Losing my mind ......

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Losing my mind ......

Postby SusieW » Fri Sep 16, 2011 12:24 pm

Hi all,

Had a visit to the Hand Surgeon yesterday. I have Carpal Tunnel Syndrome in both hands. The sent me to have nerve conduction tests and the tests showed "mild" CPS. Imagine my horror when the Surgeon sat there and told me.... I have been in excrutiating pain for the last 12 months or so. I felt like a right lemon and I wanted to cry as I felt like he didn't believe me, suddenly I felt insane. How could my body be telling me that the pain is sooooooo intense???? Surely the tests were right? He says that I can have the op but there is a 1 in 10,000 chance that I could get something along the lines of "Deferred pain syndrome". I'm not sure what to do now. I'm so desperate for the pain to stop :needhug:

I'm really struggling at the moment, I feel the whole world is looking at me and laughing. I feel such dreadful pain that I can't show anyone, had any one got any suggestions?

The GP gave me Gabapentin this week and ooooohhhhh boy am I finding that hard going. The dizziness is dreadful and I'm not sure I can carry on with it..... :banghead:

Sorry to be on such a downer
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Re: Losing my mind ......

Postby denys » Fri Sep 16, 2011 1:34 pm

Hi Susie, you arent losing your mind so dont worry. The pain we feel in so much more intense than a person without FM therefore what you are suffering is normal for us :yikes: :yikes: :yikes: :yikes: :yikes: :yikes: :yikes: I've also had nerve conduction studies done that showed moderate carpel tunnel but the neurologist showed me that the pain in 3 of my fingers was from that but the pain in my other 2 was from the discs in my neck pressing on the nerve there :yikes: :yikes: :yikes: So some of your pain may be from something else.

Just because they say your CT is mild doesnt mean you arent believed about the intensity especially if you have pain from FM or anything else as well. Try to keep going with the Gabbas for a little while longer and hopefully the side effects will lessen with time :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :flowers: :flowers: :flowers: :flowers: :flowers:
Denys

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Re: Losing my mind ......

Postby shazq » Fri Sep 16, 2011 1:42 pm

:hugs: :hugs: :hugs: Susie What a horrid surgeon :shock: how dare he say that to you. :evil:

Sounds like you are getting the side affects from the Gaba`s they should settle down soon. :hugs: Hope they work and help with your pain. :goodluck1:
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Re: Losing my mind ......

Postby boomermctea » Fri Sep 16, 2011 3:56 pm

Hi Susie,

I beleive you totally about the pain in your hands, I had Carpal Tunnel years ago before I was diagnosed with FM. The pain is incredible, it used to wake me up in the night and also the numbness drives you crazy. i suppose I was lucky that they just did the op then this was back in the 90's and I did not have to worry about tests and things.

All I can say is that back then they said that if they do one hand the other will get better by itself, so I had my right hand done. I was off work for 6 weeks, the operation was done by local, enough said :yikes: :yikes: Afterwards the pain is quite bad for about 7-10 days and then it only hurts if you pressed or hit the site of the op :swear1: :swear1:

I dont know if this helps at all but its how it was for me,


:goodluck2:

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Re: Losing my mind ......

Postby SusieW » Fri Sep 16, 2011 4:30 pm

Thanks everyone for the messages :wave:

Thanks Boomer for replying, I'm a little apprehensive about it as it is under local anesthetic - bit scary :yikes:
Good to know someone else has been through it
:flowers:

Susie

xxxx
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Re: Losing my mind ......

Postby busy mummy » Fri Sep 16, 2011 5:02 pm

Hi Susie

I have had carpal tunnel in both hands for 2 years+.
When I initially told the GP my symptoms she said CT defo. But my nerve conduction tests came back normal.

I then saw a neuroloigist who said I defo had CT, and reccomended cortisone injections which were fab, but you can only have 3. The neurologist told me that the nerve tests arent the be all and end all of it. They only show if the CT has caused damage and that the other symptoms need to be taken in to consideration.

Almost 2 years down the line I finally got to see a hand specialist last week who took all of 30 seconds to refer me for surgery which I should be getting in the next few weeks on my right hand and then 6 weeks after, my left hand.

