Yet another pain clinic appt waste of time GRR!!!

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Yet another pain clinic appt waste of time GRR!!!

Postby debsmith » Wed Nov 20, 2013 7:29 pm

Hia all
Hope everyone "okay" as you can be....
Today had pain clinic appt 2 buses there + back OOOOWW!!!!!! In appt I mentioned my knee that is giving me awful pain she didn't look at it or anything then we talked about medz and told her the pregablin at times feels like I'm not there then snap out of it again not much response!! She said see in in 4 months once I've seen the rhummi + had surgery ahhhhh then she looked at my notes and my op in july anathetic notes were no where to be seen! I did ask why but she didn't know so after taking a day off annual leave for nothing I'm no wiser/or less pain than when I set of today excuse my rant I'm fuming!!!!!! 1 thing she did say re: knee was u could try exercise + weight loss wtf she was the 1 who told me I'd gain weight on them + when I've finished work at home I cannot move let alone exercise she said I don't work for the jobcentre ahhhhhhhhhhhhhh!!!! I also told her work is now getting to much :( :( :( I don't understand the point of today,s appt!!!! I said I cannot handle the deep pain in my butt and near coxsic can't spell that LOL but she just wasn't interested feel like I've hit a :banghead: :bricks: i had a fall on a path last year + lower back near butt hasnt been same since yet???? thanks had to get that of my chest! xxxxxx
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby denys » Wed Nov 20, 2013 9:23 pm

Sorry you didnt get anything out of the appointment, will she sent a report back to your doc :?: :?: :?: :?: :?: :?: If so maybe you could get a copy of it and find out what she has said in it :?: :?: :?:
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby debsmith » Wed Nov 20, 2013 10:17 pm

Hia denys
Every time I go up there a report gets sent to GP and me its the way they do things here so we are always aware of what's been said what my gp thinks of it well pass she said too re: knee etc the whole thing really is up to gp now at a guess after diagnosing me she's now washed hands! Fed up re: very bad pain left butt etc and no one has done any blood tests exept my gp re: now on folic acid I feel we go threw enough day+night without doctor,s being this way ahhhhhhhh xxx
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby denys » Wed Nov 20, 2013 10:31 pm

Its difficult but most of us get bumped back to the GP to care for and its because they dont really know what to do with us :( :( :( :( Have you tried sitting on a hot water bottle for the new pain or trying a TENS machine :?: :?: :?: :?: :?: Hope you feel brighter tomorrow
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby debsmith » Wed Nov 20, 2013 11:14 pm

Hia yeah I use heat a lot it helps a bit then u have to re warm lol re: tens I was guna ask her today but 4got brain doesn't work sumtimes and yeah I think ur rite there they don't know what 2do with us its very bad realli!!! :banghead: :banghead: :too-upset: and thank u hun xxx
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby zappa20 » Thu Nov 21, 2013 6:40 am

You're allowed a rant. lol. Unfortunatley it's the NHS hospital system and how it works. It's crap and often a waste of everyone's time. At outpatient appointments a stack of patient files are dumped on a desk, the person you're seeing lifts a file and may have no idea why you're there until he/she takes a couple of mins to try and read a few details from your file , if it's in order that is. Before asking the general 'how are you today?' question. And then he only has another 6 to 8 minutes to deal with you before running late with their next appointment. It's no surprise this system often disappoints both patients and doctors. .

One time I went to rheumatolgy clinic was a locum . Possibly Dutch or Flemish. Anyway when I asked if low levels of certain blood cells which I was due to see the haematolgist about , could be affecting things , his response was I'm a Rheumatolgist not a Haematolgist, so I don't know, ask the Haematologist. One week later went to the haematology clinic, exact same locum. He was most embarassed as he remembered me, when my OH asked him if he had his haematolgy hat on that afternoon. lol.

Point I'm making is speciality doctors are only interested in their specific area nothing else. The pain DR wouldn't interfere with your knee treatment unless you've been discharged from the knee clinic, or the knee Dr had referred you to the pain clinic. It would be chaos if different area consultants interfered or changed other speciality consultant's treatment plans without their consent. And your notes were misfiled by admin by the sound of it.

I usually cancel most follow up appointments now, unless there's a very valid or specific reason for going. At one point I had 8 different clincs to attend with various follow ups and felt like attednign outpatient appointmnets ahd become my new profession. Has saved me and the NHS a lot of wasted time and effort. Not necessarily recommending it for anyone else.lol.
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby whoami » Thu Nov 21, 2013 1:07 pm

Deb...as mentioned, when we see a specialist they deal with only what the GP referred you for. It doesn't seem fair to us the patient who is looking for relief from anyone.

Sadly, Dr's allow so much time to deal with the topic originally presented by the patient. If they involve themselves in other complaints then the appointment goes late having the next patient waiting. If all appointments ran late by the afternoon patients would be waiting hours to see the Dr. Something else to complain about. Our Dr's receptionist asks, what do you need to see the Dr about? She then books time needed. We are only allowed to discuss 2 issues at an appointment.

