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The UKFibromyalgia Forums • View topic - Enforced codeine withdrawal



Enforced codeine withdrawal

Any tips on what helps you including alternative medicine.

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Re: Enforced codeine withdrawal

Postby fibro-lu » Wed Oct 02, 2013 11:11 am

all the best :cow-wave: Lu
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Re: Enforced codeine withdrawal

Postby FluppyPuffy » Wed Oct 02, 2013 12:03 pm

Most of us seem to be very sensitive souls when it comes to things being said and how they are interpreted. I've lost count of the number of times I've gone bulldozing in with :shooting: :shooting: :shooting: :shooting: :shooting: :shooting: :shooting: :shooting: only to make a complete twit of myself because I've got everything wrapped around my neck :oops: :oops: :oops: :oops: :oops: :oops: :oops:

Hope breakfast went down OK this morning HC, after your "lay~in". I slept thru the alarm :facepalm: :facepalm: :facepalm: Good job OH is off duty or teenage offspring would have still been :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: as well instead of on his way to college. It's been hammering it down here as well, the fair is in town which always brings monsoon~like weather with it :facepalm: :facepalm: :facepalm: As for doglet walkings, well OH is off and it's his turn to be on duty for them :bear-dancing: :bear-dancing: :bear-dancing:

Have fun with your little granddaughters when they visit :cow-wave: :cow-wave: :cow-wave: :cow-wave: :cow-wave:


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Re: Enforced codeine withdrawal

Postby denys » Wed Oct 02, 2013 4:54 pm

Hope you had a decent day HC and had some fun with the little ones :lol: :lol: Hope tomorrow goes well and then you can start to enjoy your horlicks again :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: and :goodluck1: :goodluck1: :goodluck1: :goodluck1: we will be thinking of you :hugs: :hugs: :hugs: :hugs:
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Re: Enforced codeine withdrawal

Postby hippychick » Wed Oct 02, 2013 5:08 pm

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Re: Enforced codeine withdrawal

Postby hippychick » Wed Oct 02, 2013 5:30 pm

Ta everso peeps for the good luck wishes for tomorrow. It's greatly appreciated and I have to confess to being a weeee bitty worried, only natural I know, but one thing's for sure IF they offer me sedation that'll mean even a minute of extra kip.....I'll grab it with both arms :lol: :lol: :lol:

We did have a luverly time when our daughter and 2 little Grandaugthers came round this afternoon. They're such a handful though especially since I can't do any running around or 'heavy lifting' so the older one now knows for Nana to be able to lift her up when I'm sitting down, she has to turn her back to me so I can lever her up onto my lap much easier bless.... I'm always extra poopy dooped by the time they leave bless 'em. The eldest one, (22 months), has certainly got the measure of our lively puppy now. He knows WHO is the boss and it ain't him ;-) The youngest (coming up to 10 months), is at the real giggly stage now, soooo cute but teething and has her mother's temper if you're not doing exactly what she wants you to do. I've nicknamed her 'stroppy bottom'.

They spent a very pleasurable 3 hours with us before they had to shoot off to pick up my son-in-law from work coz their other car's in the garage at the mo so my daughter's his taxi. As it turned out, that timed it JUST right for my first speedy hobble up to the loo after the laxxies had kicked in but sadly that didn't even give me time to get hugs and kisses bye bye :cry:

And I've been billeted up in the bedroom eversince :-? :-? :-? At least the trots seem to have eased off a bit now having been 4 times in the first 40 minutes of getting upstairs. I'm preparing my poor bod for the second onslaught at 6pm though. If that takes the same 90 mins to kick in (prob won't being the second dose), then hubby'll be like Billy No Mates downstairs for the rest of the night with only pooch for company :cry: But there is an upside to this....means I'll be able to watch what I WANT on the bedroom tele :chicken-dance:

So thanks again for your support peeps. Still one itsy bitsy thing worrying me about tomorrow apart from the obvious, (things going wrong etc.), and that's coz they warn you you'll 'still need easy access to a loo on the way home!!' Shame we've got a touring caravan instead of a motor home eh? Wonder if I should maybe strap a potty to me bum JUST to be on the safe side :nono: :nono: :nono:

Reckon it'll be more comfy just shoving a puppy training pad in me drawers again coz there surely can't be much left inside me already and with only clear fluids continuing until 2 hrs before the thing, I'll be pooing NOWT! :crazy: Btw.......puppy pad in situ as I type.....coz I just can't hobble fast enuff to reach the flippin' loo!

