Hand Problems

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

Moderators: perseus, *Lisa*, FluppyPuffy

Hand Problems

Postby Ldyalb » Wed Feb 15, 2012 6:14 pm

I have a feeling this may become long, apologies in advance - will try and be as brief as possible.

Basically I've been experiencing a lot of pain and stiffness in my finger joints, primarily the knuckles connecting them to my hands, and the middle knuckles. The knuckles just below my finger nails have largely been fine. Most mornings my fingers are swollen around the middle knuckle area. Swelling varies from mild swelling, to the extent where I cannot wear my rings. The ring I normally wear was given to me when I was 10/11. I am now 23 and have never had any problems wearing that ring until the last 6 months or so. I wear it on the engagement finger, but on my right hand, rather than my left.

I told my Rheumy about it on 10 November '11. She said that I needed to have scans taken of them in a month if they didn't approve. My GP refused :twisted: despite knowing the Rheumy recommended it (she also wrote to him). I asked again in early Jan - still no. Then my little finger on my right hand swelled up, I now have a bony growth on the inside of the middle knuckle. It was immensely painful when it arrived. By this point in the mornings I was sometimes unable to have a cup of tea, as I couldn't grip the handle. I showed my GP the knuckle and he still refused to scan it, he said it was unlikely to be arthritis as my fingers joints are quite mobile. He wants to see how it goes.

Which is a fair point except I would imagine the finger joints of most hypermobile 23 year olds would be the same. And hypermobility often causes early arthritis. And my Mum had arthritis in her fingers from the age of 24. I'm 24 in less than 4 months now. And the Rheumy was concerned!

The fingers do vary, sometimes for 2-3 mornings it'll be fine, but then it'll flare up for a week or two. Yesterday they suddenly swelled again after about 4 days off. I noticed it in the evening as a very painful rash appeared over the knuckles on my right hand, it took about an hour to subside. I also have some really nasty painful lumps all over the side of my tongue (although that may be related to my current sore throat which my boyfriend has given me). My hand was so bad yesterday that I couldn't type when it was red. I couldn't even use the mouse, had to try with my left hand which didn't work at all. It was also really hot, my hands were cold but the rash was hot. My fingers are often hot in the mornings and late at night before bed (I've taken to lying them on the cold side of the pillow for relief).

I also have bony lumps on my middle knuckle joints which really hurt when I press down on them. The worst is on my wedding ring finger but also on the first finger of both hands and the right handed engagement finger. All knuckles have them, but those 4 are the worst.

I'm seeing a new GP tomorrow, my Counsellor recommended him to me, she said he never hesitates to run tests, refer to specialists etc. It's been over 3 months now since I saw the Rheumy. I'm hoping this new GP will help me, I've waited 3 weeks to see him as he's the most popular at my practice.

But has anyone else experienced anything like this before? I just know that something is wrong, whether arthritis, hypermobility, tendonitis, even a skin problem (in the last few weeks pits (little indentations) have appeared in my nails). I don't believe that this is Fibro - but Fibro can surprise us sometimes! I'm going to sort out getting some pics up in the next 10 mins or so. But if anyone else has experienced this I'd really like to know, I'm fed up of it now :(
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Ldyalb » Wed Feb 15, 2012 6:35 pm

http://s1177.photobucket.com/albums/x35 ... 8-Copy.jpg

Pics of finger, rash and tongue. Apologies for the tongue, it's a bit icky. And also, the rash was worse in reality - it didn't photograph well as it was late and the lights were on, plus the flash which makes it look paler than it was. It was very bright red, felt like a burn.

And also - apologies for the manky nail varnish. That photo was taken shortly before it was removed :oops:
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Adele » Wed Feb 15, 2012 7:08 pm

snap! i often get the scarlet rash across my knuckles and always thought it was eczema. i have bony growths on the joints of my little fingers and my tongue looks like that most days. i clench my jaw and grind my teeth so i've always put it down to that. my thumb joints are swollen and very painful, i can hardly use my hands and i have a sore rash on both cheeks and over my nose. i don't know what is going on.

all my joints are agony and feel swollen and stiff and i can't sleep or walk about the house now. typing is so hard and slow.....
Adele
UKFM Member
 
Posts: 732
Joined: Mon Apr 05, 2010 7:25 pm

Re: Hand Problems

Postby Ldyalb » Wed Feb 15, 2012 7:31 pm

I have the face rash too - in my case it's Rosacea. It can be an indicator for Lupus so it's always best to make sure your GP knows that you get it, just to be on the safe side. Rosacea is pretty common, it also causes a lot of eye problems such as inflammation of the eyelids (blepharitis), redness and itching and styes. I get them all loads. yay.

