Hypermobility Syndrome?

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Hypermobility Syndrome?

Postby dazzleship » Sat Aug 23, 2014 8:44 pm

hmmmm.... I am hypermobile but haven't been diagnosed with hypermobility syndrome. I've been referred from my new GP for a rhumatologist appointment (still waiting for it - could be weeks yet :roll: ) and I'm definitely going to ask about it then.

last year a physiotherapist diagnosed the hypermobility, giving me 8 out of 9 for the test (Beigton test?). in addition to the thinks on the test I can clap my feet :-D , and occasionally I get sensations in my shoulders like my arms are slightly moving out. oh and my jaw moves about more than it should.

my biggest problem is my knees - when I'm having a really bad day my walking 'gait' is very odd, my knees keep bending backwards slightly and it ends up with me exhausted and in a lot of pain.

also my ankles 'go over' quite regularly (had a bad one today in fact, resulting in a sprain I think). when I sit down my ankles just 'flop' sideways (bent outwards). and - as hubby keeps pointing out - I'm developing a tendency to walk with my ankles bent over. I don't even really notice I'm doing it.

but I've never dislocated anything so I'm not sure. but I do wonder about it which is why I intend to ask the rhumatologist person.

hugs to all.
dazzleship
User avatar
dazzleship
UKFM Member
 
Posts: 460
Joined: Fri Jun 20, 2014 10:40 pm
Location: scotland

Re: Hypermobility Syndrome?

Postby TNK* » Sat Aug 23, 2014 9:11 pm

I have never dislocated anything...my ankles can move to much that my feet are at right angles pointing inwards...I see a podiatrist and last time I went he got a couple of students in to have a look
A Dream Is A Wish Your Heart Makes When You're Fast Asleep ºOº


Jo xx
User avatar
TNK*
UKFM Member
 
Posts: 319
Joined: Wed May 07, 2014 4:14 pm

Re: Hypermobility Syndrome?

Postby dazzleship » Sun Aug 24, 2014 10:41 pm

TNK* wrote:I have never dislocated anything...my ankles can move to much that my feet are at right angles pointing inwards...I see a podiatrist and last time I went he got a couple of students in to have a look


thats what mine do! you can clap your feet too then?

I've never had anyone look at it though (apart from the disapproving looks from hubby as he reminds me "your ankles are going again" :roll: :lol: )
dazzleship
User avatar
dazzleship
UKFM Member
 
Posts: 460
Joined: Fri Jun 20, 2014 10:40 pm
Location: scotland

Re: Hypermobility Syndrome?

Postby TNK* » Sun Aug 24, 2014 11:14 pm

dazzleship wrote:
TNK* wrote:I have never dislocated anything...my ankles can move to much that my feet are at right angles pointing inwards...I see a podiatrist and last time I went he got a couple of students in to have a look


thats what mine do! you can clap your feet too then?

I've never had anyone look at it though (apart from the disapproving looks from hubby as he reminds me "your ankles are going again" :roll: :lol: )


Yes I can clap them x they also come in handy when I've got aches and pains and I can't bend to pick things up...I can grasp quite well with my toes and puck stuff off the floor.....I wonder if I have been born like that as if it's meant to help with disabilities later on?????

A bit darwinian I know but you just never know x
A Dream Is A Wish Your Heart Makes When You're Fast Asleep ºOº


Jo xx
User avatar
TNK*
UKFM Member
 
Posts: 319
Joined: Wed May 07, 2014 4:14 pm

Re: Hypermobility Syndrome?

Postby dazzleship » Sun Aug 31, 2014 10:28 am

TNK* wrote:Yes I can clap them x they also come in handy when I've got aches and pains and I can't bend to pick things up...I can grasp quite well with my toes and puck stuff off the floor.....I wonder if I have been born like that as if it's meant to help with disabilities later on?????

A bit darwinian I know but you just never know x


:-D I can pick up stuff with my toes too. and your theory could be correct 8-)

I supposed I must have been hypermobile all my life, but never realised I was until recently. it was only reading about fibro and in turn reading about hypermobility that I realised.
dazzleship
User avatar
dazzleship
UKFM Member
 
Posts: 460
Joined: Fri Jun 20, 2014 10:40 pm
Location: scotland

Re: Hypermobility Syndrome?

Postby Fairytaz » Tue Nov 04, 2014 12:28 am

I have both HMS and fibromyalgia, only 25 years old. Different specialists diagnosed me years apart. My back gets stuck and suddenly makes a loud crack noise, hope this helps :)
Fairytaz
UKFM Member
 
Posts: 26
Joined: Thu Oct 23, 2014 11:48 pm

Re: Hypermobility Syndrome?

Postby galio » Thu Nov 13, 2014 11:59 pm

yep Im joining this club suspected for a few years after a work colleague was diagnosed with hypermobility syndrome that that was what was to blame for my always having pain, for years gps said my hip problems were non specific joint pain, many people are hypermobile but it only becomes a syndrome when it causes pain and/or dislocations (which of course cause pain) I was only diagnosed this year but also with fibro by rheumatologist after asking gp for referral due to having so many problems causing time off work, I never realised I was as bendy as my son is also dx with hms and Im no where near as bendy as him, but i have gone from bendy and flexible to very stiff but still have flexibility, I first heard of fibro when at a support meeting for hms most of the members have both.
galio
UKFM Member
 
Posts: 177
Joined: Tue Aug 26, 2014 10:56 pm
Location: aberdeenshire

Re: Hypermobility Syndrome?

Postby dazzleship » Fri Nov 14, 2014 8:54 am

I don't know if what I keep getting is a subluxation - can someone advise?

basically (it happened again this morning) I'll be lying in bed on my side and suddenly my arm (well, the bone in my upper arm if you see what I mean) will suddenly drop downwards (in the direction of the bed if you see what I mean) in my shoulder socket.

kinda hard to explain but, I figure if it's dropping downwards whilst I'm lying on my side, the actual direction of the movement is toward the outside of my shoulder socket if I was standing upright (does any of this make sense?)

it is very definitely moving within the shoulder socket. and it's downright alarming. :shock:
dazzleship
User avatar
dazzleship
UKFM Member
 
Posts: 460
Joined: Fri Jun 20, 2014 10:40 pm
Location: scotland

Re: Hypermobility Syndrome?

Postby diane1 » Sun Nov 16, 2014 12:14 am

Hi
I was diagnosed with fibro 8 years ago but it wzs only about 5 that I was diagnosed with hyper mobility. I had to see a speciast in fibro for a claim l was making for my pension and found out that I scored very high for hyper mobility. It is linked to fibro , I was also dianosed with arthritis and a whole load if other stuff to add to my already long list.
My hips give way all the time and my feet are so painful I fall alot. I went to see a podiatrist and got special inner soles which do help . I also discovered fit flops. I now have sandals , shoes , boots and slippers. They arent cheap but look in the sales. I cant walk without them especially the slippers in the house.
I hope your list doesnt grow.
Does an elephant with fibro fog ever forget ?
User avatar
diane1
UKFM Member
 
Posts: 508
Joined: Mon Jan 18, 2010 11:31 am
Location: wirral

Previous

Return to Associated and Other Health Problems

Who is online

Users browsing this forum: Google [Bot] and 3 guests