Sometimes it seems like the Dr is not listening to us when they are. Sometimes the report back to the GP refers to anything that was noticed. Sometimes symptoms we present are actually from the same cause, so a Dr will seem to us to dismiss them when actually they have taken note.

It is so hard for those of us with a chronic condition. We are desperate for someone, anyone to fix, heal us. We tend to let all our frustration out and expect to come away with the perfect answer and treatment. It just doesn't work that way and leaves us even more frustrated and angry.

I hope that your next appointment with your Dr will give you some peace Lorraine
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby debsmith » Thu Nov 21, 2013 7:57 pm

Hia all

Thank u 4 all ur comments much appreciated I think ill put off the next pain clinic as tbh not getting anything out of it ill wait to see the rhummi in january don't quite know what 2 expect from rhummi,s never seen 1 b4 it is frustrating and I appreciate the NHS is realli pushed .............but I think its about time the goverment stopped making CUTS!! And bring more doctor,s etc on board so 1 they arnt stressed + 2 nor are we!!!! I don't think unless that person/dr has fibro they "can't" understand its great that we all understand each other thank goodness for forums like this or I'd go bonker,s LOL!!! But its nearly friday yeyyyyyy!!!!! I hope all of u are as okay as u can be sending huggs 2u all xxxx :grouphug:
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby Rosesfour » Sun Dec 29, 2013 6:33 pm

I am newish to all this confusing stuff,probably had FM for 2years at least.i am a sceptic regarding clinics,and not going to waste time after reading comments on pain clinics.i don't want epileptic drugs as think more problems.i have to go back to work or lose my home,so opioid drugs wouldn't help.i am exhausted and brain fogged but that's no good if you work in education.feel quite depressed as there doesn't seem any way out.i have no family to help,all abroad.
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby FluppyPuffy » Sun Dec 29, 2013 9:38 pm

Rosesfour wrote:I am newish to all this confusing stuff,probably had FM for 2years at least.i am a sceptic regarding clinics,and not going to waste time after reading comments on pain clinics.

Try not to write~off all Pain Clinics as a waste of time based on reading about a few bad experiences, for each naff one there are a number of decent ones that we don't hear about.

I'm currently under Pain Management Solutions who provide pain clinic facilities in my area, and have found them really helpful. Thru them I have been able to try acupuncture, something I was interested in but a little concerned about trying privately due to the cost. Much to my delight I've found it makes a nice difference to me, so I'm now looking for a local practitioner to start seeing on a more regular, longer~term basis to see how much more it could help me.
Rosesfour wrote:i don't want epileptic drugs as think more problems.i have to go back to work or lose my home,so opioid drugs wouldn't help

There are non~med based treatments to try as well, which could prove beneficial. If I hadn't already got my TENs machine, thru PMS I could have borrowed a unit for a while to see how I got on with it, sort of trying before buying. This is something quite a lot of their patients have made use of, and have then gone on to buy their own units due to the difference it helped make to them.

I've been part of the FM club for almost 14 years now, and have found ways to help make each day more manageable for me. Whilst they were steps in the right direction, what I've experienced whilst being under PMS has been more of a leap forward as it was such a long, long time since I had felt so :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: about my future with FM and its associated problems.

Maybe consider finding out what you could be able to access thru the service covering your area before putting that big red line thru the idea. You never know, you could find a combination of things that helps make at least part of the difference between how you are now and how you could be a little further down the line.
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Re: Yet another pain clinic appt waste of time GRR!!!

Postby zappa20 » Mon Dec 30, 2013 3:44 am

Rosefour, don't write off anything until you've at least given it a chance. As you work in Education which is a very stressful environment these days with all the targets and pressures, any lack of a decent nights sleep because of stress will be contributing greatly to your Fibro pain and symptoms, and may even be the root cause of it starting. I appreciate how tough Education is . My sister retired early from it 2 years ago. She said teachers are so busy filling in paperwork and teaching kids to achieve targets these days, they no longer have the time to teach the basics. She found it very frustrating.
.
Anti depressants boost seratonin levels and so aid restful sleep and reduce feelings of stress which can result in you subconsciously tensing muscles leading to sore neck and shoulder muscles. Similarly the epilepsy ones can dampen down the nerve endings firing off messages which your brain mistakes for pain signals. They may help you with the cycle of fatigue, pain and despair of fibro you may be experiencing.

Rheumatoligists normally just diagnose and refer you back to your GP, onto a Fibro managment course, or to a Pain clinic to learn how to manage Fibro. Once that's done you're expected to find what works best for you .There's no single method or routine which suits everyone, as Fibro symptoms are as individual as you and your life.

Pain clinics have the experts in chronic pain management. As FP has explained can get you access to trying several methods of delaing with pain not all of them with medication. They can teach visualisation tecniques which have been proved to work very well in chronic pain managment. Visualisation works brilliantly for me, I learned to deal with the electric shock and burning nerve pain by distraction methods alone. No pain killers needed. Tight sore mucles only improved once I got enough quality uninterrupted sleep and did my daily boring stretching and posture mproving exercises.

But the biggest help in managing this will come from within you, once you find what works best for you and that initally can mean giving everything a try.
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