Reynards

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Reynards

Postby Rachellou » Wed Jan 15, 2014 10:17 pm

Hi,

Is it possible to have Reynards with the fibromyalgia I have notice of the past few months that my hands feet and sometimes nose can be cold as well as blue and that sometimes having a bath is the only time I will warm up is this sounding like Reynards I only ask because I've talked to my mum and she thinks it is. What should I do??

Kind Regards
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Re: Reynards

Postby colin halls » Wed Jan 15, 2014 10:35 pm

Hi

i have had raynaulds for 20 years well before fibro ask your DR to try nifedipine It helps a lot with coldness as kit keeps the blood vessels open
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Re: Reynards

Postby Suzyhyde » Wed Jan 15, 2014 10:53 pm

I have reynards for about three years along with my fibromyalgia my doctor was no help ,to help I wear knee high alpaca socks for work which help ,plus the gloves. I wear at night time or at home sheepskin slippers which go half way up leg they have helped sooo much .i didn't know there was any med to help but I have sorted myself out
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Re: Reynards

Postby whoami » Thu Jan 16, 2014 12:36 am

Hi! I have had Raynauds Syndrome . I got it long before fibro that I have had for 25 years. Living in Canada, I really feel it.
This year is the worst I have been. With it dipping to - 45 you certainly feel the cold no matter how dressed up you are.

The inside of my nose is burning before I make it to the car. It seems ironic to use the word burning when you are describing cold. I would swear that my eyeballs have froze at times. It is the weirdest feeling. I know it is just surface tears and not the eye ball, LOL
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
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Re: Reynards

Postby LibbyWick » Thu Jan 16, 2014 1:49 am

Yes, me too. Had the Raynauds long before I was diagnosed with FM. From my own experience I have found taking high dosage Gingko Biloba daily has helped. It takes a while for it to take effect. Bearing with it definitely helped me. I also rarely wear gloves as that seems to make it worse. Mittens or fingerless gloves are best .... if the fingers are isolated they do not get the benefit of the warmth from the fingers next door. My nose still suffers and it's difficult to keep my feet warm but I am no where near as bad as I used to be. Just getting something out of the freezer or shopping through the frozen/chilled sections at the supermarket were a nightmare but better these days. I do know there are some contraindications relating to other medication, so always wise to check with your doctor before taking any off the shelf supplements/medications.

Hope you find at least a partial relief to the problem.
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Re: Reynards

Postby Rachellou » Thu Jan 16, 2014 7:13 am

Thank you all so much for your replies I guess I should make an appointment with the Doctor
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Re: Reynards

Postby janet.clare4 » Thu Jan 16, 2014 9:14 am

Cold feet is all part of FMS. I paid to see a pain specialist and he asked my husband if he noticed that my feet were always cold in bed! Lol After an examination he told me I had FMS. The appointment was made because I had been suffering pain in my rib area which was diagnosed as Costochondritis by an Orthopedic surgeon. I had wanted to have pain relieving injections that I had read about but after the examination he said it was FMS and that because my pain was so wide spread that he wouldn't recommend them. I think suffering this pain since 2009 brought on the FMS. After a wait of 6 months I'm finally getting to see a rheumatologist next month. My medication at the moment is 60mg of Duloxetine and pregabalin.
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Re: Reynards

Postby Rachellou » Fri Jan 17, 2014 7:28 pm

Thank you all so much,

I have been back to the doctors and he is now referring me to the hospital
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