thyroid

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

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thyroid

Postby pauline » Tue Aug 09, 2005 8:26 am

:) Hi everyone. On the subject of thyroid and fibromyalgia. Several symptoms of hypothyroidism are similar to those shown by fibro sufferers.
Generalized tiredness and lethargy. Muscle weakness, cramps, weight gain. Blood tests for the condition often show a borderline result. This has been happening to me for several years. I have given enough blood to fill a blood bank and each test has shown a borderline result, using government guide lines for the diagnosis of thyroid problems. Had I been tested for the condition in the US I would have received medication a long time ago, as their figures differ to our own. Fortunately I have an excellent new GP, who actually listens to what I say to her. I told her that the my mother suffered with the condition and that as a child I was given thyroxine tablets but for some reason they had been withdrawn at my mothers wish. She informed one of my consultants at the hospital that she considered that it may be beneficial for me to begin a small dose of thyroxine and that I be monitered. That was three months ago and it would appear that my thyroid has in deed been under active, and I am now taking medication on a daily basis. My GP will continue to monitor me for some time yet, but My weight is slowly starting to go down. I feel more alert. I dont ache as much as I used to and a problem I had with extremely dry skin has improved slightly. I understand that it will take a long time for my body to correct itself but this is a step in the right direction for me. My advice to anyone in the same situation is to talk to their GP, ask them if medication may be an option for you.

Take care............Pauline :lol:
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Postby jano » Fri Aug 12, 2005 12:41 pm

Hi pauline... I get tested for my thyroid every 6mths but always comes back "normal".. making me wonder now if I am boarder line as you say and they say normal as it is within the quide lines... I have put on 3 stone since having fms, I know alot of it is down to my lack of mobility (I get serve pain when I walk) but I wonder if I do have thryoid problems. Thank you for mentioning that..

Jano
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Postby williaa » Tue Aug 16, 2005 9:20 am

Hi Pauline and Jano

I recieved a letter from a Rhumatologist i went to see a few weeks ago, and i had a blood test, the results came back as very borderline level of thyroid hormone, what does that mean, is it connected with Fibro. i am still new to this and scared.


thanks for listening

Angela xxx
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Postby jano » Fri Aug 19, 2005 6:05 pm

Hi Angela.. please dont be scared. Thyroid treatment is very affective. The thyroid is a gland in the neck area some have overactive thryroid and they lose loads of weight and others have underactive which means you gain weight with it.. I am not sure of the techniacalities but it can make you very tired and soem of the symtoms are ver simlar to fms.. but it can be controlled with meds.. if you are boarderline I dont think they give you treatment unless they think it will help even out the throyd gland and so I dont think there is too much to worry about..

I think fms and thryoid are related in some way, but I dont think if you have fms you defo have thryoid trouble.

Hope this has eased your mind
Take care
Jano
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Postby pauline » Sat Sep 03, 2005 7:31 pm

Your right Jan. The two conditions are treated seperately. One does not occur because of suffering from the other, but as you say some of the symptoms are very similar.
Pauline
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Thyroid

Postby Judy~ » Thu Sep 15, 2005 6:16 am

Hi Pauline, My name is Judy and I live in the US. Most of the time our tests are correct. But I also have epilepsy and am on medication for it. One of those medications messes up the results of my thyroid tests so it is really hard to get a good reading of where my thyroid is really at. From what you have stated in your post, I guess I'm really lucky to be living in the US. I never knew though that the symptoms for Thyroid problems could be close to those of Fibromyalgia. I did learn a few things from this site so I am glad I found it. Judy Starr~ of Washington, USA
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Postby dee » Fri Oct 07, 2005 2:17 pm

hi all

I too have to keep being tested for underactive thyroid as my bloods keep coming back as showing slighter under not all the time though it will be under then ok then under i think the docs are as puzzled as me, although recently my bloods did show slightly raised liver enzymes which they are gonna continue to monitor not sure whether anything to do with my fibro or not.