Its a battle and a half, and the fibro and stuff it does to your head dosent help, but believe me, if they are sending you for the surgery at this stage you are one lucky girl.

What I still cant get my head around is why they insist on waiting until the nerves show permanent damage before acting. After all, its impossible for a nerve to re-incarnate itself once dead. So waiting till then to operate seems futile since the advantage to the patient will surely be minimal :facepalm:

Anyhow , I will keep you posted how I go, please, if you get there before me will you do same? I am already practicing doing things one handed !!!!!

Sarah x
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Re: Losing my mind ......

Postby tonydin » Fri Sep 16, 2011 6:36 pm

hi dont worry its par for the course ,, it apperes thats how fibro works ,, i have coonstiant pian in hands and was sent to nuro for nerve condution tests for carpell tunnell guss what all normal so no carple tunnle , ultrasounf on sholders all normal , i think its your neck he said well do a mri , nothing much showes :swear1: discharged to gp/
back to rummy hey ho yoy have fibromyalgia woope woope

dont worry your in good company :wine:
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Re: Losing my mind ......

Postby lolabolla » Fri Sep 16, 2011 6:54 pm

I hope that you feel better soon. I have been on gab's for about a month now and I can't even remember the first two weeks :crazy: :crazy:
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Re: Losing my mind ......

Postby SusieW » Fri Sep 16, 2011 7:20 pm

Thanks everyone, it always helps to know I'm not alone :grouphug:
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Re: Losing my mind ......

Postby cherryblossom » Sat Sep 17, 2011 1:12 am

Hi Susie. I've just had one carpal tunnel done. I suffered with the symptoms for 3/4 years. It was that long because I wasn't suffering from the 'typical' symptoms which frustrated me rather as I knew something wasn't right. Anyway, in short I finally got referred and offered the op but only afte rI'd had an mri which showed some pretty awful stuff going on in my neck too which they said may have 'covered up' the 'normal' symptoms. In short I went ahead with the op, under a local. Like you I was worried witless about it to the extent of being on verge of a panic attack. But I needent have worried. It really was painless and only took about 15 mins. Apart from not being able to use one hand for a couple of weeks and some pain post op obviously, I was ok and very relieved. I'm glad I took the op when it was offered. If I was in your situation I'd take it but that is only in my opinion. Don't feel as tho they don't believe you. As I said I didn't have the typical symptoms but while they were doing the op they couldn't understand why that was as my tendons were so tight they almost ruptured as soon as they cut me! It just goes to show there really is no 'average' or 'typical' no matter what they say! Anyway, good luck with it all and don't worry, it really is ok. Cherry :blowkiss: :hugs:
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Re: Losing my mind ......

Postby dvaidr » Fri Oct 28, 2011 6:45 pm

SusieW wrote:Hi all,

Had a visit to the Hand Surgeon yesterday. I have Carpal Tunnel Syndrome in both hands. The sent me to have nerve conduction tests and the tests showed "mild" CPS. Imagine my horror when the Surgeon sat there and told me.... I have been in excrutiating pain for the last 12 months or so. I felt like a right lemon and I wanted to cry as I felt like he didn't believe me, suddenly I felt insane. How could my body be telling me that the pain is sooooooo intense???? Surely the tests were right? He says that I can have the op but there is a 1 in 10,000 chance that I could get something along the lines of "Deferred pain syndrome". I'm not sure what to do now. I'm so desperate for the pain to stop :needhug:

I'm really struggling at the moment, I feel the whole world is looking at me and laughing. I feel such dreadful pain that I can't show anyone, had any one got any suggestions?

The GP gave me Gabapentin this week and ooooohhhhh boy am I finding that hard going. The dizziness is dreadful and I'm not sure I can carry on with it..... :banghead:

Susie,

Don't dump the Gabapentin. I had the same and it lasted about five six weeks until I got used with it. It has almost eradicated the stabbing nerve pains I was having. Good Luck!
Sorry to be on such a downer
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Re: Losing my mind ......

