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The UKFibromyalgia Forums • View topic - new sufferer



new sufferer

Any tips on what helps you including alternative medicine.

Moderators: perseus, *Lisa*, FluppyPuffy

new sufferer

Postby paula » Mon Feb 13, 2006 9:45 pm

paula
 

Postby BuffyBoo » Mon Feb 13, 2006 11:34 pm

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COPING

Postby RebeccaReed » Mon Feb 13, 2006 11:53 pm

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Postby Paula » Tue Feb 14, 2006 10:23 am

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support

Postby RebeccaReed » Tue Feb 14, 2006 3:31 pm

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Postby BuffyBoo » Tue Feb 14, 2006 8:31 pm

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Postby paula » Wed Feb 15, 2006 10:18 am

Hi y'all. thanks for your replies, been reading through some of teh othr messages adn i get the impression that i'm not suffering nearly as badly as a lot of people and now feel like an imposter....i can walk unaided (most of teh time) and although i sometimes take too many paracetemol, most of the time I just manage without them. They don't work anyway so whats the point? My muscles just kinda ache all the time and the only horrible pain is my neck and and shoulders and really bad headaches, but i've always had tension headaches adn i don't know if its related?? The tiredness gets me more than anything. people are talking about brain fog ...whats that ?
Was at the GP yesterday who told me that FMS was a "grey area" and she's signed me off for another two weeks - but the sick note says depression! so now i'm depressed!!!! and she's doubled my dose of anti depressants. I'm really hurt ( i think) that the Gp said depression - she almost made it sound like she doesn't believe its FMS, and I told her bout little things that i've noticed happening she said there was no way to know if it was part of the FMS cause there were so many symptoms.. and she told me not to over think it !!! are all GPs so supportive - she's sending me a community pscyhiatric nurse cause i'm so depressed (she wasn't my own GP who made the diagnosis) but she made me feel like he had made a mistake and I was just feeling sorry for myself..
sorry ranted on a bit there just feeling so confused......
spoke to my boss who said she was meeting with HR at the end of the week but that she would send me a letter detailing what was said and that I wasn't to worry just to concentrate on getting better! so there you go ..not worrying anymore.....To be honest, its not gonna be the end of the world if they do get rid of me...i hate my job and if i'm at home all day I could get a dog and i've been dreaming of that for years - see.. a happy thought to focus on. How do you stay positive when it all feels so hopeless ?
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Postby saffy » Wed Feb 15, 2006 10:45 am

Unfortunately a lot of docs dont recognise FM as a condition but if you list all of the probs you get and go to see your own gp maybe you get lucky.This is what I had to do and after having probs for many many years I finally got the diagnosis. I too was told I was depressed in the beginning but told my gp it was a load of c***. He eventually listened and now is being very helpful. Brain Fog is just another sympton which affects your thinking (can't remember what you were talking about or remember stupid things ,like eating in my case). Just keep on at doc, you'll get there eventually,
Tina ps (keep smilin) :)
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new sufferer

Postby Jane » Wed Feb 15, 2006 12:22 pm

Hi Paula,

It might be worthwhile asking for a referral to a rheumatologist, in particular one who understands FMS. If your GP thought you had a heart problem she would refer you to a heart specialist, if you broke your leg you would expect an orthopaedic consultant to have at least some input into your treatment. If you are showing symptoms of FMS then you should really see an FMS specialist.

Also Rebecca has given you good advice, if your pain is not being reduced by paracetomol, you need a stronger painkiller, you will probably find that you will take fewer tablets if you have something stronger.

Take hope, you will find that you adapt to being a fibro over time, and with experience and support you learn to better manage your symptoms.

Jane
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Postby BuffyBoo » Thu Feb 16, 2006 1:06 am

Hi Paula,
:D Don't feel like an imposter because you are lucky enough to be mobile, this condition affects us all in different ways. :D "Pain is what the patient says it is and exists when and where the patient says it does" Mc Caffery 1982
Just quote that when you go next :roll: .....it's something that all doctors and nurses are force fed in their first years.... they should remember that.
We are all individuals, I've been to Physio today and they worked me really hard especially in hydro....tomorrow I expect I won't be able to walk :? ...but Friday I will and next week I'll have improved some more. I've also met 2 other FM sufferers.....one had been doing the physio course for a few weeks and she was really pleased with her progress....which inspires. I am learning that the pain doesn't go away if I sit and think... neither does it go away when I potter slowly in the kitchen... but for 10 mins at a time I forget that I hurt quite so much. What I'm trying to say is that your doctor has insensitively told you that you think too much....she'd have been better suggesting some distraction therapy..... As part of my physio they want me to make a decupage picture, the idea being, it will help me focus, work on dexterity and forget that I'm hurting for a bit.... I'll let you know how it goes.... :shock:
keep smiling
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new sufferer

Postby paula » Thu Feb 16, 2006 11:43 am

hi folks
thanks for all yur advice - going back to my own GP in about 10 days and i'll get stronger painkillers, and ask him to refer me onto a specialist - proably have to wait for ever for an appointment but its a start!!!
My boss will be in a meeting about me now and I have decided I defintely don't care what hapens - its only a job !!!
feeling a bit cheerier today so every thing doesn't seem so bad - am even thinking about going out for a walk - well round the block maybe.(':shock:')
Buffyboo hope you're also feeling better today???? and the decupage sounds like fun - i'm not very arty, but i have a jigsaw puzzle i started at christmas that i dragged out yesterday and tried to do it.
as for "brain fog" that explains a lot - i keep losing words from sentences and asking my husband what I was talking about and putting in the wrong letters when i type - i also can't seem to coordinate very well and keep smashing dishes on the side of the sink! so now i can tell my hubby I'm not clumsy!!!!!
i feel liek i'm always wingeing - and my friends have stopped asking me how i feel. How do you answer that ? and explain things ???My step daughter is really worried bout me, but I can't find the words to tell her whats wrong and how i feel.....
anyway enough about me!!!!!!!!!!!!!!!! does anybody have any ahppy stories ?
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Postby saffy » Thu Feb 16, 2006 12:38 pm

I read on another site that the best way to explain to somebody else about the pain is : Ask them to press 3 fingers into their shoulder and push until it hurts them, then to push a bit more and they may then have some idea of the pain we as FM sufferers put up with on a daily basis. I did this with my husband (who was very understanding anyway) but he now realsises even more how bad things can get. Of course there is a lot more to it than pain but ....its a start :)
Tina xx
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Postby BuffyBoo » Thu Feb 16, 2006 8:17 pm

I have a happy story......
I had lunch today with my friends from work who I haven't seen in months... It was the first time I have been out for lunch since I became ill.
I am tired now and aching from the physio yesterday but I've achieved something.
Hooray for me!
Hope someone else has had a good day :D
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Postby tina » Thu Feb 16, 2006 8:20 pm

well done buffy its certainly a feel good factor to get out and about live for today seems to apply for us lot!!

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Postby BuffyBoo » Thu Feb 16, 2006 9:18 pm

I agree Tina,
Live for today, that should be the sub banner under the forum header.
We have to take each day as we find it.
Keep Smiling :D :lol: :D
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