Chronic Urticaria (Hives)

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Chronic Urticaria (Hives)

Postby *Lisa* » Fri May 04, 2012 8:07 pm

I have been diagnosed and suffering from a form of chronic urticaria called delayed pressure hives

I have been seeing a skin specialist and am currently trying different forms of anti-histamines to try to control or relieve symptoms but its not happening atm.

I have had various bloods done as chronic urticaria can be secondary to an auto-immune disorder, one linked is LUPUS. My ESR levels are raised but GP is certain its not that of Lupus and skin specialist says it could be secondary condition to Fibro & CFS.

Any pressure on the skin causes a reaction. I come up in huge whelts on the skin. It itches/burns causes deep muscle pain and when im severe i also suffer from fever/migraine added fatigue and pain and just all round yuk!! it puts me in my bed and i cannot wear clothes when i flare up as i get hypasensitive and cant wear any clothes touching that area.

I cant wear a bra as that causes a reaction and when i wear a belt that does to. Walkin causes my feet to react with the pressure and when i wake up my arms are covered as i tend to sleep with my arms leaning on each other.

If i wear a hair band or clip my scalp reacts and so on.....

trouble is i have reular intense trigger point therapy... pressure obviously is applyed and after my sessions the hives goes into overdrive :yikes: but i have to have my physio!! no way can i stop that :( so i have to put up with it. They say it should dissappear within 3-9 years.... but can come back when it likes. :facepalm:

In severe cases you can swell up in your throat or stomach :yikes: luckily so far its only been on my skin and not internal.

So... just wondering if there is any other fibros out there that have any form of chronic urticaria as iv now been told its secondary to fibro (am not sure myself :-? ) so am doing this topic just to see what replies i get.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Chronic Urticaria (Hives)

Postby Ldyalb » Fri May 04, 2012 8:32 pm

Ouch, sounds unpleasant, hope you find something which works soon.

Since I've had Fibro I've had skin issues in addition to the Eczema and Rosacea. I have been getting hives, but nowhere near as severe as yours sound.

I know you've probably tried loads of different lotions and potions but I will recommend this:

https://www.lush.co.uk/product/136/Drea ... ody-Lotion

I don't know whether it will work (to get rid of) with hives themselves, but it does cool sore, burning and itchy skin down no end. It's mega soothing. My skin responds well to it, especially when red and sore/itchy and when my skin doesn't like clothes being on it.

I thought would suggest as it may provide some relief for you externally whilst your meds etc are doing their job to fight it internally.
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Chronic Urticaria (Hives)

Postby *Lisa* » Fri May 04, 2012 8:43 pm

Thanks,

cooling cream sounds just what i need as the burning is awful and most people get told to have a cool shower yet with me having reynauds i cannot :roll: i may look into some cream thats simular (cheaper) when i next venture out.
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Re: Chronic Urticaria (Hives)

Postby lynny68 » Tue May 29, 2012 6:08 pm

Thank you for directing me to this page, as i said before my clothes leave welt lines to, also the sole of my feet flare up, i dont know if they are swollen or they are welts. It feels like im walking on pebbles and extremely painful. I was so thrilled with my memory foam slippers my daughter bought me, as they bring a little relief, thanx again :-D forgot to add i to am on anti hystermines.
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Re: Chronic Urticaria (Hives)

Postby *Lisa* » Tue May 29, 2012 6:22 pm

Do you feel unwell when they come up? more pain? more fatigue? fever? migraines?

If so then you will need bloods done. This sort of hives can be down to an underlyin auto-immune system condition, just to rule it out.

If the anti-histamines do not work and in my case there usless you'll have to ask to see a skin specialist.

hope they help you and give me a shout if you need any more info
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Chronic Urticaria (Hives)

Postby lynny68 » Wed May 30, 2012 4:22 pm

Thank u lisa, if they cover my whole body, i go off food, burn up, itch all over, the only thing i find thats stops the itching, this sounds daft, but i use them freezer blocks u put in cooler bags, wrap them in a tea towel and keep moving them around, i have six on standby lol x :shock: :shock: :shock: brrrrrrrrrrrrrrrr
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