not sure if any of you have read the following, someone sent it to me with the spoons Theory;-
My name is Fibromyalgia and i;m an invisible chronic illness. I am now velcroed to you for life. Others around you can't see or hear me but YOUR body feels me. i can attack you anywhere and anyhow i please. I can cause severe pain or, if i'm in a good mood, i can just make you ache all over. Remember when you and Energy ran around together having fun ? I took Energy from you and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and in its place gave you Brain Fog. I can make you tremble internally or make you feel cold when everyone else feels normal. oh yeah, i can make you feel anxious and depressed too. If you have something planned or are looking forward to a great day, i can take that away from too. You didn't ask for me, I chose you for various reasons. Thats virus you had and never recovered from, or that car accident or maybe it was those years of abuse and trauma. Well, anyway i'm here to stay !
Your family and friend and co-workers will all listen to you until they just get tired of hearing about how i make you feel and that i'm a debilitating disease. Some of them will say things like "oh you are just having a bad day" or "Well remember you can't do things you use to do 20 years ago" not hearing that you said 20 days ago. Some will just start talking behind your back, while you feel you are losing your diginity trying to make them understand, especially when you in a conversation with a 'normal' person and you can;t remember what you were going to say next !
In closing i guess you have already found out that the ONLY place you will get any support and understanding in dealing with me is with other people with Fibromyalgia.
i gave this to a few close friends to read and i know there were shocked by it.
'Awake we all share one world, asleep we journey into a realm alone'