ME on top of fibro

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ME on top of fibro

Postby SuzyVB » Mon Aug 19, 2013 12:39 pm

I've been to see my GP today as my shoulder has frozen again and I discussed with him the symptoms I have that fibro doesn't explain he said he thinks I have ME as well as fibro. Bit confused as some people say its the same some say its very different but it certainly covers all of the symptoms not covered by fibro. The downside is that again there is no treatment other than graded exercise although that seems to be discouraged on some mE sites.
This is all pretty confusing, I wish they'd explain more when they diagnose.
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Re: ME on top of fibro

Postby FluppyPuffy » Mon Aug 19, 2013 1:02 pm

I have CFS as well as FM, and there are a few others on here with both conditions. I work on the basis that they are different conditions as, whilst there are a lot of overlapping symptoms, I have noticed some slight differences in things when CFS has the upper hand. The people I have seen about the condition also work on the basis that they are separate from each other rather than being one and the same/at different ends of the same spectrum.

Graded exercise can help some, whilst for others it can be an absolute :nono: :nono: :nono: :nono: :nono: Earlier this year I completed a number of sessions with the CFS Service covering where I live, and part of it incl graded exercise. For me, it started off with baby steps, with baby~step sized increases being made along the way to help increase my core strength/stamina, which I think it has done. Even on the days when I feel absolutely lousy, I still do a little stretching and walking so that I won't start to lose where I have managed to get myself to.

Are you going back to see your GP or being referred onto a suitable consultant/specialist for additional help/dx~ing???
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Re: ME on top of fibro

Postby SuzyVB » Mon Aug 19, 2013 1:04 pm

I'm under a pain clinic & rheumatologist for fibro & he said that they can handle both
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Re: ME on top of fibro

Postby FluppyPuffy » Mon Aug 19, 2013 2:34 pm

It seems to vary from area to area as to who deals with the conditions, what services/help is available etc. With you already being in the pain clinic/rheumy's system then hopefully it will make being seen for the likely ME dx.
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