I'm glad I'm not the only one. My tongue is ridiculously sore. I often get mouth ulcers, as do all the women on Mum's side of the family, but never had something like these before :( bonjela has helped on one side, but not the other.
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Adele » Wed Feb 15, 2012 7:53 pm

mouth ulcers can be a sign of underlying condition as well as trauma to the area. i was plagued with dozens at a time when i was young but they went when i found out i had coeliac. your vegetarian diet may be lacking in viamin B12 or iron which can cause the ulcers.
a link to possible causes: http://www.nhs.uk/Conditions/Mouth-ulce ... auses.aspx

i've researched rosacea before for a friend and i really don't think it's that and luckily i don't have any of the eye problems. i know lupus is a possibility and i'm seeing my gp on tuesday. my aunt has it badly but like the rest of my family i haven't seen her since i was a child. i've been tested for RA because of the swelling and joint pain and stiffness in my hands and it was negative but that was about 3 years ago. i haven't slept for more than 2 hours at a time because of my joint pain particularly my hips. my elbows have only stiffened and swelled up today.

let me know please when you get an answer about your hands. remember that fms affects tendons and ligaments as well but who knows whats going on. i am having my first session of reflexology at home on friday so something to look forward to. i am very receptive to it so can't wait.

take care sweetie, A x
Adele
UKFM Member
 
Posts: 732
Joined: Mon Apr 05, 2010 7:25 pm

Re: Hand Problems

Postby fibro-lu » Wed Feb 15, 2012 8:15 pm

hi

also have the painful fingers and thumbs
the bases and the middle joints
started on the little ones and moved to ring fingers and then to middle fingers,
had injury at thumbs and since then thumbs are bad
index fingers started
also my toes
GP thought it is not RA etc
last blood test said rheuma factor and a number, but GP dismissed it
awaitng new blood results
not sure if rheuma factor will be in it (foggy when gp agreed to test)
my fingers do swell but mostly in summer, in colder weather just slightly

found those blisters on the side of my tongue
thought I did bit myself or something

do the same with my hands during the night
and put them under or in between two cold pillows or on the cold wall

when stressed I also do get those patches on my fingers
they get try and peel off, another gp said this would be ecxema

don't have anything in my face (except a little bit between my eye brows)

all the best
lu
all the best :cow-wave: Lu
Mind over Matter: in mind I'm Wonderwoman - in matter, well, - don't mind, doesn't matter
User avatar
fibro-lu
UKFM Regular
 
Posts: 1279
Joined: Wed Dec 15, 2010 12:07 pm

Re: Hand Problems

Postby Ldyalb » Wed Feb 15, 2012 9:06 pm

I've had the Ulcers about 20 years and I've only been a veggie for 9 months so hopefully there's no deficiencies :fingerscrossed: I had my iron checked recently and it was fine but I will ask the Dr if it's worth re-checking my vitamins. I imagine he'll order a blood test anyway for inflammation so they may as well screen my Iron and B12 levels at the same time. I like to get my money's worth whenever they take my blood :lol:

I've had no appetite for a while now and have been eating much less than normal, I think it may be a Fluoxetine side effect but I'll let him know. That might not be helping as my diet currently consists pretty much of apples, toast and cereal plus whatever I have for dinner that day. But over the weekend my appetite returned (partially fuelled by the promise of Nandos, Saag Paneer, Stir Fry and a fabulous roast dinner at my boyfriend's. Plus he's just lost half a stone, he managed to get his weight up to 8.5 and now he's slid down to 8 again so we're trying to fatten him up. And it's hard not to eat when he's tucking in :oops:)

When I initially became ill with Fibro I was tested for RA (again, was also tested in my teens) and I was tested for Lupus due to the Rosacea mimicking the malar rash. It could be something simple like tendonitis but I've been feeling so rough, and I've had tendonitis before (that's why they screened me for RA at 15) and the pains are different to the ones I had back then.

