having some 'me time' and doing something I enjoy

Hazel
HazelB
UKFM Member
 
Posts: 448
Joined: Sat Sep 10, 2005 3:21 pm
Location: Renfrewshire, Scotland, UK

Re: Getting on top of my fibromyalgia with yoga

Postby shereen » Sun Dec 04, 2005 1:44 am

[quote="jimbo"]Hi, just joined and thought I'd share with you what i recently discovered - yoga.[quote]

Hi Jimbo.

I took up Iyengar yoga when I was in the middle of all the tests before I was diagnosed with FM. I chose it because I could get to a class easily, and because Iyengar seemed to focus a lot on correct alignment of the body. Some days the postures really help me feel better, and other days they just help me feel like I'm in control of my body properly again.

I've also learnt to mostly accept that some days yoga will leave me sore trembling and twitching for maybe a whole day after. It's still worth it.

Shereen
shereen
UKFM Newbie
 
Posts: 6
Joined: Sun Dec 04, 2005 12:55 am
Location: Northern Ireland

hehehe

Postby Guest » Sat Dec 31, 2005 1:29 am

jano wrote:Hi Jimbo.


He said "Jimbo."!

online casinos Venice Cottages
Guest
 

Postby Beth » Wed Jan 11, 2006 10:45 pm

Wow how can you guys do that!
Ive just tried yoga recently and im not really looking into trying it again, i almost ended up in hospital cause i was in so much pain and so swollen. but ive just found this and wanted to know did you guys do something to to help get yourselves into it?
I swim and occasionally cycle but i have hypermobility as well so my physio limits what exercises i can do, she did suugest yoga too but at the time my muscles werent strong enough (o0bviously still arent)

So any tips?
Beth
UKFM Member
 
Posts: 83
Joined: Tue Aug 23, 2005 8:30 pm
Location: Newcastle

Next

Return to Help / Tips on Coping

Who is online

Users browsing this forum: No registered users and 4 guests