fatique

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fatique

Postby difly » Thu Oct 18, 2012 11:33 pm

:cry: :cry: hi just wonder if anyone can help me get an understandin of what fatique means for them? when im feeling fatiqued i am totally wiped out ,some times i feel shaky like when you get low blood suger ,and some time so tired i cannot cook the tea or function ,i am still working full time and most days are a struggle ,more recently goin through a really bad flare pain from head to toe scary pain some times
feel so awful at the mo and also had more bad news , with tests high cholestral , high blood pressure and pre diabetic ,what next ? guess im feeling sorry for myself at he moment , xxx :cry:
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Re: fatique

Postby Iceskatemum » Thu Oct 18, 2012 11:52 pm

Everyone feel sorry for them selves from time to time ...we're allowed!

I was like you before I came off work . I just went to work and then came home and slept ,I was like a zombie ! :yikes: :yikes:

My fatigue is just so tiring that everything is a bother , all my body feels achey like you are getting the flu and all I want to do is lie on the sofa or go to bed. :sick:

I can get it as soon as I do something or a little while after , I never know which . My concentration goes , I talk like I am drunk and I forget words that I am wanting to say. It is the part of FM that I am having real problems with and the one that is keeping me off work . The pain I have sort of sorted with strong meds to a point where it is managable .

I have started to try and do a little bit each day but not enough for me to relapse into my semi comatose state. A friend who is attending a CFS clinic has been told you should only do 50% of what you feel you can do . Which given I think I can only do things in about a 15 min blocks means I should at any one time only do about 7-8 minutes activity . That can be anything other than sleeping or meditating!

Not a lot is it!

Good luck
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Re: fatique

Postby shazq » Fri Oct 19, 2012 4:37 pm

Hi
Fatigue for me is when my whole body feels like its twice its weight, i feel like i am dragging it along, i have no energy, my whole body aches,my legs feel like they are set in concrete yet they give way on me and i can fall over. i cant think straight, i bang into door frames.

I just want to curl up and sleep but my body doesn't also want to shut off instead it will make me just lay there and suffer in pain. :evil:
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Re: fatique

Postby difly » Fri Oct 19, 2012 9:49 pm

Hi many thanks for your replys I can identify with what you are both saying its so sad when your mind tells you one thing and your body dictates another . I get no support from work and although work can be a pain in itsself some times it can help to distract.

I know what you mean about pacing some days I do too much and others just about make it out of bed , never thought fibro would be so bad , more recently experiencing pain in diferent places ,it seems too travel and when ive let my gaurd down it attacks .

I guess I will have to get on with things and hope for the best , so glad to have found this forum , take care xxx
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Re: fatique

Postby isitme » Sat Oct 20, 2012 5:35 pm

the fatigue just makes me feel heavy like concrete and i cant even manage to type, so i may com eon here and just read.

or i often just lay on the bed watching telly on the laptop while i snooze.
the good thing about startign my ou course is i listen to audio versions of course material and podcasts or watch video and do this about 3 or 4 times over again so at least it is sinking in sometimes and i am already a couple of weeks ahead as i spent majority of day doing this.

only get up for a few hours later in day for dinner.

i don;t have alot of concentration to do the activiites but have never spent so much time working so something familar will suddenly jump out at me, so it sinks in eventually.

has made the time more bearable actually that i am actually doing something constructive whilst i snooze.
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Re: fatique

Postby sparky630 » Sun Oct 21, 2012 5:03 pm

I agree with all the above. I really don't know how u work so I really take my hat off to ya.....

I try and have one goal a. Day and that may be as little as getting a shower but then my hubby has to blow dry my hair.

I find fibr messes with my head as my brain is telling me all the things Ive not done that day and to get a grip and stop being lazy.

Today is wot I call a bad day. I only woke mid day and have come on here. Typing is hard. My goal today will be to have a shower

But I may not even manage it. I have to wait til my body can do it.

If I do too much I pay a really high price the next day and poss more days aft that.

I used to work 12 hr shifts in the 999 service.....now I cant make my own lunch.

For me fatigue is the worst part of fibro cause I just dont know how to deal with it. I try to push thru but that makes me worse.

Ive had it 3 yrs and still need advice on dealing with fatigue. Thank god I found this forum

Xxxxx
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Re: fatique

Postby Iceskatemum » Mon Oct 22, 2012 12:28 am

Oh Sparky I can totally sympathise, I have to choose on a daily basis if I will have a shower or wash my hair (blow drying is a thing of the past its au naturelle now) except if something important is coming up then I go to a local hairdresser who charges very little for a blowdry.

The fatigue is also my big issue as the pain is sort of managable now with the meds. I have asked the Gp about goin gto see a CFS specialist but have been advised that as my dx Rhuemy didn't asuggest it it wasn't worth even thinkin gabout going. I been off work since MAy and was fighting to get back however it seems work may not want me ( can't blame them given my record) at first I was horrified but in real terms given I only get up about lunch time and then do very little I can't see me back.

Once I accepted that I may have to come off I feel alot better , less strained and the fatigue has improved a little . here's hoping that I do get off work and can then concentrate on pacing myself so I start to cope and manage this dread thing better!

Sending hugs adn positive thoughts
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fatique

Postby MsBabylove11 » Mon Oct 22, 2012 10:48 am

How are you sleeping at night? I only ask because my fatigue is worse when I've had un refreshing sleep where you don't enter the rem stage of sleep, it's not ideal but I take sleeping tabs a few time a week and have been put on amatriptaline to help me sleep and for nerve pain? A good night sleep really does make to world of difference!

Hope u feel better soon x
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Re: fatique

Postby Iceskatemum » Mon Oct 22, 2012 8:47 pm

Totally agree with you Ms BabyLove , I had terrible sleep pattern until recently and fatigud was a lot worse. Now I stay warm and cosy at night and have been able to manage up to 6 hrs . Don't know if I go into Rem sleep as I don't wake up with that refreshed feeling but at least I am not up pacing the floor for hours on end.

Keep a sleep diary Sparky as sometimes the doc want an idea of when you're awake etc before they will give you anything ( at least mine would )
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Re: fatique

Postby jo_jo789uk » Thu Feb 07, 2013 2:52 pm

I suffer from fatigue constantly.

My partner has lost his job so unfortunately my wages are all we are currently relying on. This means I can't give up work and am therefore working full time. I am trying to convince my employer to let me work a couple of days a week from home rather than actually going into the office, but I'm not sure they are going to allow it at the moment.

I constantly feel tired as though I haven't slept, and thats even after a good nights sleep.

My concentration and focus can be terrible some days, which makes my job very difficult (I am training to be a solicitor).

Sometimes I get sudden bouts of extreme fatigue, where I literally have to lie down because I cannot keep my eyes open. On these occasions I drop into a deep sleep for only an hour (my fiance has said it is impossible to wake me up for that hour), then I wake up feeling dazed and confused for the next half hour where I can barely understand what he is saying if he asks me a question.

It can all be quite difficult considering I am only 22 and therefore should really be more active than I am!
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