Burning in spine

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Burning in spine

Postby Angel777 » Fri Sep 30, 2011 2:45 pm

Does anyone else get this, a burning sensation in the spine from top to bottom in waves , it seems to go with a flare, then the bladder and bowel start , I have not had this before and wondered if its all connected, well it must be because the other symptoms follow . I got up feeling fine today , slept quite well for a change and was ok , then suddenly around mid morning it just started , this is the second time it has happened now , never had this burning before . Any ideas anyone ?
Thanks
Juliana xxx
Diagnosed with FM 2007 /Also have Osteoarthritis which I have had for many years .
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Re: Burning in spine

Postby shazq » Fri Sep 30, 2011 6:22 pm

Hi Juliana

Sorry i have never experienced that before. :dunno: Maybe someone else will be able to help. :hugs:
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Re: Burning in spine

Postby FluppyPuffy » Fri Sep 30, 2011 6:36 pm

Sorry Juliana, altho I have a lot of pain in my spine, I've not experienced the type of thing you're having :? :? :dunno: :dunno:

With you saying it has happened once before, it might be worth having it checked, if only for your own peace of mind :hugs:
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Re: Burning in spine

Postby Angel777 » Fri Sep 30, 2011 7:52 pm

Thanks , I realised that it was the beginning of a flare that had been niggling in one way or another since midday . I just got hotter and hotter and then the irritable bladder and bowel kicked in . It was such a burning heat but just getting hotter that felt like burning and then I was colder in between , I have had symptoms go but this is the temperature gauge one now kicked in , I took my temperature 36.3 ! it is always low now and has been since developing fibro fully . We need a new gauge on our boat as it reads hot but the engine isn't so I think I will ask hubby to get me a new sender unit !!!!
Whenever I find I have had a couple of reasonable days and just start thinking 'Well maybe I could now do this' Fibro seems to come back and remind me , 'Well maybe not'!
So I think I will stick to the quiet life now , knitting, comedy programmes , relaxing CDs and my pets and just 'be' and not think about anything else .
I have a lot of pen and efriends (as cannot get out these days to socialise ) They are all animal lovers and as crazy as me with stickers and confetti in our letters , I think we all have something wrong with us in one way or another but we make our letters positive and fun , whilst being there for each other with love and understanding like we are on here .
This forum is such a blessing as it stops the anxieties so much . I have found CBT has helped in that way too . I find the Citalopram does help with the depression so that is one step , but the other ever changing symptoms still come don't they . Perhaps one day they will find one pill to help us in total .
Now at least I know , having researched on here re the hot spells etc. that its what I am now experiencing .
Thanks
Love angelx
Diagnosed with FM 2007 /Also have Osteoarthritis which I have had for many years .
Looking to connect with fellow FM people near me as well as making friends and having support from this forum .
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Re: Burning in spine

Postby FluppyPuffy » Fri Sep 30, 2011 8:58 pm

Fibro just loves to lull you into that little niche where you dare to think that things might not be quite as bad, then it jumps back out at you and bites you in the bum :shock: :twisted: :twisted: I'm now with you in trying to live the quiet life, and taking everything as it come :D :D :D

The letter to and from your pen and efriends sound brilliant :clap: :clap: :clap: A surprise every time you open an envelope :yikes: :yikes: :shock: :shock: Sounds a good way to keep bringing a bit of :lol: :lol: :lol: into the day :blowkiss: :blowkiss:

It does sound like you've identified a potential indicator for your flares. It would be nice if it appeared early enough for you to be able to do something to make things as easy to deal with as you can, or if it shows a pattern to your flares that enables you to minimise it's effects to some extent :fingerscrossed: :fingerscrossed:

I've found elements of CBT helpful as well. I've found problem solving can make a difference to how I approach things, and these days have the various stages of problems running thru my head. It just gets a bit confusing when there are several things running thru and they all start to mix together :facepalm: :facepalm: :facepalm: And it definitely helps being able to share things and find out about what may be a worrying issue. All these things help to make living with this condition just that tiny bit less :crazy: :crazy: :crazy: :crazy: :crazy:
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Re: Burning in spine

Postby loubie » Fri Sep 30, 2011 10:29 pm

hi angel :wave:
i have a burning in my back, the bottom of my spine will go red hot then spread up my back
before my IBS has me running to the loo :oops: well shuffling :roll:

i have not asked the doc, so may be if i remember next visit i will ask about it
have just been to docs today :facepalm: :lol:

i am also doing the sit back and relax approach as nothing else works
so i just plod on but very slowly :roll:
loubie xx

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Re: Burning in spine

Postby denys » Fri Sep 30, 2011 10:41 pm

I get hot spots on my spine too not top to bottom but just in places never have mentioned it to the doc either must remember to ask
Denys

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