Postby animalhouse » Thu Nov 03, 2011 3:23 pm

can i ask what your cps is like as i have pains in both my wrists following a car crash when my wrists were resting on steering wheel. i have always assumed it was impact of that as hurt ever since. the pain in on the edge of the hand at the base under little finger not the thumb side, and where it meets tip of ulna. but is on both sides.

i prod and pull as wondererd if there was dislocation etc.

anyway had injections in them twice and cant remember if it helped as that was in early days, went back to a new dr a year down the line and he said they don;t like to keep doing them.

how did you guys get referred for nerve test please? and who should i ask to be referred to - i have seen a rhuemy tiwce, but because i changed drs a few months agao i asked him to refer to new rheummy in new area, and he wants ME to chase my old notes up first then will think about it@@@

i was so fed up of drs apt, hydro, physio at the time i just left it for a few months and just maintained contact with him for repeat prescripts. so need to get strong to fight the battle again round 2 and another year down the line@

so sorry, not sure if i am cps (in both) or what my pain is just doing MORE research.


thanks guys :wave:
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Re: Losing my mind ......

Postby busy mummy » Thu Nov 03, 2011 3:43 pm

Hi Animalhouse

Keep pushing your docs for an answer, but to me it sounds more like tendinitis than carpal tunel.

With CT you would experience pins and needles and usually loss of sensation in the thumb, forefinger and middle finger,this is because the median nerve that runs down you arm is squished at the point of the wrist, the pain also shoots through the hand and up the forearm towards the elbow (which is really :puke: ). Usually also is loss of strength in the hand and painful 'locking' of the fingers if held in one position for any time (I havent been able to use an umberella for years, that also makes the pain :puke: )

With you saying the pain is localised I would be more tempted to think that the problem is with the tissues in that area being damaged or still healing after your bump. I was in a smash about 9 years ago, the passenger door was crushed in to my arm and I had tendinitis in my shoulder and upper arm for several years afterward, it felt more like a migraine, not at all like CT.

Hope you find an answer soon, there is nothing worse than having problems using your hands, I found it very depressing, it felt as though my humanity was being taken away.

Sarah x
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Re: Losing my mind ......

Postby sweetleaf2 » Sat Nov 19, 2011 5:17 pm

animalhouse wrote:can i ask what your cps is like as i have pains in both my wrists following a car crash when my wrists were resting on steering wheel. i have always assumed it was impact of that as hurt ever since. the pain in on the edge of the hand at the base under little finger not the thumb side, and where it meets tip of ulna. but is on both sides.

i prod and pull as wondererd if there was dislocation etc.

anyway had injections in them twice and cant remember if it helped as that was in early days, went back to a new dr a year down the line and he said they don;t like to keep doing them.

how did you guys get referred for nerve test please? and who should i ask to be referred to - i have seen a rhuemy tiwce, but because i changed drs a few months agao i asked him to refer to new rheummy in new area, and he wants ME to chase my old notes up first then will think about it@@@

i was so fed up of drs apt, hydro, physio at the time i just left it for a few months and just maintained contact with him for repeat prescripts. so need to get strong to fight the battle again round 2 and another year down the line@

so sorry, not sure if i am cps (in both) or what my pain is just doing MORE research.


thanks guys :wave:

Your problem could also be caused by compression of the cervical spinal vertebrae which is what my hand pain turned out to be It was also in the smallest fingers of my hand, although only in the right. I was told it was caused by nerve compression bue to spondylosis, but they said they see a lot of it due to car accidents, I went through a lot of tests before my GP sent me for x-rays on my neck and back.
Have you had x-rays to check if your neck was damaged?
Hope you feel better soon.
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Re: Losing my mind ......

Postby animalhouse » Mon Nov 21, 2011 2:44 pm

no task which really pi :swear1: :swear1: e off , they have just given me endless painkillers and labelled me fibro.

my lower back is bad so that makes sense and i also believe i have suffered sciatica and pains in buttoks and down legs. etc when walking.

drs are such a waste.

i have moved and cant even get new one to refer me back to rheumy he wants me to get copy of old notes first/likes its my job.

cant be :swear1: to go just keep popping pills - i am having a few months of being a fulltime patient what with dla and esa tribunals i have been through this year might start hassling again when i have had a few weeks off the fight and oh gets over this flu - now he knows how i feel, he has been quite bad for past 3 weeks for a flu, but no worse than me on a really bad day :crazy:

will look into that and go back as i driven a few times this week as oh ill and normaly drives adn my wrists are killing me.
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