dee :?
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Postby somebody_else » Fri Oct 07, 2005 8:23 pm

I've had Hashimotos disease my whole life (although it took them my first 4 years of life and my mother dragging me from specialist to specialist to diagnose me, and hey, what do you know? The same with fibromyalgia - 15 years of fighting and I finally get a diagnosis on it. Grr) and there is definitely similarities. The thing that bugs me, is that I managed to get my GP to put my thyroxine up last year for 6 months, and I've never felt better, but then he put it back down again because he said that it put my levels slightly above normal and that if he kept me on it he could get in major trouble because it's dangerous. I even offered to indemnify it so I could stay on a higher dose, but he refused, and now I'm in pain again, struggling with my weight and the cold, and I've now developed Primary Raynauds too. NOT a happy chicken.
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Thyroid vs Fibromyaglia

Postby Judy~ » Wed Oct 12, 2005 7:56 pm

When you talk about the type of pain you all suffer from fibro, is it a specific type of pain? I don't want to ask my friend because he has so many different things he suffers from that I don't know if he even knows which pain is caused by what anymore. I have so many medical problems that it would be so easy to misdiagos me but I have read through the symtoms of fibro and I have many of them so am now confused. Can someone please explain?

Thanks,

Judy~
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Postby somebody_else » Wed Oct 12, 2005 10:25 pm

Hi Judy, welcome. :)

Ok, I think that people experience pain very differently in each individual, however, I'll try and give you an idea of what I feel.

You know when you have a bruise and it's quite an old bruise, and you rub it by mistake and it sort of aches, like a twinge but not a sharp pain? Well, I feel that, very strongly, all the time, all over my body, although, it's worse in my hips/buttocks, knees, upper arms, shoulders, neck, back and lower back. Or not worse, worse is the wrong word, it's more intense. For me, that part has just become a feeling that I live with. If I'm feeling very rough and I'm run down, I become more aware of it, and it appears to get worse, but I dont think it ACTUALLY gets worse, I think that's an illusion because I'm run down and feeling awful in addition, so I dont have the capacity to ignore it anymore. If you see what I mean.

On top of that, I have throbbing aching pains that radiate from my joints, again like twinges, sometimes so strong that they make me gasp. Sometimes they're long lasting - I've had one in my right hand now for 3 days, sometimes they only last a few minutes. Generally, the stronger they are, the shorter they'll last, but they can sort of be over the top, so I'll get this pain, and then a really strong one for 3 minutes, then it'll die down but still be really painful...those are the pains that made me first think I had arthritis, because they feel like they're actually inside the bones - my tutor at college says it's probably the tendons that link the bones that are damaged, which makes sense actually.
Anyway, on top of THAT (yep, it gets worse, and it's taken me AGES to work this all out, months of analysing all my pains and writing things down!) there's the pain from touch. Sometimes, it feels like my entire body has been chucked down the stairs. If I even brush my skin lightly, it's like having a bad bruise pressed hard. Actually pressing my flesh on days like that makes me gasp (I used to burst into tears, and if it's unexpected I still do sometimes because it hurts so much) and it's all I can do to get through the day because sitting hurts, and moving hurts and being still hurts, and they are the days where I just want to cry it all out of me because it hurts so much, and I'm snappy and grouchy and everything gets on top of me.
There's also the tender points. On days where my flesh doesnt feel like that last one, pressing around certain joints still does, and in certain places. Sometimes I'll be having quite a good day, and someone might go to dig me in the ribs playfully, not knowing, and they'll hit one, and the pain is SO intense, it's horrible. It actually makes me feel like I'm going to throw up sometimes, depending how hard it was pressed. That said, I think everyone has certain tender points anyway like that.

