small nurve fibure neoropathy

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small nurve fibure neoropathy

Postby cassey1 » Wed May 02, 2012 11:44 pm

hi,all ever had stabbing pains that feel like some one is zapping ur feet with an electric cable?well mine started in my feet worked its way up the body.i do have fibro. but wanted to tellyou about snfn.it cannot be detected on any imaging machines mri. nurve conductions etc as the machinery cannot detect the small nurves so im told only the large nurves.well if you have 5 mins look it up if you like myself was having these strange pains with no diognoses it willbe worth looking into. it is only diognosed on history and symptoms
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Re: small nurve fibure neoropathy

Postby animalhouse » Tue May 08, 2012 8:28 am

somtimes it hurts just to put myfeet on the floor so not sure if that is what you mean.

will have a l.oook anyway as interesting to read up on new stuff.

how did they cmoe to diagnose this then when did you notice you had it.

take care :-)
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Re: small nurve fibure neoropathy

Postby cassey1 » Thu May 10, 2012 9:12 pm

hi, i have had every test i can think of to find out,what is wrong ,over a period of 5yrs it started in my foot,and over time esculated into the other foot, then into the leg's where the leg's would feel so heavy and tired. and all i could say was the top's of my leg's felt like a tight elastic band was pinching my skin.i had so many problem's that were creeping up on me, that is when a rhuotologist suggested fibro. i thought that was the end .then, my legs whent into spasm etc shakes etc. i was then refered to have a emg done where they test the nurves. the dr wanted to put needles into my feet to test the nurves, believe me the pain was unbarable. the dr sat back and said the large nurves were fine as the emg only detects the large nurves. he then added that he specialised in somthing calle small nurve neoropathy, he said mri etc cannot detect it, as the mri cannot detect small fibures only large.the only test is a muscle biopsy which proved positive. the sad thing is it starts in the feet and works it way up the body. mine now as got as faras the nurves inmy eyes hence why my writting isn't too good i hope you can understand, and good luck xx if i can help let me no.
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Re: small nurve fibure neoropathy

Postby cassey1 » Thu May 10, 2012 9:17 pm

meant to say only found out recent about the biopsy when i had it done.
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