Thyroid First

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

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Thyroid First

Postby sunshine » Fri Nov 18, 2005 9:58 pm

My underactive Thyroid gland was diagnosed at 21, which is apparently quite early, it was recognised by my doctor whose wife also had an underactive thyroid. He sent me to the top specialist for Thyroids at the time which was called Mr Belchetz and even though there was uncertainty round my thyroid gland results he immediately started me on 50mcg of thyroxine, i personally feel that anyone who has had confused results should ask to be referred, especially if it runs down the female side of the family. I started with FM about 4-5 yrs ago after the birth of my little girl, but it has only just been diagnosed.
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Postby fish816 » Sat Nov 19, 2005 11:16 am

sunshine wrote: I started with FM about 4-5 yrs ago after the birth of my little girl, but it has only just been diagnosed.

Can you PM me with more details? thanks. :D


Postby flutterbiebeckie » Sat Jun 07, 2008 11:45 pm

my doc said i was hypothyroid since 1993+ and i havent been given much info since is this normal? ps i am now on 125mcg of thyroxine?
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Postby princess » Sun Jun 08, 2008 1:21 pm

I have to have my thyroid checked again, will let you know how i get on. Have put on over 2 stone - but there again i cant exercise like before fibro
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Postby JADE » Thu Sep 04, 2008 5:46 am

Hey, sunshine......interesting stuff!!

I'm in my late 30's and have just ascertained the significance of family history when it come to thyroid. There seems to have been a history of thyroid problems in my family (female side) + I'm the only one to have Diabetes type I....insulin dependant for23yrs. Aparently most of my thyroid tests have shown I'm in the "normal" range, however after the diagnosis of FM I did a lot of research on the web about the condition and found that an underactive thyroid can be mistaken for FM if your tests reveal that you're "normal",, my thyroid results have mainly been boarderline therefore noyjing has ever been done.

After talking to my GP about this she started me on 50mcg Thyroxine....which I've been taking for just over a mnth (No signs of HYPERthyroidism - which would suggest that I neeeded it ).

I'll be gatting a blood test at end of september to ascertain the effect this thyroxine is having on me....but wot I know is that I do have more energy despite the body being wracked in agony :?
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Postby andypandy08 » Sun Feb 01, 2009 8:04 pm

Hi I have just been tested and my GP says my thyroid test is on the high side

can someone please pm with some info as tro what I might expect
treatment meds etc

thanks Drew
Fibromyalgia does not define me ~ my spirit does. the path may be different,but the journey is still the same
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Postby smoky » Sun Feb 01, 2009 8:41 pm

ok I assume you mean you have hypothyroidism
Thyroid UK has some useful facts about thyroid and how to manage it; they also have some interesting ideas re fibro though!
For myself the condition fluctuates in the year ( not accepted in the uk but recognised in france, - apparently in summer you get more vit D? which the thyroid helps to absorb - it can't as its faulty , so your levels drop again)
For me the symptoms are
significant hair loss
VERY dry skin, especially on my hands
enlarged tongue
loss of outer third of my eybrows
and really huge fatigue

you can also get joint pain etc

because many of the symptoms overlap with fibro you need to try and get the thyroid under control so that you can separate out what is thyroid and what is fibro; my doc would not consider investigating fibro further until my thyroid was under control after a dip last summer

You get the symptoms under control by taking thyroxine daily; you will also be entitled to free presrciptions!!

I have found that thyroxine does not totally control my thyroid but does to about 90%

With thyroid you should also be checked for type 2 diabetes once a year as the two are often linked

anyway good luck

ps I have no family history of Thyroid and have had it since i was 32
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