Temporomandibular Joint Disorder

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Temporomandibular Joint Disorder

Postby Ldyalb » Mon Mar 19, 2012 7:15 pm

Got diagnosed with this today (yay - another medical prob!).

GP has banned me from eating toast and apples (which I have been surviving on for the last few months. Great. Mind you - eating yoghurt hurts atm so I'm pretty much up the proverbial creek whatever I do). Unfortunately I treated myself to a nice bar of peanut brittle today. My Mum's already eyeing it up now I can't eat it... :cry: :twisted:

He's told me I need to see my dentist to get something fitted to wear in my teeth at night to stop my teeth from grinding in my sleep. Has anyone else had this done and had success with it? It hurts constantly, it hurts to eat, talk and laugh - so I'm really hoping my dentist can help fix it.

GP has also given me a new anti inflammatory to take. He said this should help the jaw and help my other joints (I'm waiting to see Rheumy number 3 about suspected inflammatory arthritis). My GP said the words no-one wants to hear 'well there's definitely something else wrong with you'. It never ends!
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Temporomandibular Joint Disorder

Postby denys » Mon Mar 19, 2012 11:14 pm

Yes had a guard made and bit through it couldnt stand it on my teeth are in a right mess through grinding :dunno:
Denys

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Re: Temporomandibular Joint Disorder

Postby Adele » Mon Mar 19, 2012 11:21 pm

i have TMJD as well. what i've found that helps are anti-inflammatories, ibuprofen or diclofenac gel, heat pads. and muscle relaxants. i also cut food up small and i've given up chewing gum. i'm considering going back to my chiropractor for treatment. xxx
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Re: Temporomandibular Joint Disorder

Postby Ldyalb » Tue Mar 20, 2012 1:01 am

I bought loads of chewing gum recently, and peanut brittle :( I nearly bought my fave Thorntons toffee the other day - glad I didn't now!

I've had jaw probs before - when I had my braces my Orthodontist wanted to break my jaw to reset it and correct my overbite. It would have hospitalised me for a month during my A2 levels so we decided for the standard train tracks with one adult tooth removed. The Orthodontist said I had one of the smallest jaws he'd ever seen.

I've taken my first new anti inflam - Meloxicam - tonight. My GP thinks it'll help the TMJ and the suspected arthritis. I hope so - it's driving me nuts :crazy: :crazy: :crazy: . I'll ask my pharmacist about topical gels, can't use Ibuprofen as I'm allergic. Gives me heart issues which I'm keen to avoid :-)

I didn't think of applying a heat pack so will try that. Dad cooked my pasta extra soft today (I love everything al dente unfortunately) which helped a bit. Bf suggested innocent smoothies to help me get my 5 a day (don't like citrus fruits and bananas, normally get mine from berries and apples but the latter is banned). Not a massive fan of the smoothies though either. I feel like I have my brace back in with hard foods off the menu :lol:

I think I've been lucky that this is pretty recent, teeth seem in pretty good nick generally. I saw the dentist late last year and they were fine then so hopefully I've not done them too much damage :fingerscrossed:. I had to sleep in a retainer for a year or two after my brace came off, was irritating but hopefully it'll stand me in good stead with a guard :-)
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Temporomandibular Joint Disorder

Postby Roseofsharon » Tue Mar 20, 2012 10:10 pm

so sorry to hear that you have been diagnosed with yet another thing! I don't have TMJ, but I was diagnosed with Trigeminal Neuralgia back in November last year. The pain was excruciating and I was getting to the point where I could hardly eat anything with the pain, so I sympathise entirely!!! Hopefully your new meds, and the guard for at night, you should be feeling somewhat better (or as better as you can) in no time.
I'm sending you plenty of :hugs: and lots and lots of soft [chocolate] [chocolate].
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Re: Temporomandibular Joint Disorder

Postby Ldyalb » Wed Mar 21, 2012 10:54 am

The new meds are helping my jaw. I can eat a bit longer before the pain gets bad now which is great :-D Now I just have to remember to arrange to see the Dentist!

They're not helping my hands though. The GP said to take them at night as my problems are mainly when I wake up. The first night I took at 10 but had to force myself to eat a banana to go with them. Not aided by the fact I don't like bananas much. So last night I took at 7pm with my tea. Fingers are massive today. And it seems to have spread to my left hip.

