Paralysis before/after sleep

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Paralysis before/after sleep

Postby Ribbonsrabbit » Mon Aug 04, 2014 2:53 pm

I know that some people with fibromyalgia are either falling asleep or wake up and their awake in their head but the body remains paralysed.
Ive had it a few times but last night it lasted too long and became scary because things were happening in my environment and I needed to move but was stuck.
I was screaming inside my head and that normally works but I just screamed and screamed and my body didnt even release adrenalin.
What is this phenomenon called please because I want to research it because right when I thought things couldnt get worse, I seem to have been hit with a brick and sucked down into hell.
I had not been drinking or taken any medication that would make me drowsy but am having about the biggest FM flare I have ever had in my life.
Thanks for any advice.
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Re: Paralysis before/after sleep

Postby TNK* » Mon Aug 04, 2014 3:22 pm

It is called sleep paralysis...i get it sometimes, usually if i wake up drowsy and nod back off a little bit, and then i can get the paralysis...i get a sort of warning as i get a buzzing sound that happens just beforehand
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Re: Paralysis before/after sleep

Postby *Lisa* » Mon Aug 04, 2014 5:20 pm

As said above its sleep paralysis.

I often get this and i have also had the auditory hearing as well when you hear people talking or call out when no one is there! :shock: and one time i Hallucinated :yikes: that was the final straw and so i saw the GP who gave me some sleeping tablets.

Its more common in chronic fatigue syndrome
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Re: Paralysis before/after sleep

Postby Theresa34 » Mon Aug 04, 2014 5:22 pm

I don't get this but my hubby does. Scares the heck out of me. We call them night terrors. It happens when he's stressed. Must be scary for everyone who experiences it x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Paralysis before/after sleep

Postby Ribbonsrabbit » Mon Aug 04, 2014 6:38 pm

Thank you so much for naming it as sleep paralysis because I had the word paresis in my mind and now I have researched it I am a bit more scared and a bit less scared.
It did happen more than once last night and it has probably happened 15-20 times in the past 1-2 years but this one episode lasted for at least 20 minutes and its the longest it has ever lasted, ever.
I found this link....

http://en.wikipedia.org/wiki/Sleep_paralysis

It was definitely when I woke up and as far as I remember it has always been. Normally it doesnt last long and I either just ignore it and go back to sleep or I have been able to yell at my body to move... Now I think about it, I remember at least one time I needed to pee and was paralysed and ended up crying..... I have always been able to move if I have screamed loud enough.... inside my head I mean.

When I said there was activity in my environment that needed me to move.... I am currently nursing a very sick animal and I could hear he was awake.
He wasnt in distress but I think that my own anxiety about not being able to move might have meant I couldnt move for longer?

The implications of the seriousness of this are just falling, slowly, brick by painful brick.

I dont have a baby to care for thank God and thats a wake up call to upgrade the contraception and what if there was a fire?
What I could hear was, as I said, activity, but I have two animals here who sometimes need life saving care....

It looks like fibromyalgia just robbed me of the last reason I had to stay.
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Re: Paralysis before/after sleep

Postby zappa20 » Tue Aug 05, 2014 1:09 am

I've had this before I had Fibro and it's very scary. I'd fallen asleep in bed sitting reading with the light on and could see my OH lying fast asleep and my surroundings, but couldn't move and couldn't swallow which scared the hell out of me. Tried to make a noise but couldn't, then It left, and I could move etc.

In my case I put it down to Amytriptilene I was taking at the time for diabetic caused sensory nerve pain. My niece who is a normal healthy adult has had these on and off for years. So it's not necessarily related to Fibro. I don't know how to prevents it happening, but I've not had it since and hope if it ever happens again, I recognise it as sleep paralysis and won't find it so scary as I know it will pass.
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Re: Paralysis before/after sleep

Postby Ribbonsrabbit » Wed Aug 27, 2014 10:25 am

I have seen my GP and have been referred to a specialist sleep clinic for assessment. I have experienced sleep paralysis 15-20 times probably but not for almost 30 minutes and it is exactly as you described. I woke up in my head and my body remained totally inert. I couldnt speak, move or take a deep breath. I was helplessly paralysed.
Pain has nothing on total body paralysis. Nothing.
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Re: Paralysis before/after sleep

Postby FluppyPuffy » Wed Aug 27, 2014 12:17 pm

Sounds like things are starting to move in a suitable direction for you :fingerscrossed: :fingerscrossed: :fingerscrossed: Hopefully it won't take long for an appt to come thru and you can start getting some answers and help for this :flowers: :flowers: :flowers:
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