Sleep Apnea

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Sleep Apnea

Postby bestnan » Wed Aug 28, 2013 6:06 pm

Hi

I have had FMS for nearly 4 years. Yesterday I went to see the consultant at the sleep clinic because I had had tests for the condition in April on the advice of a specialist.

I was diagnosed with the condition and am now waiting to have a weeks trial before I start for life on the machine.

Has anyone else with FMS been diagnosed with this condition

Keep well as best as you can peeps
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Re: Sleep Apnea

Postby denys » Thu Aug 29, 2013 12:01 am

We have had a few topics on this, use the search facility at the top of the page and it should throw up some of them for you to have a read up on :-D :-D :-D
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Sleep Apnea

Postby thebryans » Fri Aug 30, 2013 10:22 pm

HI<
yes I have been diag with sleep apneoa :sleep: 3yrs ago after my initial one for fibro and M.E. I hate the machine so much and have had loads of problems, but been warned that I have to use it else am placing myself at risk.
If you fancy a chat about it private message me,
love to all
loraine x
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Re: Sleep Apnea

Postby whoami » Wed Sep 04, 2013 1:46 am

I also have sleep apnea. My machine works great. I actually stay asleep for four hours now. The heated hose and humidifier on it helps with moisture control. With having such a dry mouth from meds I find this feature wonderful, especially since I can adjust it to what I need.
I still have issues with dropping of dead asleep in the middle of a conversation or reading, watching telly. I also stop breathing while I am awake. My brain doesn't tell me to breath. I forget at the moment what it is called but it is another type of apnea.
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Re: Sleep Apnea

Postby bestnan » Mon Oct 07, 2013 1:56 pm

Further to my last post ref: sleep apnea, my driving licence has been revoked until my specialist is happy that I am controlled on the machine. The DVLA cannot give any idea on how long I am going to be without my licence. I am really annoyed about all of this. My first appointment with the specialist was in April. I was then sent for a sleep test, (at home), which also happened in April. Since then I have had my Dr's chase them to give me the 6 weeks appointment promised and that finally arrived in August. I have mild to middle sleep apnea but due to the meds for FMS and the associated problems, the fact that I have a heart condition and chronic asthma he wants me on the machine. I have just undertaken the weeks trial at home, went on holiday with the car and returned to the letter from DVLA. I now don't see the specialist until the end of October so you can imagine I am not best pleased. To top it all off, I have had to let the car go as I have no one I can add as a named driver. It is uninsured as I can't drive it. It is all unbelieveable. I have limited mobility, use a wheelchair/or 2 walking sticks depending on how bad the pain and stiffness are. I suppose I will just have to get used to things when/if I get my licence back.

Thanks for taking time to read my rant x x
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Re: Sleep Apnea

Postby whoami » Mon Oct 07, 2013 3:25 pm

I also have sleep apnea. I have had it for a few years.

I go back again at the end of the month for another visit to the clinic. I have obstructive and another type of apnea that effects me in the daytime. I will stop breathing while I am awake. I can be walking around but my brain forgets to say breath. I don't breath as often as I should which makes me nodd off anytime. I can be mid sentence or even typing here. LOL sometimes I wake because I have dropped something. Hubby occasionally taps me and says breath as my lips are blue, LOL

As far as your license gone...what if you were to be in an accident, hurt or kil someone. This is serious stuff. I have not driven (voluntarily ) for a while because I am scared to . A while back I did fall asleep while driving. Thankfully I was on a rural gravel road.

I am in Canada and rules to driving with sleep apnea might be different, it is up to the Dr to pull your license. I live in a village with no public transport. No bus, train or even taxi. We have no shop either. I never drove much anyway since only my hubby has a truck and if I needed to do groceries he either drove me at night or I did.

Things are what they are and we learn to adjust. It will be a huge adjustment but you will. I am sorry though that you have to deal with all of this on top of everything else.
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Re: Sleep Apnea

Postby bestnan » Mon Oct 07, 2013 4:46 pm

whoami wrote:I also have sleep apnea. I have had it for a few years.

I go back again at the end of the month for another visit to the clinic. I have obstructive and another type of apnea that effects me in the daytime. I will stop breathing while I am awake. I can be walking around but my brain forgets to say breath. I don't breath as often as I should which makes me nodd off anytime. I can be mid sentence or even typing here. LOL sometimes I wake because I have dropped something. Hubby occasionally taps me and says breath as my lips are blue, LOL

As far as your license gone...what if you were to be in an accident, hurt or kil someone. This is serious stuff. I have not driven (voluntarily ) for a while because I am scared to . A while back I did fall asleep while driving. Thankfully I was on a rural gravel road.

I am in Canada and rules to driving with sleep apnea might be different, it is up to the Dr to pull your license. I live in a village with no public transport. No bus, train or even taxi. We have no shop either. I never drove much anyway since only my hubby has a truck and if I needed to do groceries he either drove me at night or I did.

Things are what they are and we learn to adjust. It will be a huge adjustment but you will. I am sorry though that you have to deal with all of this on top of everything else.


Hi Whoami

I totally agree with you in respect of causing an accident or even killing someone. People have told me I shouldn't have told the DVLA who issue our licences, but that is totally irresponsible. I couldn't live with myself if I killed someone or caused a serious accident. I'm sorry that you have both types of apnea, it is an awful condition. Take care x x x x x
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Re: Sleep Apnea

Postby bestnan » Fri Oct 11, 2013 6:19 pm

Hi

Just to let people know that I have received my forever CPAP machine this morning. I see the specialist on the 29th and hopefully he will have the relevant paperwork and will push for me to get my licence back. Please everyone be well and keep warm. Thank you for your remarks x x
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Re: Sleep Apnea

Postby whoami » Fri Oct 11, 2013 7:54 pm

Just curious....do you have to buy your CPAP. Out of your own pocket? If so...what is the cost in the UK, including mask and humidifier if it is separate? If the gov kicks in a portion then how much? I am curious compared to here, Ontario.
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Re: Sleep Apnea

Postby bestnan » Sat Oct 12, 2013 4:41 pm

whoami wrote:Just curious....do you have to buy your CPAP. Out of your own pocket? If so...what is the cost in the UK, including mask and humidifier if it is separate? If the gov kicks in a portion then how much? I am curious compared to here, Ontario.



Hi Whoami

CPAP machines are issued by the NHS so we don't have to pay for them. They do any repairs and services as well x x x
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Re: Sleep Apnea

Postby whoami » Sat Oct 12, 2013 10:35 pm

That is great

Mine was around a thousand pounds. The government kicks in 700 for everyone then the patient is responsible for the rest plus any filters, masks or other necessities.
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