do I have ME as well?

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do I have ME as well?

Postby keely » Thu Dec 08, 2005 1:04 pm

Hi everyone, hope you're all having not too bad a day.

Can anyone advise me on where I could go to see if I have ME as well as fm? I know they're pretty similar/almost the same.

If I've got both, I want a proper diagnosis so I can get all the help I can. It's take me a while to get diagnosed with fm so I don't know how realistic it is to get a diagnosis of yet another "all in your head syndrome"!!
I trust and believe that my angels are with me endlessly, guiding me with their love and light....I just wish they'd throw a bit of good luck my way sometimes!
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Postby tina » Thu Dec 08, 2005 10:24 pm

hi keely, i was diagnosed with FMS in 2002 by rheumy managed to keep under control and worked full time for further 2 yrs but due to family bereavement in 2004 had major flare up that would not lift. GP sent me back to rheumy, then sent to pain management, physio etc. funny thing but since 2004 flare up, of which i have now been put on permanent health ins by employers, my GP signs my sick notes as CFS(ME). I think this is because the one significant change to my FMS symptoms was chronic fatigue brought on by the stress i was under at time.

So i think you can have the two and one can certainly bring about the other. Also it differs from GP to GP as some are more aware of these relatively new illnesses.

Mention all new symptoms to doc at every visit

spk 2 u soon tina
if the sun ain't smiling give it a help in hand!!!!
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thanks tina

Postby keely » Thu Dec 08, 2005 11:02 pm

hi Tina

Thanks for your reply. I was just wondering as I keep getting a really sore throat and glnds..which apparantly is more ME???

It would be my luck to have both..I never do things by halves lol

warm wishes
I trust and believe that my angels are with me endlessly, guiding me with their love and light....I just wish they'd throw a bit of good luck my way sometimes!
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sore throats

Postby angel_on_fire » Thu Feb 16, 2006 10:56 am

Hi all

Is it true you get a lot of sore throats with ME? I am waiting (still..sigh) for fms diagnosis but my main problem is extreme exhaustion (on top of usual fms symptoms) - I was told I probably had ME when I was 16 and sleeping for about 20 hours a day but its no where near that bad now -

anyway.... i get loads and loads of sore throats and recently it feels like i have two little balls under my chin/in throat - do they just come up when your feeling a bit rubbish or is this a sign of ME?

Also while im on the subject... the last few weeks my adams apple (or whatever its called for a girl!) feels really strange - i cant really describe it but it feels bigger and a bit lumpy - not sure if im just noticing something thats always been there or if its changed - any ideas?

thanks :lol:

Angel on Fire
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sore throats

Postby mairi » Thu Feb 16, 2006 1:32 pm

Hi, I suffer from these periodically. I think mine are accumulations of fluid but I may be wrong. Are you very tight under the chin ie.,'thick' tissue, ligaments, etc? I gently stroke 'knots' under my jaw and Adams apple with finger and thumb.
Part of my exercise routine is to slowly raise my head and look up at the ceiling then lower it to look, over one shoulder, down at the floor. This gets repeated so you look over the other shoulder.
The next one is to turn your head slowly to the right to look behind you and repeat to the other side.
Following that, pull your shoulders up to your ears and lower them. Then roll your shoulders one way then the other. It was recommended I did each exercise three times. Needless to say there are times when I cannot do them! However the reasoning behind them is quite sound.
If you are still very sore then I suggest it is an inflammation which can be eased with the usual hot drinks, etc. Do you have a lot of mucus as I do? I think the lymph glands are involved though aren't these at the side of the neck? The trouble is so much is involved- worn neck joints, compromised nerves at the back of the neck, thickened tissue(lesions?) etc.
Often you do the recommended stretching and light activities and drink regularly and talk in moderation and still the pain screams at you! Sometimes it disappears after a certain activity which could be talking, or crying!
Hope this helps.
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Postby pageantqueen66 » Tue Feb 28, 2006 10:55 pm

I asked my GP to refer me to the ME clinic at James Paget Hospital, Norfolk. I see the Me sPecialist Dr Terry Mitchell and a brilliant OT Specialist, Louise Neilson.

I have never had any trouble with either of them. However, it did take a while to find a GP within my own surgery who listened to all my symptoms and was sympathetic too. I feel I am really lucky as I have a male GP and a female GP who understand me.

Good luck
"I try to take one day at a time...but sometimes several days attack me at once."

Love Gwen xx
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hi back again

Postby keely » Mon Oct 02, 2006 1:19 pm

Hi guys

I'm back after a long period of thinking I'd recovered, and finding out I'd overdone it lol.

Wasn't very happy with the comments from the guest.. I don't need comments like that, I am ill, I do believe it actually... cos I'm in ******* agony a lot of the time!!

Anyway thanks to the nicer comments following it!

The lumpy throat symptoms... have you had your thyroid checked out?

Hope you guys are having better days

Love

Keely x x
I trust and believe that my angels are with me endlessly, guiding me with their love and light....I just wish they'd throw a bit of good luck my way sometimes!
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Do I have ME as well

Postby Linda T » Mon Feb 19, 2007 2:46 am

Hi Girls

Can I please jusr tell you what I have said in a previous posting under recommend a Dr.

I saw a rheumatologist privately who works with BUPA he has a special interest in FMS this is what HE told me and I have no reason to doubt his word.

FMS and ME are basically one and the SAME illness. They have around a 75% cross over of symptoms. If your worst symptom is fatigue then you get diagnosed with ME but if your worst symptom is muscle pain then you get diagnosed with FMS but basically they are the same illness.

I have FMS and my daughter has ME and yes indeed we do suffer many of the same symptoms but her chronic fatigue is worse in general than mine (unless I completely over do things then I am as bad) but my main symptom is muscle pain (she gets some muscle pain but not as severe as mine unless she over does things then it can be as bad)

As I said above I have NO reason to discredit what he said and my own experience and my daughters experience bears it out.

Take care Linda T
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Postby Min » Thu Feb 22, 2007 7:37 pm

I have a diagnosis of both, although the M.E. symptoms started first. My belief is that they are the same illness. I've never seen a fibromyalgia specialist, only an M.E. one who had absolutely nothing to offer.
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Postby HazelB » Tue Apr 03, 2007 3:07 pm

My mum has M.E. and I have to agree that there is a high percentage of cross-over symptoms with FMS - from our experiences I would say that if they are not the same illness, they are very closely connected.

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reply

Postby princess » Tue Apr 29, 2008 2:48 pm

Rhumatologist is the person you need to see at the hospital - they will make a dia for you within an hour if even that.
Both are quite similar but ME is more the fatigue side of things
Fibro is the pain
Well thats what i have found - i have put onto forum the symptoms in general for both
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Re: do I have ME as well?

Postby junebenton07 » Fri Mar 26, 2010 1:35 pm

Hi everyone,
I think i have just found the answer to do i have both FMS/ME. Iwas diagnosed with fibro about two years ago, but they wouldn't tell me if i had ME as well, they looked at me when i asked about the ME, and more or less dismissed my questions as if i didn't know what i was on about. I am suffering with severe fatigue, so thankyou for clearing all this up for me.
Mischa's mum
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