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The UKFibromyalgia Forums • View topic - Trying everything..
Page 1 of 1

Trying everything..

PostPosted: Mon Aug 11, 2014 7:22 pm
by Jo90
So, I've diagnosed myself with fibro as my GP can't say what's wrong with me and I'm waiting (6 months) to see a neurologist.
I started with pain in my hands, feet and knees and weakness in my muscles. I have poor quality sleep, burning and tingling sensations in my legs, IBS, fatigue and anxiety.
It all came on suddenly after a emotionally and physically demanding house move.
Firstly, I've put myself on a gluten free diet. This seems to have helped with the IBS, though it didn't improve overnight.
Secondly, I started taking a supplement called 'Fibro freedom'. The tablets are expensive and I'm only taking 2-3 a day instead of the recommended 6. This seems to have helped hugely, I now sleep better, have less pain and more 'good' days than bad rather than the other way round.
Thirdly, I looked into the 'lightning process'. You have to go on a course and it's expensive but I learnt what I could about it from reading other peoples experiences. Apparently, it's copyrighted so you can't access it but I read interviews and reviews and surmised that it's all about positive thinking. So, instead of waking up feeling scared and anxious every morning, I only allow myself positive thoughts.
Lastly, I've learned to pace myself and not get over excited to keep the adrenaline at bay.
I think, all together, that my symptoms have improved massively and I waited a few weeks before posting to be sure it wasn't a temporary thing. I'm not the type of person to rely on western medicine or take tablets from the doc so I'm really pleased with the progress I've made.

Re: Trying everything..

PostPosted: Tue Aug 12, 2014 12:13 am
by carolad
That's brilliant! I completely agree with you, I think conventional medicine has very little to offer so it is up to us to change our lifestyle to help ourselves. Paying attention to diet and stress levels is particularly important because the body will react to both of these things.

I'm interested in the Fibro freedom supplement - what is the main ingredient in these? Did you buy them online?

Re: Trying everything..

PostPosted: Tue Aug 12, 2014 4:20 am
by Jo90
Hi Carol, someone on here was talking about a supplement called 'fibro sleep' and how well it worked for them. I thought I must try some of that because I have difficulty sleeping for more than a few hours and used to feel tired all the time. So, I looked on amazon to see if they sold it, tried to order some but accidentally clicked onto 'fibro freedom' instead. There are 180 capsules and they cost around £40. They claim to 'support healthy muscles and joints, promote anti inflammatory relief and help with sleep and mood'. The main active ingredients (looking at the pack) are vit D3, magnesium, glucosamine, DL malic acid, MSM, Chondroitin. The list goes on but basically they are herbs and amino acids. They can't be taken with anti depressants or tramadol or Parkinson's meds.

Re: Trying everything..

PostPosted: Tue Aug 12, 2014 10:20 am
by carolad

Re: Trying everything..

PostPosted: Wed Aug 13, 2014 5:56 pm
by denys
Sorry to be less positive but firstly you may or may not have FM you arent diagnosed yet, I suggest you go t your doctor and ask whether or not they think you have FM or can refer you to a rhuematologist.

Secondly we are all different and may react to supplements, diets or complimentary therapies differently too, but a lot of us have limited budgets and cannot afford to experiment with expensive therapies or supplements. There have been a number of negative reports regarding the lightening project and personally I would not recommend it (just my opinion)

Please go and get a proper diagnosis and then your experiences will bear more weight