I'll risk getting back to making the crochet bolero I'm in the middle of for the eldest girl now. Dunno exactly how many stitches or rows I might fit in before nature calls again though :-|

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Re: Enforced codeine withdrawal

Postby FluppyPuffy » Thu Oct 03, 2013 4:47 pm

Hope things have gone OK HC and your innards showed their best sides off for their photo shoot :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: Bet you're so glad you hung on to those puppy pads now :clap: :clap: :clap: :clap: :clap: :clap: :clap: :clap:

If you're allowed back on "normal" food and drink now, enjoy your first proper meal :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance:


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Re: Enforced codeine withdrawal

Postby hippychick » Thu Oct 03, 2013 9:24 pm

I'm relieved to say FP that the photo shoot went very well ta muchly ;-) Best news is that the surgeon seems to have found the root of my problem! Unfortunately HE isn't actually MY surgeon and while he explained, (with diagrams bless 'im),what HE would do next to sort me out, he also said that my surgeon does tend to do things 'to the hilt' :lol: I know exactly what he means because when I had the first encounter with my own surgeon, he told me what he lined up for me and when he'd left the room his specialist nurse did say that he likes to do everything diagnostically before making a decision how to proceed. Lucky me eh? :crazy:

If I was under today's luvly surgeon, he'd simply do what he calls putting an elastic band......up there as 'twer so sort the problem which has definitely been caused by having an episiotomy when I delivered both my children. Even my own surgeon's specialist nurse and I had an idea that this is what was going to turn out to the cause when she was explaining to me the possibilities and when she was talking about this 'pouch thing' the symptoms were mine to a T! It would, however be luvly if my bloke would now decide to accept today's findings and skip the next bit of nastiness which isn't a Barium enema but something much nastier :yikes: :yikes: :yikes:

The surgeon and both nurses remarked on my 'nice clean colon' positively shining it was and I know coz I was watching it on the tele the whole time. Have to say, they defo got my better side :lol: :lol: :lol: My only complaint about today was that I'd been quite looking forward to the sedation just to get a bit of shut eye BUT.....as he injected the sedative and the muscle relaxant, he said, 'right I'm going to start now ok?' I asked when the sedative might start to work and he said it should already have! Well peeps, I was as awake as I've ever been and literally could have stood up without so much as a wobble there and then, had I not had a whole load of pipework up the jacksy and oxygen pipes up me nose :shock: Does look funny looking behind you at your bum with a light shining out of it though :-?

The nice caring surgeon did ask me if I wanted some more sedation when it was obviously causing me some 'discomfort;, (DOH...understatement it has to be said and I can see why sedation is a good idea, when it works), but I told it I was fine, (fibber), and that it was better for him just to get it over with. Whole thing took 45 minutes and once back in recovery, I enjoyed reading my Kindle until I was able to have a much needed cuppa. I'd already drunk half a bottle of water from my bag anyhoo because my mouth was like a camel's foot ;-)

He took a biopsy while he was up there just as matter of routine he said, and said it's nothing to worry about, so I'm not. So now all I have to do is wait to get another appointment either with my surgeon or for the next bit of poking around which is done at The London Hospital. Be wonderful if I could skip that bit and go straight to the surgery to sort my probs out though even though I'm no lover of any operations on myself, but this need sorting out for my sanity. I long for the day I don't have to constantly carry a spare pair of drawers, nappy sacs and wet wipes in my handbag everywhere I go for fear of needing them....again.

I was up at 3am again this morning, so it looks like my hopes of the withdrawal insomnia abating yesterday wasn't to be.....yet. Mind you, the main reason for getting up in the first place as because the loo was needed again and that kept on regularly until 12.15pm this afternoon half an hour before we had to set off for my appointment. I was dreading any mishaps en route either way, but mercifully, that didn't happen. Phew!