Looks like I'm falling apart lol. My boyfriend's been joking that every time I go to the Drs there seems to be something else wrong. If I get much more I reckon I'll be able to practice medicine :-P
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Temporomandibular Joint Disorder

Postby Adele » Wed Mar 21, 2012 4:32 pm

hi sweetie, have a word with a pharmacist about the ibuprofen or dicofenac gel. as it's applied topically only about 5% of the drug enters the blood stream and has to be metabolised by the liver. i was advised to use it when i was taking lithium as you can't take any anti-inflammatories with it.

i know the stage you are at right now. every time you go to see your gp or any other health care professional you come out with another label, more meds, more referals. there was a point when i became severely depressed because in one week i'd been to see 6 different bods at 4 hospitals and each one wanted more tests and referals. that week my gp alone diagnosed 4 new conditions in one appointment including severe M.E.

try and put the medical stuff out of your mind, when you can, and watch something funny on tv or get your bf to give you a massage. it is easy to become consumed with it all and become depressed. things will improve when the doctors decide on a firm diagnosis and you can then learn about your condition(s) and live your life around them.

i am currently making a list of things i want to do; from going to the cinema to visiting the Baltics. i haven't looked forward in a long time and there is no reason not to. the list is things i want to do, not what i can do. i'll overcome the hurdles when i get to them. white water rafting may not happen :lol: but i'll still add it.

have you thought at all about getting your Master's? you'd get loads of help and it would be great for your CV.
email/pm me if you ever want to chat, gentle hugs, A x
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Re: Temporomandibular Joint Disorder

Postby Ldyalb » Wed Mar 21, 2012 5:05 pm

My Mum had a gel which she used for her back a while ago (she has Osteoarthritis and Spondylosis). My back's increasingly stiff and sore and my hip started to play up this morning. Normally it's playing up in a 'i'm going to dislocate myself on you in a minute' way. Today it went all stiff. Oh joy, it's spreading lol. I'll speak to the Pharmacist about the gels - makes sense for a joint like the jaw ones as it's so small. I just need something to target it specifically.

I'm in one of those funny moods where I'm finding it all a bit funny. I'm kind of intrigued as to what my body will do next. If my boyfriend and I were the gambling type we'd start drawing lots as to what illness will come next, I know about more problems than he does so I reckon I'd nab some money off him :-P

One of the things I will do when I see my new WRAG advisor person at the Job Centre (the last one I saw was horrible, she basically said that anyone could get a Dr to diagnose them with Fibro if they wanted). I have to wait a while as I was sent to a JC almost an hour away. There's one nearer me but it's in a different county (I live on the border of 3 counties) so I had to go to one in my county first. But luckily they've referred me to the one 30 mins away to make life a bit easier for me. But when I see the new person I will ask about my study options, to see what help would be available.

I loved Geography at school but did a Politics degree. As I was in the first year to pay £3k a year in 2006 when I went to Uni I decided I wasn't paying £9k to study something they taught me at school. I always wanted to do a Geography degree for fun though through the OU. I think something like that would be better - no lectures to attend and I can really do things at my own pace.

Props for dreaming about white water rafting. I'm a massive whimp, don't do heights or anything remotely scary. The scariest thing I've done is climb some massive tower in Oxford with my old Uni housemate (who is coming to stay next month, I haven't seen her since May 2010). She spoke to the people in the building, explained I had Dyspraxia and had issues with stairs (I'm terrified of them). They agreed to let me go up before paying, in case I had to come back down before getting to the top. I managed to get to the top, E had to take my pictures for me as I was too scared to leave the wall - the ledge was narrow. I had to go down on my bum (E very kindly took some wonderfully attractive pictures of me going down the stairs on my bum. She also explained to some American Tourists who thought it was hilarious that I had special needs, but was challenging myself. There was an incident where I cried on some metal fire escape stairs with gaps between them as I couldn't go down them (my body physically wouldn't move). Ended up doing it with my eyes closed, clinging to E for dear life lol.

But when I got down I got a round of applause, the people who worked at the Church had watched the entire thing on CCTV, as had a large crowd of tourists :oops: :oops: :oops:

I know what I really, really want to do - see the Aurora Borealis (yes, I'm a Pullman's Dark Materials Fan). There's loads of places I want to visit, but the downside of a Politics degree is that most of them are in countries I'm too scared to set foot in. But I'm safe with Norway - my brother and niece live there. I also want to go to Iceland because it's geographically awesome. About 96% of their energy comes from Iceland itself.

And marry Colin Morgan, although let's not tell the bf about that one ;-) :-P
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Temporomandibular Joint Disorder

Postby Roseofsharon » Wed Mar 21, 2012 9:00 pm

Ldyalb think not about those who applauded or the embarrassment be proud of yourself for doing it!!!

