Hypermobility

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Hypermobility

Postby mand » Mon Sep 10, 2012 4:18 pm

Well my middle daughter is having problems with her back then it left her with a marked weakness to lower leg/painful foot, had MRI scan and that seems ok. one gp said it was growing pains :shock: she's nearly 22, last month someone said it could be the sacro- illiac joint nr pelvis, i took her to see gp he suggested bloods and referal to rhumy

Today she saw a specialist/physio....he said she is hyper mobile, daughter shown me the points that they test thumb to back of wrist/ little finger etc...yep i can do that and two sisters are similar...my hubby shown me that he could not do hand things and well i thought it was normal......

does it run in familes, and do i need to get my gals diagnosed,my edlest has lax ligaments and forever twisting ankles knees in the past dislocated two knuckles her younger cousin sat on her hand :yikes: but we managed to get them back in, she has a learing disability and hates hospitals and will avoid like the plague i put the lax ligaments down to her condition... youngest is growing fast and constantly in pain knees, back etc she is flexible hands etc does splits.... near enough wrap leg upto neck :crazy:

my middle un is now waiting for mri scan on her foot and will be having more tests....why is it nobody is giving her an answer, i will have to accompany so she willnot get fobbed off, shes even changed car to automatic as it was dangerous as she could not control her foot....oohhh its fustrating........can you advise me if i need dignosis for my girls and can gp do this????......many thanks
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Re: Hypermobility

Postby Fender » Sat Sep 15, 2012 3:46 pm

Hello. Hyper mobility is hereditary. Many people have the flexibility without it causing any pain. If it becomes painful I would suggest a visit to rheumatology they can diagnose if there is a problem and give physio advice on how to protect yourself. Hope that helps
D
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Re: Hypermobility

Postby diane1 » Sat Sep 15, 2012 6:50 pm

Hi

I only found out I had hypermobility 6 months ago and i'm 47. It seems my mum has it as well and so does my son. unlike them though I dont have it in my hands which is why I didnt know but I do have it in my ankles and hips. I always thought I was just very bendy which my husband appreciated !!!!!

It has now started to effect my walking as my muscles can no longer hold me in place.

I'm not worried about my son as it doesnt seem to be bothering him yet but at least I know if things do go wrong.

I hope you get the help you need .
Does an elephant with fibro fog ever forget ?
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Re: Hypermobility

Postby blueeyes64 » Sat Sep 15, 2012 10:05 pm

Yeah it does run in families.I was very flexible when younger but am stiffening up a lot now.I could get my legs behind my neck !
My daughter who is 18 can bend her fingers back to her wrist and also she has a clicky jaw which makes an odd sound when she eats.
My youngest son who is 12 gets a lot of joint problems.His elbows bend backwards funny and the Dr said he is slightly hypermobile.He is always complaining of going over on his ankles and knees hurting.At the moment his hip is hurting him.Have you checked out the Beighton scale ? It's one of the tests for hypermobility. Here's a link to it

http://www.hypermobility.org/beighton.php

We all seem to fit some of the tests but not all.
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Re: Hypermobility

Postby diane1 » Sat Sep 15, 2012 10:22 pm

Hi

Yes a consultant did it and apparently I scored 6/9 not sure how good or bad that is :crazy: , I also have a clicky jaw and my knees are effected to ,my wrists used to be but have stiffened up with the arthritis

Ive found wearing an ankle support helps alot.

Its funny how you find things out about medical problems in the family you never knew about ! :roll:
Does an elephant with fibro fog ever forget ?
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Re: Hypermobility

Postby blueeyes64 » Sat Sep 15, 2012 10:35 pm

Looking again maybe I do fit the criteria ?
I score 2 on the Beighton scale test, as I have stiffened up in recent years, so that's 1 from the major criteria list and then 2 from the minor, varicose veins and arthralgia (pain in joints without swelling ).I have had ugly spider veins in my legs since I was 17 and they have got worse as I age.I have also had severe bursitis in my knee for which I ended up having an op on about 18 months ago, but it says you need 3 of those or more.
It does seem that hypermobility and fibromyalgia are common occurrences to have together though.
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Re: Hypermobility

Postby blueeyes64 » Sat Sep 15, 2012 10:37 pm

My wrists are bad too, I have dropped a cup and a glass just this week as my wrists just give way, so do my ankles and my knees :-?
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Re: Hypermobility

Postby shoesandbags » Thu Oct 25, 2012 1:32 pm

Hi, i have hypermobilty too. I am 33 and it had caused me problems as i have ankylosing spondylitis on top. You would think having extra mobility with this condition would be a bonus but no.
My son has it too. He is 13 and plays Fottie a lot, he had to have physio as he has 45 degrees of extra movement.
Anyone know why or what the link is? Xx
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Re: Hypermobility

Postby diane1 » Thu Oct 25, 2012 1:51 pm

Hi

They dont seem to know why there is a link as none of the conditions we all seem to have as well as fibro have no medical links.


Fibro seems to be the pain receptors in the brain not working properly.

Hypermobility is the movement of joints

IBS is the problems with bowels

Arthritis joints rather than muscles

Tiitus high pitched sounds in ears

These seem to be the most common other conditions and none of them have an obvious link to fibro. Also the hereditory factor it seems to run in families and both myself and sister have been diagnosed,we both have arthritis as does our mother,I have hypermobility as does my mother IBS we all have. How can they say there is no hereditory link :!:

I dont think any of the medics have any idea . When research is done it always seems to be on the theory that it is only the brain pain receptors not working properly. Maybe one day someone will crack the case.
Does an elephant with fibro fog ever forget ?
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