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The UKFibromyalgia Forums • View topic - confused about difference between CFS and M.E?
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confused about difference between CFS and M.E?

PostPosted: Fri Nov 15, 2013 8:49 pm
by Wackers34
I believe I have CFS along with my fibromyalgia, as have all the symptoms of CFS...though I am confused as to when it becomes ME? I know some people who have M.E have CFS also, but how does a doctor know whether you have CFS or M.E?

I found the following info from a CFS forum resource centre and hadn't realised that they were separate conditions.


B. Similar Medical Conditions

A number of illnesses have been described that have a similar spectrum of symptoms to CFS. These include fibromyalgia syndrome, myalgic encephalomyelitis, neurasthenia, multiple chemical sensitivities, and chronic mononucleosis. Although these illnesses may present with a primary symptom other than fatigue, chronic fatigue is commonly associated with all of them.

Re: confused about difference between CFS and M.E?

PostPosted: Fri Nov 15, 2013 9:20 pm
by FluppyPuffy
When I was dx'd with CFS, this helped explain why CFS was used rather than ME (well in my case anyway.)

However, there are many variations on the ideas and theories relating to CFS/ME, from being 2 very distinct, separate conditions, thru to then being one and the same thing, with a bit of them being considered to be at different ends of the same spectrum being thrown in for good measure.

Re: confused about difference between CFS and M.E?

PostPosted: Sat Nov 16, 2013 2:53 pm
by Wackers34
yeah thanks fluppypuffy, I saw this link before and its made me very confused...I have had MRI of brain and it showed no damage other than pineal cyst, no lesions etc...I also have had no seizures or headaches...I do get twitches and heart rate problems...plus unrelenting fatigue, I wonder if its fibro causing all these things as reading that link ME is actually quite rare, whereas fibro is very common...I do get the delayed malaise following exercise.

My friend, who has always had ME, said they are different things, but she has had a recent MRI and it found no damage.

I find it all so very confusing, i don't know why im so worried about it...I think im just going to tell people I have fibro and chronic fatigue along with this.

Only just realised your fluppypuffy, thought it was fluffypuppy for so long - it took me a while to understand it...sorry if i have been calling you fluffypuppy all this time ! lol