Hemiplegic Migraine ...

Any tips on what helps you including alternative medicine.

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Hemiplegic Migraine ...

Postby Joanne C » Thu Aug 14, 2014 9:54 am

ok, so just over the last few days, i have had a high temperature/fever, severe shoulder pain, stonking headache. my mum went to physio recently, and he told her about Hemiplegic Migraine. I think this is what i had - i had taken lots of my strongest painkillers which helped, but the pain just kept coming back ... took migraleve and it seems to have sorted me out ... may be worth looking up this Hemiplegic Migraine and seeing if it applies to you too ...
Joanne C
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Re: Hemiplegic Migraine ...

Postby ..:: lisa ::.. » Thu Aug 14, 2014 12:55 pm

Hi, I was diagnosed with hemiplegic migraines last year, they can run in families and I was told I had inherited this from my mum.

There is the second type that just happens.

Both types mimic the symptoms of a stroke and are pretty crap!

I was told I was stuck in the aura phase (apparently I had been stuck in it for a year at that time)

I was given amitriptyline so maybe a chat with your gp to get them diagnosed.

My Dr gives me imigran as using painkillers over the prolonged period of time it takes to get some relief can give rebound headaches.
—(••÷[ I may ramble at times as my train of thought has crashed. Please be patient and bare with me ]÷••)—
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Re: Hemiplegic Migraine ...

Postby rich44 » Thu Aug 14, 2014 3:24 pm

I've had migraines since I was 5, inherited from my mum. Back in the day before proper migraine meds as a late teen I used a certain Smelling drug for pain relief, didn't smoke it tho as yucky habit.

Since then discovered triptans and they changed my life, taken at the start of a migraine attack and a quiet rest for 30 mins and bam no migraine! They don't work for everyone but worth a try gave me my life back (before I got fms) I have nasal spray and tablets because it end up sick with mine.

You can buy immigran otc in the pharmacy now they're expensive at £8 for 2 but it enables you to try them then say to your gp I've tried then I want a script.
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Re: Hemiplegic Migraine ...

Postby funnybunny » Sun Nov 09, 2014 3:40 am

i was diagnosed with this 3.5 years ago and have it severe and chronic since, i havent had a days break.

triptans are generally contraindicated for HM and alot of drs dont know much about it so if you may need to ask for referral to migraine specialist not necessarily a neurologist

ive been treated with various methods drugs / infusions / hands on therapy to no avail. botox didnt do anything for me and i ended up with side effects from it which took a few months to wear off

would suggest if you are having episode which you suspect are migraine (hemiplegic or not) to start keeping a diary there are various ones online you can download to keep track of pain, possible triggers, meds used if any, what helped what didnt, how long it lasted etc -- this all helps if you are going to see a specialist as it builds up a bigger picture over time as they may send you off to do that after 1st appt but its good to bring one that you made earlier
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