Funniest thing today though, (apart from the very fetching navy blue paper shorts with the bum opening bit :lol: ), was that while the Midazolam didn't touch me as a sedative it DID have a wonderful effect on my pounding headache and even eased my back and neck pain, (for 4 hours anyhoo), so that was worth the trip alone :lol: :lol: :lol: When I mentioned this to the nurse in recovery, she jokingly asked if I'd like some to take home with me.....oh if only she knew :roll: But I'd never even consider that particular medication since it should only ever be used short term and it's also part of the end of life protocol of course. Had it all ready in my ole Mum's end of life package ready for her at the nursing home, but thankfully, she didn't need it. I was glad to get shot of today's bonce ache even if only for 4 hours coz it was one of my worst without reaching migraine standard.

I'm absolutely cream crackered and have been alllll day which is actually a good sign! Coz up till now with the withdrawal, waking up in the wee small hours has miraculously had me wide awake which never happens with my fibro as a rule, BUT this morning.....I actually felt more like my usual fibro self so maybe, just maybe, that withdrawal is on the wain now? Roll on Monday so I can discuss options with my doc.

Maybe, now that the colonoscopy is out of the way, I might be able to spend a little longer in bed too? Possible that was also at the back of my mind. Funny today though coz it was my hubby who seemed more ansty about it all than me once we got to the hospital :lol: :lol:

Had to have something 'light' for my tea tonight and as hilarious as it is considering I was not affected by that sedative at all, I still have to follow the post-procedure instructions which includes the obvious about not driving, operating machinery, signing legal documents for 24 hours but it even says after 'operating machinery' that 'this includes COOKING' :crazy: Which is why I ended up with soup and bread for my tea courtesy of hubby. To be honest though, I wasn't hungry :crazy: My appetite still hasn't returned since the first lot diarrhoea on 16th September. Be kind of nice for my plump ole bod, if my appetite would remain hardly there for as long at it likes so far as I'm concerned ;-)

Well FP, ta everso again for enquiring after me photo shoot and apart from a few moments here and there of absolute agony, it was all tickety boo and nothing to worry about having done. I'm pretty sure that the hypersensitivity we fibromites can have was more to blame for the increased pain anyhoo.

Time for a nice shower now methinks now I'm totally minus the puppy training pads at last :girl_moon: AND.....before bed....me mug of greatly missed HORLICKS light :chicken-dance: :chicken-dance: :chicken-dance: Then.....beddy bo bos hopefully for more than just a few hours. We've got our darling granddaughter's here tomorrow while our daughter pops into her work for a meeting about her returning to work part-time when she used to be full time. Good job I'm tickety boo after me photo shoot. I really wanted to ask for some piccies you know. Is that really gross of me? :tongueout: It's just the nurse in me I'm afraid :oops:

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Re: Enforced codeine withdrawal

Postby denys » Fri Oct 04, 2013 12:36 am

Glad things went okish and you have managed to get your horlicks, hope you manage a bit more rest than you have been having recently :-D :-D :-D
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Re: Enforced codeine withdrawal

Postby hippychick » Fri Oct 04, 2013 8:38 am

So THIS is what it's like to get up a more respectable hour then!!!!!!! :sheep: I actually managed to stay in bed until.......7.30am and I'm sooooo chuffed I just can't tell ya :twodrinking2: I'm putting that down to a combination of things ,(or maybe it's just cosmic and summat to do with the planets aligning or somfink :crazy: ), being 1) the colonoscopy was out of the way 2) having me relaxing mug of Horlicks light before bed 3) the trots having settled down BIG time thank heavens 4)maybe JUST m-a-y-b-e I'm getting towards the end of the codeine withdrawal? Living in hope. Course the restless legs are still being restless but last time I went through withdrawal of the pentazocine, that actually lasted for almost 3 months!

Anyhoo whatever let my 'lie in' happen......I'm humungously grateful for it. And how sad is this peeps........I never thought I'd be glad to see the return of my waking up feeling more tired than I was before I went to bed and as if my body has been kicked about alllllll night by a donkey wearing hobnail boots BUT that's exactly how I feel again this morning coz it means I'm getting back to what's 'normal' for me :sick: Sounds even more ridiculous to say that I'm sort of pleased that horrid feeling HAS returned I know, but at least it's showing promise re the withdrawal malarkey eh?

