Restless leg syndrome

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

Moderators: perseus, *Lisa*, FluppyPuffy

Restless leg syndrome

Postby shari » Wed Jun 13, 2012 9:50 am

I have a question. Does anyone else here suffer from restless leg syndrome.
Twice lately I have woken myself up, my leg literally kicked up in the
air. On the other occasion, my whole body went rigid. It didn't hurt, but
it scared the hell out of me. Could bebecause I came off off Oramorph.
Not sure. It hasn't happened for a week now. A bit worried it may return.
shari
UKFM Member
 
Posts: 50
Joined: Thu May 10, 2012 10:29 pm
Location: Cowes, Isle Of Wight

Restless leg syndrome

Postby toplessbug » Wed Jun 13, 2012 10:42 am

Yes I suffer with RLS it's a pain cos it wakes you up.
toplessbug
UKFM Member
 
Posts: 252
Joined: Mon Apr 30, 2012 8:23 am

Re: Restless leg syndrome

Postby shazq » Wed Jun 13, 2012 2:13 pm

Hi
I tend to get it more when i am tired or relaxing. :roll:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Re: Restless leg syndrome

Postby ames » Thu Jun 14, 2012 12:00 pm

Hey

i dont know if this will help - but i suffer with restless legs and before my diagnosis my Gp is also an Osteopath and he saw me in his clinic -

and bare with me - but it may help-

He had me lay on the couch and he felt my pelvis area by my hip bone - and it was agony when he pressed ...

He then got me to lay on the edge of the couch and told me to drop one leg of the edge - keep leg straight - which he supported of 90 seconds -

after he brought my leg up and got me to lay on the couch again and he felt the area in my pelvis and it didnt hurt ...

I was really shocked and said is this a pshychological effect - he replied no and went on to say about this study on restless legs and they think its to do with trapped nerves on the pelvis...

you could try this in the day time and see if it helps -

Tbh i still suffer with restless legs but no where near as bad as i did -other then that I had a cooling leg spray or a bath in the middle of the night to get relief

Oh the joys

But give it a go it may help you never now

ames
xx ( apologies for spelling errors etc - really not with it today )
ames
UKFM Member
 
Posts: 13
Joined: Fri May 25, 2012 1:27 pm
Location: portsmouth

Re: Restless leg syndrome

Postby *Lisa* » Thu Jun 14, 2012 12:34 pm

I know there is medication for RLS if it is severely effecting you.

MY legs dont stop throbbing/twitching and i can feel the nerves tinglin and running around. I must say tho that a change of diet has helped mine. Not a clue why. I have cut out carbs & sugar & fat so hopefully thats helped.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3901
Joined: Sun Sep 07, 2008 2:01 pm

Re: Restless leg syndrome

Postby Andrew_Z » Fri Jun 15, 2012 6:52 am

I have the syndrome, I certainly never had it prior to the FM and so it really worried me at first. It strikes at any time, either sitting, standing, or in bed. Can't keep my legs still or I get unbearable pain. 100mg of Tramadol stops it for me, but takes up to thirty minutes to work. It certainly needs the medication as it used to go on for hours. I don't think it's brought about by stress as I've had it even when happy and calm.
User avatar
Andrew_Z
UKFM Member
 
Posts: 215
Joined: Wed May 23, 2012 3:31 am
Location: Cornwall, UK.

Re: Restless leg syndrome

Postby mellabella » Fri Jun 15, 2012 11:08 am

Yes, and it became much worse in recent years to the point where i would struggle with it every night. I went to the doc who gave me amytriptaline 40mg and fair play, it's done the trick. I still get it, but nothing like it was a few months back and not every night.

Bella
User avatar
mellabella
UKFM Member
 
Posts: 230
Joined: Thu Jan 27, 2011 10:53 pm

Re: Restless leg syndrome

Postby shari » Mon Jun 18, 2012 9:47 am

Thanks everyone
I have been taking more Amitriptyline for the last week. And it appears to have worked. No restless legs since.
Touch wood it stays that way.
shari
UKFM Member
 
Posts: 50
Joined: Thu May 10, 2012 10:29 pm
Location: Cowes, Isle Of Wight

Re: Restless leg syndrome

Postby masonsbarms » Sun Jul 08, 2012 3:24 pm

hi i just want to ask can you also get in the arms,

for the past 2 days i have felt like i cant keep my arms of legs still

its like having toothache in my limbs with no relife not had it before so is this what it feels like.

i am already on amis at night.

thanks

take care xx
masonsbarms
UKFM Regular
 
Posts: 1119
Joined: Wed Dec 28, 2011 8:14 am
Location: preston

Re: Restless leg syndrome

Postby Andrew_Z » Wed Jul 11, 2012 2:05 am

I've not heard of RLS in arms, but I do get arm muscle cramps where the muscles are suddenly very tense. My legs played up again tonight while I was visiting my neighbours...I was fidgeting so much I had to excuse myself and head home for medication. That's the thing about RLS, it just comes out of the blue with no provocation at all.
User avatar
Andrew_Z
UKFM Member
 
Posts: 215
Joined: Wed May 23, 2012 3:31 am
Location: Cornwall, UK.

Re: Restless leg syndrome

Postby shazq » Wed Jul 11, 2012 3:29 pm

masonsbarms wrote:hi i just want to ask can you also get in the arms,

for the past 2 days i have felt like i cant keep my arms of legs still

its like having toothache in my limbs with no relife not had it before so is this what it feels like.

i am already on amis at night.

thanks

take care xx


I have had it in my arms a few times Mason, it has driven me crazy, i really did not know what to do with them, i kept stretching them, shaking them, swinging them, they were throbbing, its horrible. I just had to wait for it to wear off. :evil:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Re: Restless leg syndrome

Postby masonsbarms » Wed Jul 11, 2012 3:41 pm

hi thank shazq, it was horrid, and just wanted to know if that was what is was like.

i was doing the same, thankfully they have been ok for the past few days.
thanks again

take care xx
masonsbarms
UKFM Regular
 
Posts: 1119
Joined: Wed Dec 28, 2011 8:14 am
Location: preston


Return to Associated and Other Health Problems

Who is online

Users browsing this forum: No registered users and 4 guests