Fibro-lu - my toes have started too. Mainly the big toes. I always get painful toes when I'm squeamish, it's only recently I've been able to watch childbirth videos without getting sore toes. My toes are much more hypermobile than my fingers but they don't seem swollen. But then again I haven't seen them for days except when getting dressed as it's too cold for bare feet atm! Will have to inspect them before bed.

I'll update tomorrow, luckily I have an early appointment so hopefully I'll know more by mid-morning. Annoyingly I'm too unwell to shower or bath so will have to go looking minging tomorrow. I must have overdone things at the weekend which is why I'm worse atm, in a horrendous flare. I'm gutted - I treated myself to lots of lovely bath goodies from Lush to celebrate my ESA victory and now I'm unable to enjoy them :facepalm:
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Roseofsharon » Wed Feb 15, 2012 10:47 pm

Hi I too have hypermobility. I have had the redness come and go on my hands so many times over the years (and ignored it everytime). I have also had the nodules on my fingers for years I used to have one on each of my ring fingers but they seem to have disappeared over the years, leaving only the one o my middle finger of my left hand. I was tested last year/ year and a half for absolutely everything, with nothing showing up. Whatever was causing it has calmed down for me, however last year I was diagnosed with Raynaud's phenomena in my hands when they started going blue, which kinda sucks really. I doubt that it was connected, but could be wrong.

My cheeks are regularly red. I don't have lupus (was checked for that last year). But I must confess to preferring to use foundation (when I can find one that doesn't give me spots) to cover it up, as it is so high that rather than looking healthy I look more like a clown.

It's worth talking to your GP to find out what is causing it though as what might be causing mine, might not be the same as what might be causing yours.
Roseofsharon
UKFM Member
 
Posts: 577
Joined: Tue Feb 01, 2011 9:09 pm
Location: Medway

Re: Hand Problems

Postby Ldyalb » Wed Feb 15, 2012 11:28 pm

I've been using foundation for about 6 years now. Initially I just used concealer but it sits so much better on foundation than bare skin..

The best thing I've found for it is this:

https://www.lush.co.uk/product/448/Ultr ... eanser-45g

I started using it in 2009 when I worked for Lush. I didn't suffer from Eczema or Rosacea during that time (it initially started in 2003). I've had flare ups of both since I stopped using it. I went back to it shortly before Christmas. Within days my skin was no longer peeling off my face and was less red. I had about a week of spots a few weeks in as all the icky stuff came out of my pores. I haven't had a single spot all year so far :-D one of my best friends uses it for her incredibly oily skin, I use it for my incredibly dry skin. It works well for any skin type. It's a bit pricey but lasts ages (you really do only need a teeny amount each time) - it removes waterproof mascara but lasts longer if you remove your eye make-up first and then cleanse your face. I use E45 lotion afterwards. If you live near a Lush pop in and ask for a skincare consultation, you'll probably be able to get a free sample of it to try.

I have been intrigued by Raynaud's. I get extremely cold hands and feet. Sometimes they do go blue beneath the nail. But my Rheumy said it's only Raynaud's if the whole tip of the toe/finger goes white or blue. That's only happened to me once, on my right foot's middle toe. Either way - my hands and feet need to be well wrapped up, especially my feet. My boyfriend has it, he doesn't help himself though - whilst I'm wearing 2 pairs of thick tights and additional pairs of socks, he's wearing one pair with holes in :facepalm:

At least I can see the new GP tomorrow, I just don't understand WHY the other one refused to send me for the scan. The Rheumy said I needed one. The Rheumy is more qualified to assess Rheumatic problems than a GP. Yet he overrides her advice! :-x
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Adele » Wed Feb 15, 2012 11:56 pm

@ ldyalb: prozac is well known to be an appetite suppressant and is used in the treatment of bulimia and binge eating disorder to regulate eating. i used to take it but i lost too much weight on it.

good night x
Adele
UKFM Member
 
Posts: 732
Joined: Mon Apr 05, 2010 7:25 pm

Re: Hand Problems

Postby Ldyalb » Thu Feb 16, 2012 12:36 am

Argh my reply got deleted as my internet crashed. I didn't know Prozac and Fluoxetine were the same thing! But that does explain the reduced apetite. It's definitely helping my mood but I will now start to keep an eye on my weight. I'm having a fat day today so I don't feel I've lost any, but that could just be my horrible flare, period starting and fat day talking to me, not the actuality. Now to scare my boyfriend on Saturday by asking him if I look thinner or not :lol: I gave up scales a very long time ago. I just go by my clothes now, scales depress me. Even when I was a size 8 I weighed loads for a short woman. Scales are depressing things :yikes:

I've not had the rash tonight which is good as it was very painful yesterday. I'll update in the morning when I've seen the GP :fingerscrossed: he takes me seriously! x
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Roseofsharon » Thu Feb 16, 2012 1:23 am

Thanks for the link Ldyalb. That cleanser looks really good. I had a few expenses this week, but maybe in two weeks time I'll go and get some. I'm impressed, you don't get many cleansers on the market free from Carcinogens and so full of natural oils.

I too don't help myself really with the raynaud's I can't wear tights as they irritate my legs like nothing else (I'll occasionally wear a pair for special occasional but they come off as soon as I get home). I live in my jeans now as their the warmest thing I have that keeps my legs warm but don't irritate my legs. I also cannot bear to have anything on my feet so my socks come off as soon as I get home as well as my shoes so over this period of cold my feet have been almost permanently blue, and a little painful. However I have been under blankets most of the time which has eased my feet, but not entirely.
Roseofsharon
UKFM Member
 
Posts: 577
Joined: Tue Feb 01, 2011 9:09 pm
Location: Medway

Re: Hand Problems

Postby Ldyalb » Thu Feb 16, 2012 11:35 am

My boyfriend's GP at Uni told him to heat a microwaveable heat pack when he was sat at his desk revising and to rest his feet on it. My boyfriend's was triggered as a side effect of medication and because he was revising about 10 hours a day (this is why he got a 1st and I didn't lol).I hate wearing socks too, hate the feel of them. I used to hate tights as a child but the alternative is to wear trousers which I haven't worn since I was 8 so tights it is. (I look awful in trousers, I'm too fat around the bum for them). But at night I find a microwavable heat pack means I can usually sleep bare footed and happy if I snuggle it between my feet :)

It is an excellent cleanser. Their stuff is pricey but very good. I wouldn't bother with their moisturisers, they're excellent but expensive - E45 lotion or a basic oil of olay type will do the same job. But the cleansers and face masks are awesome. If you suffer from Eczema on the scalp (dandruff) then their hair care stuff is excellent, it's the only thing I've found which gets rid of it. After years of suffering I tried their anti-dandruff shampoo and within a week it was gone :mrgreen: I just couldn't believe it!

Just realised I actually came on to update :facepalm:

I saw the new GP, very pleased. He thinks I have Psoriasis and Psoriatic Arthritis due to the pits in my nails. He examined my right ankle's Eczema and said he thinks it's actually Psoriasis but could be Eczema. He's not doing the scans as he said Psoriatic Arthritis won't show up, he said it's a clinical diagnosis based on symptoms and observations of hands and nails. So he's referring me to my third Rheumatologist to get a diagnosis. He said if the Rheumy needs to examine me further then they can send me for the appropriate blood tests and X rays etc.

So now just got to wait and see my new Rheumy.
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Hand Problems

Postby Roseofsharon » Thu Feb 16, 2012 1:28 pm

:fingerscrossed: Your new Rheumy gets the right diagnosis this time. Glad your Gp is on the ball.
Roseofsharon
UKFM Member
 
Posts: 577
Joined: Tue Feb 01, 2011 9:09 pm
Location: Medway

Re: Hand Problems

Postby Ldyalb » Thu Feb 16, 2012 6:44 pm

Yeah it's about time one of them was! I'm pleased he's taking me seriously, I keep questioning myself and wondering if my fingers are in fact fat, as opposed to swollen. But my parents say they've noticed they're swollen and my GP today said he could see the swelling. (As I'm Dyspraxic I can't judge sizes and distances easily so I don't trust my vision as a general rule). But I found a photo I took of my hands in early Spring 2008 (because I had beautiful finger nails at that point and wanted to preserve the memory of them before one broke) and my fingers were definitely thinner then and at that time I wasn't thinner generally than I am now, if anything I was a bit larger weight wise.

I just hope I don't have to wait ages to see the new Rheumy now!
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Next

Return to Associated and Other Health Problems

Who is online

Users browsing this forum: No registered users and 1 guest

cron