Roll on Monday now when me and my doc can put our heads together and find some different analgesia for me coz there is nooooo way I can even consider going back on the co-codamol forte for the foreseeable future with definite bowel surgery of some description or other ahead which would mean having to stop it again! Btw, for any medically interested peeps out there, my problem appears to be an ARMP for short. Anterior Rectal Mucosal Proloapse. Ohhhh lucky me eh :lol: :lol: :lol: But at least it's easily fixed......apparently :-?

Now looking forward to our daughter bringing our 2 little granddaughters round later so we can look after them while she goes to her workplace for a meeting to discuss her return to work later this month. She's trying to only go back for 2 days working 12 hour shifts so fingers crossed she gets what she wants.

What a nice 'short' post that was..........for me anyhoo :twodrinking1:

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Re: Enforced codeine withdrawal

Postby denys » Fri Oct 04, 2013 6:06 pm

Glad you managed to get to a more reasonable time HP :fingerscrossed: :fingerscrossed: :fingerscrossed: no more side effects :-D :-D
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Re: Enforced codeine withdrawal

Postby FluppyPuffy » Fri Oct 04, 2013 7:40 pm

So relieved that it's gone OK HC, even better that your innards showed their best sides off :lol: :lol: :lol: :lol: :lol: Slightly seriously tho, it's good that something was spotted that can be sorted and hopefully make things a bit better, more comfortable. You never know, your surgeon may just go straight in and sort it. If not, at least with his approach, you'll know that things have been thoroughly poked, prodded and photo'd to maximum efficiency, and hopefully it will be same sort of efficient approach when he does do the fettlings and sorting~outs for you :mrgreen: :mrgreen: :mrgreen: :mrgreen: :mrgreen: :mrgreen: :mrgreen:

Managing to stay in bed until a reasonable time as well :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: What an extra~exciting time :bear-dancing: :bear-dancing: :bear-dancing: I think it was a mix of all the things happening that have helped, maybe you'll even be able to catch up on some of those missed :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: as well :teddy-bear: :teddy-bear: :teddy-bear: How about that for a bit of being sad.......congratulations for not getting up until 7.30 :crazy: :crazy: :crazy: :crazy: :crazy:

Have you had your usual fun with the 2 ickle'uns whilst they were visiting??? Hope your daughter is able to sort out going back to work on a part time basis. Back in the dim and distant days when :yikes: :yikes: :alien: :alien: teenager was a baby, I initially went back to work full time until my job~share partner came back and it was an absolute killer for me :shock: :shock: :shock: :shock: Being able to reduce my hours was extremely welcome as I was so exhausted, and that was pre~FM and CFS :bricks: :bricks: :bricks: :bricks: :bricks:

Better :penguin: :penguin: :penguin: :penguin: :penguin: off for now, it seems to be my turn for the lack of :sleep: :sleep: :sleep: now, still awake at 3.00am thanks to a nuclear head, then woken up very suddenly after about 3 hours by wufferings from doglet which had me barrelling downstairs to her in case she was needing to go out urgently :facepalm: :facepalm: :facepalm: Turns out it was a :f1-car: going by that she didn't like the sound of :swear1: :swear1: :swear1: :swear1: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: for Monday's appt finding something to help with the hurtys but without the nasty~pasty addictive bits :fingerscrossed: :fingerscrossed: :fingerscrossed:


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Re: Enforced codeine withdrawal

Postby hippychick » Tue Oct 08, 2013 4:55 am

Well this is probably going to be one, if not THE, shortest post ever from my fingers peeps. :shock:

Had Doc's appointment yesterday morning to discuss alternative pain meds for me and guess what?

There AIN'T ANY! Doc reckons, (not a pain management specialist I'll grant ya, but doing his best for me), that by doubling my nightly Nortriptyline and continuing with the white smarties aka paracetamol, that I should be able to manage.........He was very apologetic but is understandably very reluctant to put me on something else that would prove to be equally as addictive to me.

Ohhhhh if only he knew how much this pain blights my life he'd understand that simple, available over the counter, analgesics are next to useless for me, (and probably millions of other fibromites and/or arthritics). And I'm sure he actually DOES understand but he still can't/won't prescribe something for me that he knows is going to be bad for me because the first rule of medicine is 'Do No Harm' and that's what he's trying to stay true to with me.