So, that's my best shot at describing my pain. I can only really use bruising as a descriptive thing. I've broken bones before, and been cut and stabbed, and nothing I experience with this is like that - except when I broke my ankle when I was little, every now and then this shooting dull hideous pain would run up my leg - that is very much like when someone hits a tender spot by mistake. I once thought I'd broken a rib just by hitting it on something, but it turned out to be a tender spot, it didnt even bruise much, but it was agony like that for hours, and then occasionally it would run through me for days after. It's like the nerves get overstimulated and confused or something.

I hope that helps a little. Remember though that everyone experiences pain differently, so what I feel as a bruise might be very different to what someone else feels as a bruise - and with Fibro, who KNOWS whats going on with the nerves! Maybe we feel everything weirdly!
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Postby Judy~ » Thu Oct 13, 2005 7:03 am

Hi,

Thanks for letting me know. I'm really trying to understand here, ok? Please be patient with me. So, you have pain when someone just touches you? But also in your bones. Correct? I'm trying to learn because of my friend, I want to try to understand. Touching doesn't seem to bother him but he does complain about his bones, alot. I can somewhat understand about aching joints as I have this pain in my left hip joint that can be so bad I can't even walk. Other days, it doesn't even bother me though. The doctors don't even know whats causing the pain so when he says his bones are bothering him I can relate. Of course, now that I think about it, my knee was hurting yesterday to the point where I couldn't walk. That was really weird. I guess I better call my doc but it doesn't hurt at all today.

Thanks for listening,
Judy~
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Postby somebody_else » Thu Oct 13, 2005 8:36 am

Yes, correct. I have pain all over, pain which feels like it's in my bones, and then pain when someone touches me.

Have you ever damaged that hip which hurts? That's how mine started I think. It started when I was 15 and I damaged my left hip quite badly when I fell in a swimming pool, and that carried on for years, getting worse and worse until I finally managed to get my GP to refer me for an x-ray, but by the time the appointment came through, it had spread to my knee, and then it went very fast, to all my other joints, and that's when I started noticing the tender points too. The all over pain crept up on me so slowly that I didnt even realise until I tried to describe to someone what hurt, and I was saying, "It's in my joint, but then all down the bones too" and then I thought "hang on, is there anywhere that DOESNT hurt? That might be easier!!" The only place that doesnt hurt constantly is my ankles. Which is weird because they're the place I've damaged the most on my body as a child!

It's really good of you to want to understand this. I realise it's also so that you can try to find answers for your own pain too - again, remember that everyone is different. Also, localised pain like you have could well be something else - it's worth getting it checked out by a GP and making sure you get answers. It might take a while, but please persist with it, because the sooner you know whats causing it, the sooner you can get round to managing it.
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Postby lynnec » Sat Oct 07, 2006 7:24 pm

I saw my Rheumie today, results from recent hand and feet x-rays show quite marked changes in the bone density - he is sending me for a DEXA scan to see whether the rest of my body is affected.

He is querying my thyroid function - he has requested thyroid antibody tests as my T4 is slightly raised. Excessive sweating remains a problem too.

The pains in my hands and feet are still incredibly hard to deal with and the joints in my fingers are 'locked' when I wake up. Also just brushing my hands against the duvet at night wakes me up, it's like a severe bruise.

Has anyone experienced similar problems?
Lots of Love
Lynne
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Postby Lazykat » Sat Feb 17, 2007 11:00 am

this is excellent reading as i feel like ive come home ... thanks every one.... i often feel like my skin is goning to come off whne i knock myself .. the soreness is so bad..... i have weakness in the arms and shoulders that is really getting to me ... i have a 'i think it may be fibromyalgia' diagnosis... he is still ruling out rheumatoid arthritis.



it seems so quiet on here and im sorry to have woken up this thread ....... is there anyone there?
With Love
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Postby somebody_else » Sun Feb 18, 2007 8:12 am

I'm here - where in the west midlands are you?
Hashimotos, CFS, FMS, PTSD, Anxiety. Gosh, I have more letters than the doctors who diagnosed me!
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