The OU is great I'm now starting towards my BA in Business and Accounting (yeah better late than never I suppose), be aware though that although there's no lesson's in the traditional go to college and sit in a classroom, there are some courses (I don't know which they are) which have online 'classes' i.e it's kinda like a webinar kind of thing from what I can find out. I don't have it on the course I'm doing atm, so haven't had to use it.

Call me ignorant, but who's Colin Morgan?

Glad though that your meds are starting to kick in for you. Oh and btw my fingers are also swollen at the moment, and I don't have RA (that was ruled out in the many many blood tests I have had).
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Re: Temporomandibular Joint Disorder

Postby Ldyalb » Wed Mar 21, 2012 11:13 pm

http://www.fanpop.com/spots/colin-morga ... ever-photo

He's 'Merlin' from BBC's Merlin. He's all Irish and lovely. Although he does a cracking English accent for Merlin.

http://www.youtube.com/watch?v=5k0DinFR5rw

GP thinks it's Psoriatic Arthritis as my nails are pitted and look like they're starting to detach. It's quite rare with Psoriasis alone and 80% of people with PA have nail involvement. I'm about 5 weeks into a 10 week wait to see Rheumy number 3 so hopefully I'll hear soon either way and know for sure. Pain in the bottom it is.

I have heard some OU courses do have e classes. As long as no-one has to see me without make-up on, in my pjs and with dishevelled hair then it's ok :-D
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Temporomandibular Joint Disorder

Postby donna-marie » Tue Apr 24, 2012 8:37 am

I was diagnosed with TMJD last summer. I have been using a mouth guard at night, and while it doesnt help with the jaw pain at least it stops my teeth from falling apart. My teeth grinding at night has caused my 4 front lower teeth to break, so my dentist has had to repair them, they still look awful as far as I'm concerned. So do go to your dentist and get a mouth guard then at least your teeth will be protected.
Having TMJD has made my life awful at times; I used to love singing now I can't manage 1 song without my whole face hurting; I can't even snog my boyfriend without experiencing some pain.
It might be worth asking your GP to refer you to physiotherapist who is experienced in dealing with TMJD. My gp has refered me to the Musclularskeletal hub at The Nuffield Orthapedic hospital in Oxford. They have a specialist physio who will be able to do some manipulative work on my jaw, as well as showing me some facial excercises and self massage techniques. I am hoping it makes some improvement to the pain I experience.
Good luck with it, but please stop eating the peanut brittle, your jaw will thank you for it.
Gentle hugs xxxx
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Re: Temporomandibular Joint Disorder

Postby Ldyalb » Tue Apr 24, 2012 1:59 pm

I didn't eat the peanut brittle in the end - Dad scoffed it much to my chagrin. He owes me a bar of peanut brittle when I'm better lol.

Someone suggested to me that I may like peanut butter as I love peanuts and peanut brittle. Unfortunately when I was 3 my brother and his girlfriend lived with us for a while. She loved peanut butter, but my brother, K, hated it. So he taught me to pull a face and say 'eurgh, peanut butter' every time she ate it. So because of that I've never managed to bring myself to try peanut butter because I associate it with 'eurgh'.

I need to sort the dentist issue out as it's flaring up a bit again. I'm living off hummus and enchiladas. My parents have just left our rubbish NHS dentist for a private practice in another town. It's very good so I'm unsure of what to do, get the treatment free on the NHS (on income based ESA so get free medicine etc) or pay for a decent dentist to look at it. I'll have to ring the private practice and see how much they'd charge me.

If it's not one thing it's another :roll:
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Temporomandibular Joint Disorder

Postby busy mummy » Wed Apr 25, 2012 6:24 pm

How bizzare!!

I have just come back from my dentist who has diagnosed me with TMJD.

Last time I saw him we talked about me having a mouthguard as I grind my teeth a lot. He examined the muscles of my lower and upper jaw and confirmed I have got quite a severe case. Not had any locking up as yet but he said that it wouldnt be long and that the guard would help prevent this. Had the impressions done today (most unpleasant) and my guard will be ready in two weeks. My dentist is a private practice so I was bracing myself for a big bill, he's only charging £48 which I thought was quite reasonable.

The other thing you said which struck me was that you have a very small jaw. I am the same, when I have x-rays at the dentist he has to use films for a seven year old!! Nothing else fits.

The more I learn about fibro the more convinced I am that it has 'genetic' factors. Not necessarily inherited, but in the way your genes make you, like hight, size of your frame, etc could make you more prone.

Anyhow I will let you know in two weeks how the thing works.

Sarah x
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