I just KNEW there wasn't going to be anything to help me having done my own extensive research coz the trouble is, having explained to my Doc about how horrendous the codeine withdrawal is and how I cannot bear the thought of ever having to go through similar EVER again, he, quite rightly, told me that there is nothing else available to me that WON'T BE ADDICTIVE now and he specifically named Tramadol. Wasn't too keen on trying that anyhoo since the husband of one of our niece's had a Tramadol induced 'crash', (and I don't mean in his car :nono: ), where his heart rate slowed down soooooo much that he almost arrested. Didn't sound appealing to me tbh.

Also ultra reluctant to stop the paracetamol JUST incase it IS actually taking a very minute edge off the pain that I'm unaware of :-? Mind you, I'm always very precise with paracetamol dosages and always careful to never take more than 8 in any 24 hour period, (since paracetamol was the main component in the Co-codamol Forte anyhoo), to the extent of if I take the 1st dose of the day at, for instance, 8am one day, I'll make sure the next isn't taken till the same time and now and then I'll only take 3 doses in a 24 hour period to be able to adjust if I know the following day I have to be up and out early or if we're going on holiday and travelling through the night. And that's a larf....the 'up early' bit........as ya might have noticed from the time of this post, it's still the wee small hours of Tuesday as I type, having been awake since 3.15am and finally getting out of bed and coming downstairs at 4am coz I couldn't stand just laying there with no sleep coming back no matter how much I tried to relax and think meself back to sleep :crazy:

Had me flu jab from nurse while I was at the surgery and then decided to have a hobble around the clothing department in our Tesco and splash some cash on the 50% off clothing sale to lift me spirits. Only got a couple of things for meself, but got loads for the 3 grandchildren, one dress for my daughter and a lovely bargain long sleeved top for my daughter-in-law. Will be seeing my daughter-in-law this weekend coz she, my son and Grandson are coming up from Dorset for my 2 Grandaughter's Christenings. My son is Godfather.

So peeps, there ya have it. Gotta be a martyr and suffer the pain unless...........hmmmm.....where DID my hubby hide those hari kari knives.........

Got w-a-y too much to live for with 3 gorgeous grandchildren to watch grow up, even if I do have to keep reminding meself of that now and then....

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Re: Enforced codeine withdrawal

Postby FluppyPuffy » Tue Oct 08, 2013 11:58 am

I was wondering how you had gone on with yesterday's appt HC :grouphug: :grouphug: :grouphug: I've been looking at meds for myself in case the treatments I've having thru Pain Management don't turn to be helpful and the next step for me is morphine~stuff which is really :yikes: :yikes: :yikes: :yikes: :yikes: :yikes: due to past experiences. The only other thought I've had is looking at what is being trialled/researched in other countries, seeing what might be promising, then finding out about availability here and whether it could be something that can be prescribed off label. For that tho, I know it would need an awful lot of research and info to compile something showing how it might be beneficial to you, and then the decision would ultimately come down to your area's Primary Care type~bods as to whether they would agree to it.

Sounds like a nice wandering around the clothes bit in Tesco, esp with those generous price reductions :clap: :clap: :clap: I like those kinds of buyings :bear-dancing: :bear-dancing: :bear-dancing:

Not much in the way of sleep here either, so I can't send any spare :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: :sleep: to you :( :( :( :( The :snore1: :snore1: :snore1: :snore1: :snore1: :snore1: :snore1: :snore1: :pigoink 1: :pigoink 1: was in residence last night and I think I finally managed to grab a few :sleep: :sleep: :sleep: :sleep: as you were logging on here so the :shock: :shock: :shock: :shock: :shock: :shock: :shock: look is what I'm sporting.......yet again :facepalm: :facepalm: :facepalm: I wasn't even allowed an hour of undisturbed :sleep: :sleep: :sleep:

I think most of us need some occasional reminders about those bright little things that help keep us going. Mine tend to be needed when I've got really wrapped up in something, and it usually tends to be a nudge with a wet and rubbery nose or a whack with a paddy~paw that jolts me back to where I should be.

Better go and pretend to be doing some Domestic Goddessing as OH is making a bit if a thing that he has hoovered the grass. The fact that it has needed doing for the past few weeks is irrelevant of course, I'm just supposed to shower him adorations about what a wonderful thing he has done :tongueout: :tongueout: :tongueout: :tongueout: :tongueout:


If your dog doesn't like someone, then you probably shouldn't either
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