ehlers danlos syndrome help

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ehlers danlos syndrome help

Postby fliss » Thu Jan 03, 2013 9:50 pm

hi all not been on for a while as not been very good and had loads of appointments etc,iv been to cardiologists today and he has diagnosed postural tachycardia and also possible ehlers danlos syndrome,im wondering if anyone else has either and if they could possibly let me know how they cope etc xxxx
fliss
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Re: ehlers danlos syndrome help

Postby ccat21 » Fri Jan 04, 2013 2:04 pm

Hi Fliss
I dont have ehlers danlos syndrome but do have hypermobility syndrome which some medical professionals say is the same as ehlers danlos syndrome type 111. I have found the Hypermobility forum & the hypermobility syndrome association very useful & will point you in the direction of support for ehlers danlos. www.hypermobility.org/forum/index.php. I find that my fibro symptoms & the HMS cross over and have the same symptoms eg fatigue, pain, IBS, joint problems, so good luck & hope that you get the support you need.
ccat21
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